I was diagnosed with Lup[us in 1993 I had always been a very active person.. Classical Ballet, Swimming competively, Horse Riding and Yachting.I was a very happy person with loads of self-confidence. In about 1998, I started to get aches and pains in all my joints and muscles along with constant fatigue My husband eventually left me for some one youngerr I started to feels as though I was a hyphchondiac! At last one lady suggested I go to see and Immunoligist and after a few Blood Tests , I found that I had, at last a name to put on why I was feeling likeI was. Mind you, ignorance is bliss. I had no idea what was to come! I have had 4 joint replacements, 2 fused joints and a Laminectimy and Disctectomy.I have lost the vision in my left eye and because it continued to be painful, had to have the whole eye removed and I now wear a Prostheseis. This hasn't done much for my self-esteem which was pretty low anyway. None of my family or friends seem to understand my spcecial needs and, I think, I use the name "lupus" to get of attending vareious functions. I have given them all "pamphlets" to read but they don't seem to be very interested in reading them! I know, quite well, that I sound as though I am whingeing. That is why I thought a support programme like this may be of some help to me. I am not unhappy all the time and it would be quite fun to share the "miseries" of this affliction and to have a laugh about it. After all, there are many times when I think to myself, "This would be funny, if I didn't feel so alone." Surely there are plenty of fellow sufferers out there who would like to share heir problems and, perhaps, a chuckle or two about it all. Hugs for Everyone Concerned Diane rwh81505@bigpond.net.au
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