I tend to agree with most everyone that it is your body, your life.  I
sometimes think my research into Lupus causes more stress, but I
believe in being fully prepared.  My Rhumy is not like many I have
heard about here.  He is very concerned for my well being, looks for my
input on medicines I am taking, always answers any questions I have and
Calls me at home / work  inbetween visits to see how I am doing.  If my
doctor showed disrespect for my questions or tryied to imply I was
making my self sick I think I would be talking to the medical review
board.  you are paying your doctor for a service, perhaps you shouls
remind her of that?  Sorry if I sound harsh but you never play around
with your health.

Let's hear it for blame the victim! I agree that there are a lot of
sites that are hogwash, but a blanket statement like that assumes that
we all will fall for any 'snake oil salesman' that comes along.

Back in April, that was what I thought. I even called the
Rheumatologist and asked, "Is this what a flare is?" I never got an
answer. Actually, I would not have been to see the Rheumatologist until
June except for my therapist. When I almost fell in her office, she
asked if I would mind her contacting the Rheumatologist ... I said no
problem. After me trying to get in to see her for three weeks, all of a
sudden I had an appointment the next day!

If I were you, I would without a doubt talk about it with the doctor as
soon as possible! If you are having weakness, pain, and interrupted
sleep, there is no reason to keep that to yourself.

No problem ~ support and information is the name of the game as far as
I am concerned!

Susan aka Zuska

Zuska,
Oh my dear. What a terrible time you have had. I feel for you and send
lots of hugs and "Positive Thoughts."
I am also on Plaquinal but every time I report something like this to
my Rheumie, he just says, "Oh I wish you women would stay off the
Internet! You talk yourselves into most of these situations!"
I have also been having feeling a progressive weakness in my thigh
muscles. My partner and I like to go for a walk at least once a day but
I have been feeling a lot of pain in my thighs the further I walk.
Then, at night, the pain in my thighs wakes me up. I thought it was
just my Lupus getting worse or the change of climate. (We have have
just moved from Alice Springs in Central Australia, where it is hot or
warm all the time, now we are living in Adelaide where it is winter and
I feel the cold a lot.)
I don't know wether to mention it to my Dr. or just wait and see if it
gets any worse.
Anyway, try to keep your chin up and please let us know how you get on.
Diane