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Re: Is what I'm experiencing an Ocular Migraine - I'm quite worried!
| Maestro77 | 24 Jan 2007 14:05 |
Hello Dom,
Thanks a ton for your response, particularly as you're an optometrist.
Fear of retinal detachment is what took me to the ER the night I finally decided to seek medical attention. Three different doctors have now dilated my eyes (plus an orbit ultrasound) and so retinal detachement definitely doesn't seem the diagnosis.
Didn't have any computerized visual field test - but since I've now been referred beyond just the 'eye realm' to a full neurologist, I guess it's too late to follow that avenue.
My BP has been measured a couple of times at these doctors and has been normal if perhaps a touch high (I was obviously nervous). Had a cholesterol baseline test done perhaps 5-6 years ago - was a little bit high but not so much that the doc was particularly concerned. Standard advise of eating well and exercise. I'm 6 foot and about 175 lbs, so am rather on the slim side although with a slight pot belly these days. ;-) I've two small children, so don't get as much exercise as I used to (used to play softball and volleyball regularly) but now am reduced to only playing soccer once a week in the summer.
Interesting that you agree this doesn't seem to fit the classic ocular migraine description. From what I've read on the internet, I think a LOT of my symptoms fit - but the strangest aspect seems to be the strong (but not absolute) correlation to bending over being an initiator.
I was really hoping to find someone with a similar story.
Thanks VERY much for your input. Cheers.
>The first thing I would do (as an optometrist) is make sure it's not >some type of retinal detachment. I don't think it is, but that's the [quoted text clipped - 74 lines] >> maes_REMOVE-THIS_tro77@rogers.com >> Obviously remove the portion so the name reads maestro77. |
| Dom | 24 Jan 2007 08:54 |
The first thing I would do (as an optometrist) is make sure it's not some type of retinal detachment. I don't think it is, but that's the first thing I would want to exclude. So assuming your retina looks OK the next thing I would check is a computerised visual field test which can often shed light on unusual conditions affecting the optic nerve. If this also shows up as being OK then I'd probably be stumped too, and I'd refer you to a neurologist - which has already been done.
It certainly doesn't sound like a typical or classic ocular migraine, but still it does sound likes something to do with the blood supply to the head/brain/optic nerve/retina. You say you're healthy, does this mean your BP, cholesterol and weight are normal and you take regular exercise?
Dom
> Hello all, > [quoted text clipped - 58 lines] > maes_REMOVE-THIS_tro77@rogers.com > Obviously remove the portion so the name reads maestro77. |
| Maestro77 | 23 Jan 2007 21:31 |
Hello all,
I'm experiencing some frightening symptons. Went to the ER one night - they referred me to an opthamologist who was stumped - and he referred me to a specialist neural opthamologist who was stumped - and he has now referred me to a neurologist at the Stroke Prevention Clinic. I'm currently awaiting that appointment.
There are quite a few details, but I'll present the typical episode I experience.
I have never been an experiencer of migraines. Out of the blue I'll now occasionally bend over to pick something up, and I'll feel a bit of a head rush sensation. I'll feel pressure in my eyes and get sort of star bursts in my left eye (always the left) Within a few moments, my vision in that eye will go completely grey (as though looking through a curtain - totally blind except for perhaps a brighter area if I look directly at a strong light source. Within 5-15 minutes, vision slowly returns. Initially in patchy grey scale, and eventually colours come back and all is totally normal. No pain through any of this. Left with a feeling of pressume in the eye that goes away in an hour or two.
There are a few variations. Sometimes I have a mild and pressure-like headache after. A couple of times an episode has been initiated by adrenaline rush when I suddenly worry about something. A few times I've been able to straighten up or calm down quickly, and the event doesn't progress beyond just the star bursts for a few minutes. If I'm helping the kids and bent over a lot....sometimes I can feel a bit of a ache developing in my head such that I feel I might have an episode.....and then if I've not stopped bending over, boom....I'll go blind a few bend overs later.
Used to happen perhaps once a month beginning maybe 8 months ago. Now I'm having some sort of event at least every 2 weeks, and have frequent headaches resistant to Tylenol.
Have had a blood test, a carotid artery ultrasound, and an orbit ultrasound. All normal. Am otherwise healthy and a 39 year old male.
The neural opthamologis said ocular migraines were his most common referral and this wasn't it. Initially he said because 'bending over' didn't make sense as an initiator. But when I had episodes without bending over, he changed to say that an ocular migraine's visual auro wouldn't resolve in <20 minutes - and it can be as short as 5 miinutes for me.
Spontaneously going blind is obviously quite terrifying and I'm very concerned about my health and if all this could be a tumour or lead up to a stroke. Am doing all I can through the health system.....but 3 weeks was the quickest the Stroke Prevention Clinic could schedule me.
I'd REALLY appreciate any input from people if you think this may in fact be an ocular migraine. And IN PARTICLUAR I'd love any comment if people have heard of ocular migraine's being initiated by bending over!!
Thanks so much for any input!
Please reply to the group, or if you like my email address: maes_REMOVE-THIS_tro77@rogers.com Obviously remove the portion so the name reads maestro77.
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