Wow, Janers & Shelagh...that's just scary!

To be honest, I'm scared to stop AND scared to continue, but I'm going
to stop taking it and just see how I do.  The Imuran should be
sufficient as long as I've been on it.  Do either of you take Tylenol
Arthritis?  I know it's not an NSAID, per se, and too much is bad on
the liver, but a couple a day, 3 or 4 times a week shouldn't be
dangerous, should it?

Thanks and Hugs,
Maggie

Ditto on all that said by janers and her docs.
my cardio also said NO nsaids at all! especially after my incident of chf .... and no, i wasn't on any then thank god!
they are trouble for heart problems of many types and also add to fluid retention just on the side... one more thing to worry about with cardio or renal issues!
I too was told that pred and like steroids <medrol>  are better and to stay with it and to increase it when needed without worrying about it's side effects; they are 'safer' than the nsaids for my health care according to my docs
<my disclosure here is that this is what was recommended for me as a lupus patient, but also is generalized for lupus patients as a group and yes, generalizing nsaids in one group as well>  
is what the cardio said!
Also I was told that provided I get the go ahead again on chloroquin which is like the plaquenil, both are antimalarials and used for joints and skin issues and the fatigue also with lupus patient care,  that they are safer than the NSAIDs as a group as well speaking on a cardio/renal level
.... so there you go...coming from two countries and in different areas geographically speaking and saying the same things....
It is not often you get doctors that much in accordance?!
Wishing you good luck, and try to avoid the nsaids if you can at all!
hugs,
Shelagh
http://clik.to/lupus

Hi Maggie, I was told by my cardiologist that ALL NSAIDS will have a warning
about Problems with heart conditions.
I talked to her about use of NSAIDs since I have irregular heart rhythm and
highpertension and she told me it is BEST NOT to take them with my health
condition and lupus.

I was trying different brands due to my pain level and inflammation and well
she told me right out, if she had to choose the use of ONE drug for me to
take it would be to continue use of MEDROL instead of any NSAID. WHAT??? I
said?   Medrol is terrible side effects let alone give a moon butt and moon
gut!!!  she laughed and said "well you wanted a choice and that is all the
choices I had.

But it  is true.   I had read the alleve was the least likely to cause heart
problems but then IT is still listed as a NSAID and will still cause the
problems.
HOW in "H" are we to decide but to trust our doctors in helping us do this.

I am not on NSAID and gather I never will be again.  Celebrex and Vioxx were
wonder drugs for me and Off went the vioxx and celebrex, neither rheumy or
cardiologist will let me take it again...
So pop the medrol on low and high doses and hope there is a bathing suit
that will fit  this  year and next and next...
Water classes in the future won't need a life jacket, I will have one built
right IN>

have a smiley day.

janers

I take Daypro as my daily NSAID.  I know some may not know of it well
as it's an older drug, but one that works for me.  Does anyone have any
experience with it though?

Vioxx and Celebrex were pulled because of heart problems as I recall.
I tried Vioxx for a few days, and it worked at first, but then I got
worse.  I tend to have problems with Ibuprohen-like drugs.  Well, today
I just happened to glance at my drug info on the Daypro and noticed
that there's a warning about heart conditions on it.  There was never
this warning before, so I wonder if it's now in the same category as
Vioxx and Celebrex.  Furthermore, I wonder what everyone here takes for
their NSAID as I may be looking to switch after reading that.

Maggie