Re: Lyndal's been in hospital

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Re: Lyndal's been in hospital

Cindy

25 Jul 2006 14:27

Lyndal, Glad that you are here to report to us....Must have been scarey as
Heck...
Sorry you are on such a high dose of Steroids..But the alternative...Well so
goes the EVIL drug...
And you will have all kinds of energy...
Praying that everything gets back into place...And you feel human again...
Hugs Cindy

> Hi gang
> Just thought I'd touh base...got homr tonight after 10 days in
[quoted text clipped - 12 lines]
> Hope you all havent melted in the last week...
> Lyndal

Lyndal

25 Jul 2006 09:04

Hi gang
Just thought I'd touh base...got homr tonight after 10 days in
hospital.Although strictly speaking I have been diagnosed with primary
antiphospholipid syndrome and not lupus, it is starting to behave more like
it. I thought I was having TIAs but ended up in ICU with autoimmune
cerebritis / encephalitis. I am already on Imuran and warfarin but over the
past few days have had 2,000mg IV methylprednisone so I feel great now!!
Extra hiccup, my INR freaked out- peaked at 13.6 - so that has taken time to
settle.

Anyway, I'm home today. I have some residual cerebellar damage, we are
aiming my INR higher (goal 3.5) and I am on long term steroids (25mg
prednisone for the moment). But hey, I'm here to tell the tale!!!

Hope you all havent melted in the last week...
Lyndal

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