I have just subscribed to this group and was reading about "living the
seizures". My seven yr old daughter has multiple seizures daily. Medications
have not helped her in any way, except give her horrific side effects. The
worst type of seizure she goes through is when her body ...

Has anyone else had 'difficulty' obtaining tegretol xr 200's or 400's?
Our pharmacy never had enough 200's to fill the monthly script.  The
pharmacist said it was the manufacturer's fault.  He said there was no such
problem with the 400's.

Depuis 99 aucune crise, j'ai m?me baiss?
mon traitement de moi-m?me
sophie

I am a wife, a mother, a college graduate, a good friend, an asset to my
community, and I have had a seizure disorder for most of my fifty years. I
NEVER hesitate to tell someone I have epilepsy or that I am an epileptic. I
don't give a crap what anyone else thinks about it, it's my ...

 Has any one out there had experience with a child having a VNS implant?
Living in a small country, they don't have the implant available here, so we
don't have much to go on? Any information would be appreciated. Thankyou.
Kerrie.

hi group. i've had 4 grand mals over the last
13 days including 2 wednesday. neurologist
typed up the report from my eeg that had my
seizure activity within it and sent it down state

Howdy!
I'm gonna' have my VNS turned on (again) this Wed.
The real implications, music wise, didn't hit me until I was sitting in
church today listening to the choir (we have an outstanding one!)

I had a pretty nasty seizure in work last Tuesday (I work as a violinist in
a professional symphony orchestra) and was taken into hospital where I
stayed for a few days as the seizure was followed by another 4 in as many
hours.

My mother has had seizures her whole life. Her neurologists just took her
off tegratol and switched to carbatrol. I was just wondering if anyone else
knows anything about this medication and its success rate compared to
tegratol.

Does anyone know about having seizures because of a food allergy?
Kris

---------10/3/2003
Dave,
they are not lying for the hell of it, it is only that we cannot imagine what
they have been through.

Hi list,
Is there anyone out there who knows how it is to be half consicous, walk around
doing chores and things???, AND sleeping??
Who has experienced this?

Hi Dave,  bit lengthy what's coming, here is the two posts I found in May 2000
in alt.support.epilepsy, but the authors are no longer there, so I could talk
to them. There was another post in yet another group: same trouble, and no
longer posting. And I from personal conversations ...

Howdy people,
Looks like I missed yet another "I AM NOT AN EPILEPTIC, I AM A PERSON
WITH EPILEPSY" debate.  Gee, what a shame.  <g>
Anyway, my life blows even more than usual but I received a slap in the

I am a 44 y/o male, anglo-Cherokee mix.. I have, recently, experienced
serval tonic-clonics, according to my sisters, lasting only about
thirty seconds..
I have had partial seizures most of myu adult life and I can't