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Re: Anyone used Rutuxin?
| Beverley | 16 Jul 2006 15:44 |
Hi and welcome to the group. It's been quiet out here for the last couple of weeks but there are some wonderful knowledgeable people who I'm sure will jump in and help. I know there are several folks who live on higher doses of predisone than they want.
BTW, weekends are always quiet out here so hang tight and you'll see some responses.
I'm one of the few who can just eat aspirin like candy when things get to really aching. My doc does not want to put me on anything very strong if I can get by with just aspirin. I've had some lengthy discussions with my doc on the subject and I come away a little frustrated but willing to keep the status quo for as long as possible. I guess that makes me one of the lucky ones when it comes to lupus on a daily basis. Bev
> Has anyone received Rutuxin foe arthritis symptoms? My joint pain had > become very difficult to manage and after the FDA approved the use of [quoted text clipped - 13 lines] > unsuccessful in ever getting off the predisone. Every time we below 6 > mg I experience a full flare - yuck! |
| NorCalLupie | 16 Jul 2006 07:51 |
Has anyone received Rutuxin foe arthritis symptoms? My joint pain had become very difficult to manage and after the FDA approved the use of Rutuxin my Rhuemie started this therapy on me. The joint pain has diminished dramatically but I am concerned about side effects.
About two weeks after the first infusion, I began to experience frequent episodes of dizziness, light-headedness, I feel like I am going to pass out after I stagger. I have been able to just hold on to something until it passes but I am concerned. Any input is appreciated.
I am looking forward learning more from you all. FInding this group on Lupus is new for me. I have been diagnosed for over ten (10) years now and have managed to keep working with the help and cre of my Rhuemie. We have been unsuccessful in ever getting off the predisone. Every time we below 6 mg I experience a full flare - yuck!
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