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Re: Lyndal's been in hospital
| Shelagh | 25 Jul 2006 15:03 |
Glad to hear a diagnosis on those symptoms as well as some treatment on board for you! you had me worried LPN! That is 'bad' news I know, but at the same time you can be treated and it is manageable yes? and think of the energy you will have lol! I am so glad you finally got into hospital and all, as it is what I was considering re possible CNS/lupus problems as opposed to your TIAs <I knew you had APS and not lupus but your symptoms sounded 'fishy' to me> and, I know you are the doc and all BUT you weren't as worried as I thought you 'should be' over what all you were telling us was going on, and so I figured that maybe the symptoms were maybe just a bit different than your previous ones with your TIAs, and so leading you to believe that they weren't as urgent?? mistakenly!! Anyhow I WAS worried and am so relieved that you are now being treated as my first instinct was to 'y/tell' you to get your butt into the ER ~ NOW!! but somehow I knew it wouldn't change your mind re your priorities... so kept my mouth shut.....stupidly! I really pray that it all stays settled down for you so you can carry on! The best of well wishes your way from me, with hugs, Shelagh http://clik.to/lupus
> Hi gang > Just thought I'd touh base...got homr tonight after 10 days in [quoted text clipped - 12 lines] > Hope you all havent melted in the last week... > Lyndal |
| Lyndal | 25 Jul 2006 09:04 |
Hi gang Just thought I'd touh base...got homr tonight after 10 days in hospital.Although strictly speaking I have been diagnosed with primary antiphospholipid syndrome and not lupus, it is starting to behave more like it. I thought I was having TIAs but ended up in ICU with autoimmune cerebritis / encephalitis. I am already on Imuran and warfarin but over the past few days have had 2,000mg IV methylprednisone so I feel great now!! Extra hiccup, my INR freaked out- peaked at 13.6 - so that has taken time to settle.
Anyway, I'm home today. I have some residual cerebellar damage, we are aiming my INR higher (goal 3.5) and I am on long term steroids (25mg prednisone for the moment). But hey, I'm here to tell the tale!!!
Hope you all havent melted in the last week... Lyndal
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