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Re: Joint pain lupus Dx.
| Nicole | 29 Jun 2006 12:30 |
Hi Kassie Lupus is so different for each of us. I was dx'd 10 yrs ago after having my first child. I'm 30 now and deal with much more pain now than all those years before. I see a family physician who practices pain managment.... I'm using a long acting opioid and then a short acting for break thru pain. I've only needed this in the last couple of years... before that, I was able to get by using Darvocet, high doses of NSAIDs, Ultram, T3's or Vicoden. Eventually, I was using 12 Norco (10mgs hydrocodone/325mgs apap aka tylenol)... this is when I progressed to the pure opioid.
I refuse to use steroids for pain control as so many rheumatologists do. I also take muscle relaxers, an anti-depressant, sleep meds, etc, etc, etc.... it's a nasty circle.
You need a dr who you can work with and who understands you. You deserve a great doctor. The American Pain Foundation has great information www.painfoundation.org They also have a pain notebook which many find extremely beneficial. http://www.painfoundation.org/page.asp?file=Publications/Target.htm
More APF Publications http://www.painfoundation.org/page.asp?file=Publications/Index.htm
If you're new to lupus, I can send you some great info that I've collected over the years. Take care Nicole
> Would like to know what others do when they have a Lupus flare up, for > pain > and discomfort. What works and doesn't work? |
| kassie | 28 Jun 2006 20:11 |
Would like to know what others do when they have a Lupus flare up, for pain and discomfort. What works and doesn't work?
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