My pain dr has started me on mushrooms.  I swear I can tell a difference.
I've been on them for 3 weeks now and so far, so good.  They are supposed to
modulate the immune system.  Hope I continue to get help from them.
Nicole in CA

http://www.lupusmn.org/Articles/General/Lupus/Difficult%20to%20Manage%20Lupus.htm
Difficult-to-Manage Lupus
Having treated over 2,000 lupus patients over the last 20 years, I was
intrigued when the editor of Lupus Update asked me to write about

I just started taking this and wondering if anyone had good news withit. I
stopped cytoxan to start this one. so any news would be a help. shelia

Sorry haven't been arount.  We upgraded to dsl and got a new provider.  Had
some problems getting things for a while and decided to go to google to keep
up with the group.
Well I guess you could say you can't teach an old dog a new trick because I

If I am understanding my doctor correctly, he thinks I have CNS lupus, which
is a thing we all seem to dread.  I am very depressed right now, as it seems
to have taken about a day for this news to sink in.  I think it is because
the headaches are relieved by higher doses of ...

So far no news from the family. I'm still not certain if my husband is going
to try to go see his sister one more time. Why bother? I don't think she
knows anyone - pain meds or disease? It's not a stressful situation for me
but I know it's effecting my husband. Just not knowing ...

Has anyone heard from Nicole?
Just concerned,
Paulette

     Group:
     This is an article I retrieved from the Comcast news site a few hours
ago. Someone was asking ablut Cellcept in the past few days. Anyone know
anything else about this?

My husband's little sister is dying of cancer. She's fought bravely. She was
Dx'ed the end of January and given maybe two months to live. She's made it
this far. The word tonight is not good and we expect her death to be in the
next few days. This is a Catholic family whom I think ...

I have had trouble viewing the board and posts? Anyone know why this is?

Just a thought for the family.
The sun has a big solar flare to hit our round ball today around 3pm central
time.
It is positive neurons that can wipe out cells and possible hydro .

ENT ran some blood tests for allergies.  I know I have them hence the zyrtec
and flonase.  Anyway, preliminary panel showed on a scale of 1-5, a type of
mold @ 4 and ragweed @3.  They are doing the rest of the panel and I will
know everything on the 22nd.

does anyone have any tips on coping with travel while trying to avoid
flares? ie: photosensitivity and airport lighting? noise sensitivity and
airport noise? etc..... tia
Leslie

Please remember to send prayers for the next week for hubby.
thanks, will keep you all posted.
hugs
janers

Dang, no more ultracet for me.  :(  It was working too.  But the
dizziness and rash means no more for me.  I hope there's another med out
there that works as well that my doc will feel comfortable prescribing
for me.  (I'm a bit out of it, so sorry if I'm not making sense.)