Hello Jan,

Thanks very much for your response.  Please note I'm working my way
through the medical system (current waiting to be seen by the
neurologist), and am just using the internet to try to find
possibilities to discuss with the doctors.  Or locate any similar
symptoms that perhaps have found a dignosis.  Amsurosis Fugax and
Retinal Migraine have given me two other topics to research.

Amaurosis Fugax does not seem to fit my symptoms since it's often
described as  'curtain coming down vertically'.  That's not the nature
of how my blindness begins.  As well, I guess that possibility is why
the neural opthomologist ordered a carotid artery ultrasound which
came back normal.  Still, thanks for the idea and maybe I can raise it
with the neurologist when I see her in 2 weeks.

I suppose Retinal Migraine might fit.  But that might just be a
different name for Ocular Migraine.  The definitions of all these seem
to be very loose.  But again......I suspect if I'd used the term
retinal migraine with my neural opthomologist he'd have similarly said
it doesn't make sense that bending over would be such a significant
initiator of a problem.

Thanks!

Maestro77 schreef:

Maestro,

First of all, Internet isn't the place to diagnose your problem.
It simply is not possible.

Having said so and reading your story you might google on "retinal
migraine" and "amaurosis fugax"

In those cases it is strongly recommended to search for having attacks
of amaurosis fugax especially when your are middle aged and having no
history of migraine before (as your last specialist prescribed)

Maybe this helps a bit,

Jan (normally Dutch spoken)

Hello all,

I'm experiencing some frightening symptons.  Went to the ER one night
- they referred me to an opthamologist who was stumped - and he
referred me to a specialist neural opthamologist who was stumped - and
he has now referred me to a neurologist at the Stroke Prevention
Clinic.  I'm currently awaiting that appointment.

There are quite a few details, but I'll present the typical episode I
experience.

I have never been an experiencer of migraines.  Out of the blue I'll
now  occasionally bend over to pick something up, and I'll feel a bit
of a head rush sensation.  I'll feel pressure in my eyes and get sort
of star bursts in my left eye (always the left)  Within a few moments,
my vision in that eye will go completely grey (as though looking
through a curtain - totally blind except for perhaps a brighter area
if I look directly at a strong light source.  Within 5-15 minutes,
vision slowly returns.  Initially in patchy grey scale, and eventually
colours come back and all is totally normal.  No pain through any of
this.  Left with a feeling of pressume in the eye that goes away in an
hour or two.

There are a few variations.  Sometimes I have a mild and pressure-like
headache after.  A couple of times an episode has been initiated by
adrenaline rush when I suddenly worry about something.  A few times
I've been able to straighten up or calm down quickly, and the event
doesn't progress beyond just the star bursts for a few minutes.  If
I'm helping the kids and bent over a lot....sometimes I can feel a bit
of a ache developing in my head such that I feel I might have an
episode.....and then if I've not stopped bending over, boom....I'll go
blind a few bend overs later.

Used to happen perhaps once a month beginning maybe 8 months ago.  Now
I'm having some sort of event at least every 2 weeks, and have
frequent headaches resistant to Tylenol.

Have had a blood test, a carotid artery ultrasound, and an orbit
ultrasound.  All normal.  Am otherwise healthy and a 39 year old male.

The neural opthamologis said ocular migraines were his most common
referral and this wasn't it.  Initially he said because 'bending over'
didn't make sense as an initiator.  But when I had episodes without
bending over, he changed to say that an ocular migraine's visual auro
wouldn't resolve in <20 minutes - and it can be as short as 5 miinutes
for me.

Spontaneously going blind is obviously quite terrifying and I'm very
concerned about my health and if all this could be a tumour or lead up
to a stroke.  Am doing all I can through the health system.....but 3
weeks was the quickest the Stroke Prevention Clinic could schedule me.

I'd REALLY appreciate any input from people if you think this may in
fact be an ocular migraine.  And IN PARTICLUAR I'd love any comment if
people have heard of ocular migraine's being initiated by bending
over!!

Thanks so much for any input!

Please reply to the group, or if you like my email address:
maes_REMOVE-THIS_tro77@rogers.com
Obviously remove the portion so the name reads maestro77.