Re: Lyndal's been in hospital

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Lyndal's been in hospital

Lyndal

25 Jul 2006 09:04

Hi gang
Just thought I'd touh base...got homr tonight after 10 days in
hospital.Although strictly speaking I have been diagnosed with primary
antiphospholipid syndrome and not lupus, it is starting to behave more like
it. I thought I was having TIAs but ended up in ICU with autoimmune
cerebritis / encephalitis. I am already on Imuran and warfarin but over the
past few days have had 2,000mg IV methylprednisone so I feel great now!!
Extra hiccup, my INR freaked out- peaked at 13.6 - so that has taken time to
settle.

Anyway, I'm home today. I have some residual cerebellar damage, we are
aiming my INR higher (goal 3.5) and I am on long term steroids (25mg
prednisone for the moment). But hey, I'm here to tell the tale!!!

Hope you all havent melted in the last week...
Lyndal

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