I am so lucky because my doc will go to the internet to find new things on
lupus, etc. and keep updated.  He will also listen to me even when I say
things like "I found this on the internet and thought maybe....." I think
some docs just want to be the all knowing powerful doctor and when we know
too much it threatens them. As Stephen B. Strum, MD (author and renegade
prostate cancer doctor) says MD does not stand for Medical Deity. He is so
right about that one!
Bev

Zuska,
Oh my dear. What a terrible time you have had. I feel for you and send
lots of hugs and "Positive Thoughts."
I am also on Plaquinal but every time I report something like this to
my Rheumie, he just says, "Oh I wish you women would stay off the
Internet! You talk yourselves into most of these situations!"
I have also been having feeling a progressive weakness in my thigh
muscles. My partner and I like to go for a walk at least once a day but
I have been feeling a lot of pain in my thighs the further I walk.
Then, at night, the pain in my thighs wakes me up. I thought it was
just my Lupus getting worse or the change of climate. (We have have
just moved from Alice Springs in Central Australia, where it is hot or
warm all the time, now we are living in Adelaide where it is winter and
I feel the cold a lot.)
I don't know wether to mention it to my Dr. or just wait and see if it
gets any worse.
Anyway, try to keep your chin up and please let us know how you get on.
Diane