Zuska,
Oh my dear. What a terrible time you have had. I feel for you and send
lots of hugs and "Positive Thoughts."
I am also on Plaquinal but every time I report something like this to

in our library i taken our big book with 1000 pages about herbs and
herbs in diseases,and herbs in cosmetology from russia...
if you interested feel free ask and i will write a herbal therapy in
any disease))

I know that summer sends many of us in different directions. So before
everyone leaves ... ... ...  how about a quick update?
We are in compliance with the city as of Friday morning. We still have the
final coat of paint to put on the porch but primer was enough to satisfy the

for people with lupus ,who tend to sensitive to UV light  the most damaging
rays are the UVA which occur between 10 am and 3 pm. So it is best to avoid
these time of day
Regards

What a day this has been ~ not sure if it will end up as a good one or
not. Time will tell.
For three months, I have become progressively weak, to the point that I
now cannot walk without either crutches or a walker. In June I began

Well all the messing MIGHT be coming to an end.  I went back again to the
podiatrist.  I was to see an orthopedic doc late Aug but I am barely walking
right now, so
The tendon lining is really bad again. Much more inflammation in there as

Hi gang
Just thought I'd touh base...got homr tonight after 10 days in
hospital.Although strictly speaking I have been diagnosed with primary
antiphospholipid syndrome and not lupus, it is starting to behave more like

Now my first question is this do I send a reply thru my e-mail or dso I
have to go back to the site each time to reply? Let me know as this is
still new to me.I know all about the sun and the heat as it only makes
me sicker and more flares,so I do much better thru the coler months ...

ok, which one has a good link or LINKS to walking canes with seats.
Things that people also need to make life easier with a disability.
thanks much
janers

Hello I am a returning member with Np Lupus ( Neuro psychiatric) Can any one
tell me what treatment is available for myositis? and what can be seen on
MRI of the thigh Muscles?
Best wishes

Hi my name is Tina, and I have had Lupus/APS,DVT., and P.E. for the
past 5 yrs. now.I am married with 4 grown boys, and live in IN.I am
also 41 yrs. old.I hope to get to know the people in the group and
support them as best I can,and will be looking for support too from

Hi all ~
I am also new to the group, and although I subscribed a few days ago,
today was the first time I recieved an email. (I have it set to digest
so as to not overload my in box.) Anyway, here is my story:

I was diagnosed with Lup[us in 1993 I had always been a very active
person.. Classical Ballet, Swimming competively, Horse Riding and
Yachting.I was a very happy person with loads of self-confidence.
In about 1998, I started to get aches and pains in all my joints and

Has anyone received Rutuxin foe arthritis symptoms?  My joint pain had
become very difficult to manage and after the FDA approved the use of
Rutuxin my Rhuemie started this therapy on me.  The joint pain has
diminished dramatically but I am concerned about side effects.

i was dianosed with lupus about 2 1/2 yrs ago, and iam still findingout
different things that seem to bother my lupus. does the heat bother anyone
else or is it just me?