I am 21 years old and was diagnosed as having lupus when i was 15 years old.
Ever since I was diagnosed I have been on plaqneil and 10-20 mg predisone.
I have also tried  immuno suppressives like azathoprine.  I am currently on
methotrexate which has done nothing much to improve me. ...

For those of you that ask for the free newsletter, it went to print today
and will be mailed out, hopefully, to all by end of week.
If anyone else wants one, please email me your address. We will be having it
available on our website, hopefully, in a few months.

Here is a little story, of what Pigmet has been up to lately,
For those of you who are his friends
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[I had given Pigmet a red-and-white checkered dinner napkin as a gift when

Hi Janers,
It's me again. Did you ever hear back from Cindy W? I really am worried
about that gal. How are you?
BJ-Sk. Canada

Hi Michael,
I hope you see this and check in. I know you were in the midst of some big
changes, so you have been busy. I would like to know how things are going
for you these days.

I have a fibro cystic breast and had a biopsy done many years ago. Is or can
it be linked with lupus or a thyroid problem? If so how come my doctor did
not look out for me then? Or tell me the relationship? Right now even though
I have pulled myself off of caffeine for which it ...

Hi:  I have a question of the plaquenil users.  Has anyone noticed a
difference between the actual plaq and the substitute ( I forgot the
word) Hydrochlorquine.  I am finally on 200 mg a day and for a while
it was excellent but now symtoms seem to be breaking through.  How

I have tried searching google without any luck, so I am coming out of lurk
mode for a wee bit.
My name is Debbie and I am 42 years old.
My first knee operation was 20+ years ago to remove torn cartilage.

Hi folks. I have just finished talking to a friend who is at the end of her
rope.
I'm not an expert on lupus but here's what I've gathered from our
conversations.

Has anyone experieneced severe itching from Ultram, that was not an
allergic reaction?
Gretchen

Hi JR :)))
Wow that is hot. I have never been in temp like that. Is it dry or high
humidity?
It is 72* with nice breeze and sun , what I call perfect for me bod  , no

Well yesterday was not a good day especially after I got chewed out at work
but anyway. I have not heard from my ultra-sound on my Thyroid yet. Was
wondering if my thyroid problem could have had something to do with some
damage done to my Sciatic nerve in my left leg. It is better ...

This is my first post here. I hope you can help me.
I recently went to my doctor and he said my Thyroid looked swollen and he
did a blood test and it came back saying that my Thyroid was producing too
much. Today I had an ultra-sound on my Thyroid. Will have results from that

Does anyone else get bad digestive problems?  I don't know if this is
related to lupus or not, but the cramping is getting to be too much for me.
Going to doctor tomorrow, but wanted to see if anyone else has found
anything that works if they have they have these problems.

Hi Janers,
How are you doing these days? You haven't said much lately. Wondered if you
ever heard from Cindy W. She was not good the last time she sent me a
message. That was a long while ago now. I haven't had a reply from her