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Re: NSAID's and Heart Problems......

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Re: NSAID's and Heart Problems......

janers26 Jun 2006 16:08
Wicked ain't the word for it.  My goodness I hate to see MY weight in
micrograms.  Shock me for sure and make me wonder if I should get a bigger
urn ready for the road up.

haha.
Honestly I have no clue about UK or USA numbers.  I was joshing you but ya
never know now do we?

janers

Andy25 Jun 2006 16:28
>USA is Spelled different than UK Andy.  Didn't you know that?  That just
>means our letters and numbers are MUCH different hahahahahaha
>
>It ain't odd, it is fact LOL.   AWE comeon now, MORNING JESTing

Well, I wondered if it was something to do with milligrams per average
body weight, but then I decided that was a Wicked Thought.
Signature

Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!


janers25 Jun 2006 13:53
USA is Spelled different than UK Andy.  Didn't you know that?  That just
means our letters and numbers are MUCH different hahahahahaha

It ain't odd, it is fact LOL.   AWE comeon now, MORNING JESTing

heheheh

janers

Andy25 Jun 2006 08:42
>I only take aspirin at 81 mg. daily to prevent clots etc.

Odd... the standard UK dose for that is 75 (and aspirin only comes in 75
and 300 strengths). I wonder why the difference?
Signature

Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!


Shelagh24 Jun 2006 23:51
I only take aspirin at 81 mg. daily to prevent clots etc.
... with antiphospholipid syndrome a part of my 'family genetics', it was recommended,
but that is it for any nsaid at all....
Tylenol messes with my renal 'labs' and can't have that with past renal issues in a big way!
But if you've never had renal probs don't even consider the issue... your doc will advise you the best!

But, don't be scared Maggie.. just move on and do what you can with what the doc says!
I do also take pred daily 5mg and more when necessary, also decadron <steroid too> when necessary for the bigger problems and I have a pain med. specialist who set me up with a program that works for me using the ms contin and break throughs and it too keeps me living a quality lifestyle..... but I can't wait to be able to restart the antimalarial med.... it really helped my joints which are a big problem for me now that I was forced off it temporarily... funny how you find out how much good the stuff does you when you have to stop taking it!
I wasn't sure it was doing a lot till I had to stop and now I want back on so bad!!!... praying for a good field vision test:  no more ongoing damage and if possible <though unlikely> a reverse in the damage done would be really great!!
good luck to you!
hugs,
Shelagh

> Wow, Janers & Shelagh...that's just scary!
>
[quoted text clipped - 7 lines]
> Thanks and Hugs,
> Maggie

Maggie24 Jun 2006 18:16
Wow, Janers & Shelagh...that's just scary!

To be honest, I'm scared to stop AND scared to continue, but I'm going
to stop taking it and just see how I do.  The Imuran should be
sufficient as long as I've been on it.  Do either of you take Tylenol
Arthritis?  I know it's not an NSAID, per se, and too much is bad on
the liver, but a couple a day, 3 or 4 times a week shouldn't be
dangerous, should it?

Thanks and Hugs,
Maggie

Shelagh24 Jun 2006 17:15
Ditto on all that said by janers and her docs.
my cardio also said NO nsaids at all! especially after my incident of chf .... and no, i wasn't on any then thank god!
they are trouble for heart problems of many types and also add to fluid retention just on the side... one more thing to worry about with cardio or renal issues!
I too was told that pred and like steroids <medrol>  are better and to stay with it and to increase it when needed without worrying about it's side effects; they are 'safer' than the nsaids for my health care according to my docs
<my disclosure here is that this is what was recommended for me as a lupus patient, but also is generalized for lupus patients as a group and yes, generalizing nsaids in one group as well>  
is what the cardio said!
Also I was told that provided I get the go ahead again on chloroquin which is like the plaquenil, both are antimalarials and used for joints and skin issues and the fatigue also with lupus patient care,  that they are safer than the NSAIDs as a group as well speaking on a cardio/renal level
.... so there you go...coming from two countries and in different areas geographically speaking and saying the same things....
It is not often you get doctors that much in accordance?!
Wishing you good luck, and try to avoid the nsaids if you can at all!
hugs,
Shelagh
http://clik.to/lupus

> Hi Maggie, I was told by my cardiologist that ALL NSAIDS will have a warning
> about Problems with heart conditions.
[quoted text clipped - 25 lines]
>
> janers

janers24 Jun 2006 13:37
Hi Maggie, I was told by my cardiologist that ALL NSAIDS will have a warning
about Problems with heart conditions.
I talked to her about use of NSAIDs since I have irregular heart rhythm and
highpertension and she told me it is BEST NOT to take them with my health
condition and lupus.

I was trying different brands due to my pain level and inflammation and well
she told me right out, if she had to choose the use of ONE drug for me to
take it would be to continue use of MEDROL instead of any NSAID. WHAT??? I
said?   Medrol is terrible side effects let alone give a moon butt and moon
gut!!!  she laughed and said "well you wanted a choice and that is all the
choices I had.

But it  is true.   I had read the alleve was the least likely to cause heart
problems but then IT is still listed as a NSAID and will still cause the
problems.
HOW in "H" are we to decide but to trust our doctors in helping us do this.

I am not on NSAID and gather I never will be again.  Celebrex and Vioxx were
wonder drugs for me and Off went the vioxx and celebrex, neither rheumy or
cardiologist will let me take it again...
So pop the medrol on low and high doses and hope there is a bathing suit
that will fit  this  year and next and next...
Water classes in the future won't need a life jacket, I will have one built
right IN>

have a smiley day.

janers

Maggie24 Jun 2006 05:37
I take Daypro as my daily NSAID.  I know some may not know of it well
as it's an older drug, but one that works for me.  Does anyone have any
experience with it though?

Vioxx and Celebrex were pulled because of heart problems as I recall.
I tried Vioxx for a few days, and it worked at first, but then I got
worse.  I tend to have problems with Ibuprohen-like drugs.  Well, today
I just happened to glance at my drug info on the Daypro and noticed
that there's a warning about heart conditions on it.  There was never
this warning before, so I wonder if it's now in the same category as
Vioxx and Celebrex.  Furthermore, I wonder what everyone here takes for
their NSAID as I may be looking to switch after reading that.

Maggie

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