Just wondering how many people are on prednisone permanently.  I have been
on it for 22 years, and will be for the forseeable future.  What are some of
the scary things that I should be worried about?  Would like to hear first
hand stories as well as theories.

I talked to Michael this morning.  He is in the hospital.  He is having a
flare, so let's send our well-wishes out that his flare is a short one.
Everyone stay healthy!
Mair

Does anyone here use a wheeled walker with a seat?  My doctor has prescribed
one for me and I am trying to find out what would be best.  Never having
used one, I do not know what features are really the best to have.  For one
thing, I am the shortest kid on the block, and so I need ...

Oh My Gosh what a weekend.
I got a phonecall late Saturday night and it was my brother having sharp
chest pain and pressure. See he is a long haul trucker and has no wife or
kids and is basically alone. I am the closest he has as far as family. Well

I want to go to Amsterdam from England in late May for a 3 day break.
I have got details of the E111 but apparently the E111 will not cover me
for any non- emergency health problems and there could be an issue if I
was taken ill due to my pre existing medical problems, so I will ...

Has any one experience a   NON tolerance for the smell of meat.  I mean
cooking it, or eating it, or what ever.
I noticed lately that I made some chops last week, when I got to get them
ready to fry up, the smell made me ill. But I did eat a part of one but the

I know his appt was to be this week (?), but don't know if he was able
to get a sooner one & don't remember seeing him post for awhile.
Maggie

Oh my. . . I haven't been able to get back here for months! ! ! I tried
through MSN but . . . not! ! !  So I haven't been able to post for awhile!
Well I have changed email & ISP's and walla. . . there you are again. . . I
was beginning to get very anxious. . . I hace even surfed to ...

Gosh I just don't know what is wrong with me lately. Do you ever feel like
gravity is not your friend? Especially in the mornings, I feel like a ton of
concrete is on top of me. No energy and wish I could sleep for 3 days. Oh
top of everything else, my husband is going to have knee ...

My 14 year old had a complete ANA profile, CRP and UA done last
Friday, after her first ANA came back 1:640 homogenous.  Yesterday the
pediatrician called and said the second ANA was only 1:80 and
speckled.  She was puzzled and called the rheumatologist at Children's

Everybody cross your fingers for my granddaughter. Her science fair project
goes to City tomorrow morning. Is it that good? Apparently it is. It's on
airplanes without the theory of aerodynamics.  In fact she broke all the
rules of aerodynamics. She just created airplanes with tubes ...

After many weeks of cough, chills, fever, etc., tomorrow I have a CT
scan of my lungs, Friday, a chest xray, then I see a lung specialist.
G.

This is my first post here and I want to introduce myself.  My name is
DeAnne, I'm 42 and I was diagnosed with Lupus April 15.  I've been
reading through all the post the last few days and trying to learn what
I can and of course doing searches for good web sites to read.  My ANA ...

http://www.aafp.org/afp/990215ap/diary.html
In a previous "Diary," we mentioned that aphthous ulcers of the mouth
might be prevented in the majority of patients by avoiding toothpaste
containing the detergent sodium lauryl sulfate (SLS). Now, WLL has come

Hi, y'all.
Lurker coming out here. I've read about mouth "sores" in lupus but
never seen a description or picture of what they look like. I'm doing
a cursory Google search but not coming up with what I want. Those of