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Re: Anyone used Rutuxin?

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Re: Anyone used Rutuxin?

Beverley16 Jul 2006 15:44
Hi and welcome to the group. It's been quiet out here for the last couple of
weeks but there are some wonderful knowledgeable people who I'm sure will
jump in and help. I know there are several folks who live on higher doses of
predisone than they want.

BTW, weekends are always quiet out here so hang tight and you'll see some
responses.

I'm one of the few who can just eat aspirin like candy when things get to
really aching. My doc does not want to put me on anything very strong if I
can get by with just aspirin. I've had some lengthy discussions with my doc
on the subject and I come away a little frustrated but willing to keep the
status quo for as long as possible. I guess that makes me one of the lucky
ones when it comes to lupus on a daily basis.
Bev

> Has anyone received Rutuxin foe arthritis symptoms?  My joint pain had
> become very difficult to manage and after the FDA approved the use of
[quoted text clipped - 13 lines]
> unsuccessful in ever getting off the predisone.  Every time we below 6
> mg I experience a full flare - yuck!

NorCalLupie16 Jul 2006 07:51
Has anyone received Rutuxin foe arthritis symptoms?  My joint pain had
become very difficult to manage and after the FDA approved the use of
Rutuxin my Rhuemie started this therapy on me.  The joint pain has
diminished dramatically but I am concerned about side effects.

About two weeks after the first infusion, I began to experience
frequent episodes of dizziness, light-headedness, I feel like I am
going to pass out after I stagger.  I have been able to just hold on to
something until it passes but I am concerned.  Any input is
appreciated.

I am looking forward learning more from you all.  FInding this group on
Lupus is new for me.
I have been diagnosed for over ten (10) years now and have managed to
keep working with the help and cre of my Rhuemie.  We have been
unsuccessful in ever getting off the predisone.  Every time we below 6
mg I experience a full flare - yuck!

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