I am the only lucky one in my family with lupus (diagnosed aged 15 - that
was 22 years ago).  My mum has recently just been given a 'may be' of
Sjogrens.   Just wondering if anyone else has siblings, parents or children
with lupus or lupus-related diseases.

Morning J :)))
I must say  , you have been busy this morn helping others as usual!
Is this dampness making joints keep you awake as it is me?
The first thunderstorm is underway as I speak . Ok I love it , fresh smell

Sometimes one or more posters posts to this newsgroup and don't really
belong here.
To avoid upsets, block them, so you never see their messages.
Do not reply to the persons mentioned in these "block messages" posts.

I read a couple of posts the other day about Cytoxan and was wondering about
the severe joint/muscle etc etc pains associated with it.
I took Cytoxan (that is cyclophosphamide right??) IV for 3 months. After the
third month I had a really bad time ... all the

I'm going in for an MRI on the 28th to see if there is a brain tumor
causing my optic nerve to be crowded and the high eye pressure.  My
optic nerve specialist mentioned that one thing that can cause the eye
probs is high intra-cranial pressure (which can be caused by steroid

http://www.hopkins-arthritis.som.jhmi.edu/other/lupus_pregnancy.html
Introduction
Because lupus is a disease that strikes predominantly young women in the
reproductive years, pregnancy is both a practical and a research issue.

I went in Monday afternoon for more acupuncture. I left feeling about the
same. Nothing new about that, it seems to take a while before the effect
kicks in. But Monday night I had the worst night I'd had in over a week. I
kept waking up with extreme facial pain (neuralgia). It was ...

I probably misspelled remacade. Oh wth,
I found out today that I am having to wait for my ins co to reapprove my
remacde for 2004.
While I am in waiting I have been off of the med since Dec and I am now in

Ive just joined this group and wondered if any of you used online
pharmacies or knew of this one – http://www.phoneconsultation.com ?
My doctor is really unsympathetic to my chronic pain problems and
wont prescribe the meds I need. For the past year I've been using

Hi there everyone,
I am looking for some helpful advice and thought this was the place to
do it!
For about three years I have suffered extreme  fatigue/neurological

I am being bombarded with bills right now, stress out and my pay is two
weeks away.........
I have a cut off notice and it is for tomorrow and they will not make an
extension.

Hi there everyone,
I am looking for some helpful advice and thought this was the place to
do it!
For about three years I have suffered extreme  fatigue/neurological

http://www.hgsi.com/products/LSB.html
"LymphoStat-B has received a Fast Track Product designation from the
U.S. Food and Drug Administration (FDA) for the treatment of systemic
lupus erythematosus. For a new drug to be designated a Fast Track

I've recently been called "narcissistic" and "Eeyore" for sharing some
of my fears around the possibility of losing my Medicaid (Medi-Cal)
coverage that pays for all my meds including the life-saving but very
expensive Cell Cept for lupus.

OK, this is really dumb; I'm the one that told you all about photoisland.com
(the guy that did it is my brother's friend) & I posted pics there but I
can't remember what the user name & password is. I could email Jim (the
photoisland guy) but what the heck is it? I know Ike's on ...