Hi to everyone, from Mair and Pigmet here.
It was an "Adventure" but finally we did get our DSL account set up.  We
also set up all our "sub accounts" with groovy names like Major Breadlet,
Boo Radley, and Red Tennies.  Unfortunately, I could not find a way to get

I want to thank all of you who sent me love and well-wishes while I was
feeling so sick.  With prednisone increased temporarily to 15 (from 9) I
definitely have more energy... and the joint pain?  It seems to be taking a
while longer to resolve.

For some of you who may, from time to time, need a wig and if
finances are difficult, this might be a way to get insurance or
other financial carriers (medicaid, medicare etc) to pay for it.
The difference is in the "name".

I have to tell you of my experience today.
Went to see Ear, nose throat doc who treats my TMJ as well as dry mouth and
sinus.  My sore in my mouth are a little more toned down but the back of my
throat felt swollen and sore. Making me cough and gag a little more than

Update family:))
Medical , it is still pick pill of the day and see if something good happens
, me blood seems to be in transition to whatever.
Marcia's arthro pain is no better , she has a sprained ankle  but no more

BJ please DO NOT and try to drink EMU milk.
It is a RUB liquid in small few oz. bottle $19.95.
I am so sorry I did not explain correctly , tis me mind ahead of me brain.
Bruce On. 'glad I checked here before pulling the plug , Marcia neer had a

I preach a lot about avoiding the sun if you know you are photosensitive.
I also have to test my boundaries sometimes I guess.
Helping hubby in the yard.  He needed a Carpenter Bee Sentry as he worked to
strengthen some of the boards on a patio cover in preparation for hurricane

   I am a 28yr old male with SLE (mainly skin & Membranous kidney
involvement) my Rheumatologist is starting me on a drug called
cyclosporin
he tells me this should help with the kidney and also with the skin

I finally heard from my rheumie today.  The plan is this:  To increase my
prednisone dosage from 9mg up to 15mg for two weeks and then decrease back
down to 10mg thereafter.  If we can't get the symptoms abated with this,
then he will put me back on Methotrexate.  Well.  It is good ...

Surgery for my arm "bump" is scheduled for Oct 4.
The surgeon has no idea what it is.
First he suggested a rheumatoid nodule, but I looked up the
description and the usual location and some pictures and they don't

I just found you all.
I have yet to be offically diagnoised as yet but with much research I
believe that I have Lupus.
My question is this...I am going to have a tummy tuck done...(I had

Last spring Bev, me and Bruce were talking about clover.
I said we don't have any here. I was wrong.
I have some, my neighbor too. So I leave a patch of it
(unmowed)..Yummy.

This is something that I came on across on My Clouds online Support Group.
This is relative to all of us with chronic pain, fatigue.
I would copy it here, but it is long...
The document is in Word, so if you can't read it, let me know and I will

Hi guys, Candi here, I'm writing for my (hopefully) future daughter-in-law.
She found out today that she has lupus; anti-DNA positive. She's coming over
tomorrow evening to access the group for the 1st time & I thought a welcome
would be in order for Stacey. I'm still hoping for ...

Support for Family and Friends
Finding support for the family and friends of the patient seems a
more daunting task. Many patients take their support persons with
them to meetings and many participants in on-line forums are family