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Re: Joint pain lupus Dx.

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Re: Joint pain lupus Dx.

Nicole29 Jun 2006 12:30
Hi Kassie
Lupus is so different for each of us.  I was dx'd 10 yrs ago after having my
first child.  I'm 30 now and deal with much more pain now than all those
years before.  I see a family physician who practices pain managment.... I'm
using a long acting opioid and then a short acting for break thru pain.
I've only needed this in the last couple of years... before that, I was able
to get by using Darvocet, high doses of NSAIDs, Ultram, T3's or Vicoden.
Eventually, I was using 12 Norco (10mgs hydrocodone/325mgs apap aka
tylenol)... this is when I progressed to the pure opioid.

I refuse to use steroids for pain control as so many rheumatologists do.
I also take muscle relaxers, an anti-depressant, sleep meds, etc, etc,
etc.... it's a nasty circle.

You need a dr who you can work with and who understands you.  You deserve a
great doctor.
The American Pain Foundation has great information
www.painfoundation.org
They also have a pain notebook which many find extremely beneficial.
http://www.painfoundation.org/page.asp?file=Publications/Target.htm

More APF Publications
http://www.painfoundation.org/page.asp?file=Publications/Index.htm

If you're new to lupus, I can send you some great info that I've collected
over the years.
Take care
Nicole
> Would like to know what others do when they have a Lupus flare up, for
> pain
> and discomfort.  What works and doesn't work?

kassie28 Jun 2006 20:11
Would like to know what others do when they have a Lupus flare up, for pain
and discomfort.  What works and doesn't work?

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