I spoke with Bev last night...She had to get up at 3:30 am to leave for her
2 hr drive to the Hospital where she will have her Gamma Knife surgery this
AM....
She was very nervous and said she could not go to sleep... I probably called

I haven't seen a post since the 13th with a couple of cross posts on the
12th.
Hope everyone is okay and that the ironman hasn't run everyone off!!!!!
Hugs,

Last week I saw my doctor at the Cleveland Clinic for a check-up.  He
noted that I have gained weight (5 lbs), and asked if my illness
(diagnosed with Sjogrens Syndrome, and may also have SLE) is still
affecting my job .  When I told him I am not able to be active

Just got a new med from the doctor today and wondered if anyone had
any issues or have used this med before. It is called
lyrica......supposed to help with pain?

In the beginning, God created the Heavens and the Earth and populated
the Earth with broccoli, cauliflower and spinach, green and yellow and
red vegetables of all kinds, so Man and Woman would live long and
healthy lives.

i have never done a group before, so this is interesting to me. My
husband was diagnosed with lupus in 1999. We have really been through
a lot. Dont necessarily want to go into details here, but would love
to talk to someone whose husband has this disease. This is normally a

Back and at the alternative to HELP.......LOL
Saw my doctor today and indeed even with higher doses of medrol my wbc count is way too low. So
she is thinking other ways to try and control this so called LUPUS.
I have more joint pain and well ran out of options for treatment, but ...

I suppose this might explain **why** .. bloodletting... works.
Bloodletting / phlebotomy / venesection .. lowers .. iron.
Ferritin .. is .. iron .. http://tinyurl.com/2eu48a
Titre du document / Document title

Hi Loopy Lupies!
Well, I've been terribly remiss in my communications here and
backchannel with folks from ASL.  And I've not updated the FAQ or my
pages in... too long.  I keep saying I'll do so and keep finding

Hello Family!
I have not written in so long, because I have a bug in my computer, and my
guru has told me to use the machine as little as possible until he can get
it on the bench and look at it. <sigh>

Good day all, I am back with a question for the masses.  I have severe
sun sensitivity.  I stay out of the sun as much as is humanly
possible.  I noticed that over the last two years I have not gotten
any better, over all, but have been even or flaring up.  SO, being a

Twenty years ago I was diagnosed with Lupus.  After two years, it was
RA, then it was Psoriatic Arthritis, then Sjogrens.  Today it is Lupus
again.  So I am listening to all of this, trying not to cry and all of
the while I do not hear what the doctor has to say anymore, I do not

Sooo .. 'they' .. have us believe erythrocytosis is NOT .. part and
parcel / causing .. lupus or sickle cell .. but .. all the drugs ..
relieve erythrocytosis / increased red blood cell production .. IE:
pentoxifylline , hydroxychloroquine , interferon , hydroxyurea

Good morning.
The subject only speaks partly of what I want to post here.  I'm
trying to find a SLE sufferer who in the past or current, flaring so
bad the pain is unbearable and blood results are negative.