Re: Any bad PVP experiences?
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Re: Any bad PVP experiences?
| Pat C | 24 Sep 2005 20:50 |
I did TUMT ( Thermatrx DOT) June 04 and had catheter for 1 week but unfortunately the result only last for around two months. If I found this news group earlier, I would NOT be talked by my NJ uro Dr. W into TUMT. Fortunately, I found this NG at the end of 04, have follow it ever since. I visited Dr. Te of NY Presbyterian hospital in June 05 and had urodynamics, cystoscopy and ultrasound in following several visits. Then had PVP on 8/17/05. I'm 54 with a 100 g size prostate. I had taked Cardular or Flomax for 6 years and could not pee without them before having PVP. Because of my big size prostate with median lobe protrusion, I stayed one night at the hospital with a catheter. They removed the catheter at 6:30 am the next morning and after I peed successfully twice by myself at a suprise big flow I walked out the NYP at 11:30. Now my peak flow is 35ml/s vs. <5 ml/s and become a happy camper. Go for a experienced PVP uro to see if PVP fit you. Many thanks to those pioneers, Patrick, Al, Dave C, forlorn hope, Mr. B, nambucca, Richard F Somer, Robo, Spread deMocracy, ... in this NG
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| Rich256 | 22 Sep 2005 14:48 |
Thanks for the information. I expect my bladder could be a significant problem now too. I am 75. However, I have not had bph problems for a long time. Since I am in relatively good health I wanted to get treatment now.
And I would expect that it would take a while for even PVP to heal. After all the urethra experiences one hell of a sunburn.
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| Dave C | 22 Sep 2005 14:10 |
Rich,
I have had general anesthesia three times prior to pvp, twice as a child for tonsils and adenoids and once as a young adult, 21, each time in the UK with no bad results. The pvp was done in North Carolina, USA. I am now 53.
Regarding pvp, from my understanding, a less than satisfactory outcome can result from two separate issues, one, the bladder and two, the prostate.
If a person has had bph for a long time the bladder muscle can be damaged from long term straining against the blockage. The bladder muscle thickens and the bladder becomes less elastic and eventually the muscle just gives up. In this situation a pvp, or for that matter, turp, tuna, tuip, tumt etc, will remove the blockage but the bladder no longer has the power to empty itself. A uro can determine the condition of the bladder before pvp by various urodynamic tests.
Or the prostate causes the problem after pvp. Several things can happen but I believe they can be corrected. The pvp can cause scar tissue to form that blocks the urethra again. Or part of the prostate collapses into the urethral passage. Or the prostate swells due to the trauma of the procedure and takes a few weeks to go down which is what happened to me.
There may be factors that cannot be anticipated that cause a bad outcome but I have no knowledge of them. Perhaps someone can add to this?
Dave
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| Rich256 | 22 Sep 2005 03:03 |
Thanks to everyone who is responding to my question. It has cleared up a few suspicions.
The bottom line still seems to be that PVP is far superior to TURP.
However, as with any procedure it is not perfect every time or may simply take longer to take effect.
Anesthesia often has adverse effects on patients. Dave C, is this the first time you have had problems with an anesthesia? Have you had been anesthetized many times before? Perhaps that is not as important as they type of anesthesia that they use.
My URO talked me into trying TUMT a few months ago. The results are marginal but the main problem still seems to be having to get up at night. Not much problem during the day. The URO said that sometimes it takes up to a year for full improvement. He has done over 50 PVP and said he has had good success with them too.
Of course the advantage or disadvantage as the case may be, of TUMT is that you do are fully awake for the whole procedure and get full appreciation of the pain involved!! It was only momentary sharp pains and no problem what so ever afterwards. I did wear a catheter for 5 days and got 5 full nights of sleep. No bleeding. Only a couple times did I note the tissue being ejected.
I had endoscopic sinus surgery a few years ago. That was the most uncomfortable recovery I ever went through. I did a lot of searching before selecting a surgeon that I would allow to cut that close to my brain and eyeballs. A tiny slip during that procedure and you can be a vegetable or blind for the rest of your life.
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| Dave C | 21 Sep 2005 23:16 |
Rich,
My experience immediately after my pvp could be considered bad:
The general anasthetic left me in a mentally deranged state for a day. The evening after the pvp I thought that if I allowed myself to fall asleep I would never wake up again so I tried everything not to fall asleep the first night. Funny looking back at it but it certainly upset my wife at the time, not to mention me.
I had to wear a catheter for 7 days because of the degree of bleeding. Also, I did not get the immediate improved flowrate that I had been expecting, so I went though a few weeks not knowing what the final outcome would be.
My nocturia worsened for a few months and I also had "urgency" that would come on at a moment's notice and make me run for the bathroom.
I found I had retrograde ejaculation and diminished sensation of orgasm. Both have now resolved.
However, at two months there was significant improvement and at three months I was overjoyed with the results. Also my nocturia had almost gone and the retro had diminished.
Now at over 5 months it is difficult to remember the slow urination and the dependence on Flomax for almost a decade and the stupid urologists who told me nothing could be done about it and that I would eventually have to catheterise for the rest of my life. Every now and then it hits me (usually when I am peeing effortlessly) how normal everything is now. I cannot remember the last time I woke up during the night to pee.
Even now there seems to be continual improvement of bladder function. After pvp my bladder held 200-250 cc. Now it is 300-350 ccs which is fine with me.
At five months post-op I am a very happy customer. Looking back, I can see that the healing takes time, or at least it did in my case. From reading this forum it seems that some people walk away from the procedure with instant results and rapid healing, but this was not my case. However, in talking with my uro during follow-ups, my case was typical in his opinion.
If you are considering pvp I believe it pays to find an experienced urologist who has performed at least 100 procedures. Then ask him what problems he has encountered in performing this procedure.
All the best, Dave
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| Rich256 | 20 Sep 2005 22:53 |
I have been following this group for quite a while. PVP is continuously praised. I just wonder if anyone has had or has heard of any bad experiences. One post said something to that effect but did not give any details.
Others report good results with TURP but a few have with what might be called horror stories.
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