[]

It's probably similar to the UK system, in that on those forms you must
say how bad you are when you're bad, not how good on a good day. Paint
it black; it's their job to whiten it.

Hi Linda

If you worked under SS then you accumulate points and with that they
determine HOW much if any you get on SSD.

To begin, you need to contact you SS office near you or go on line. I
suggest you contact the local. Works a little easier.
They will either set up an appointment with you or want to interview you one
the phone sometimes.

once you find you quality for SSD and have enough points or credit, don't
know what they call it now a days LOL.
But they will tell you there are forms to fill out.  All your meds and
Have handy a LIST of doctors you have seen and are seeing, that is everyone
you can remember.  make that list.  Also make that list of hospitalizations,
and office visits and xrays, tests and what not.   They will need all the
informattion you can give them. I mean a lot of it.
IF you go to the office, you will be asked to fill them papers out and You
write all you can think of.
Then they ask you what you did for a living before you became disabled and
why you can not function.  THis is a must on how you word it and what you
put down now, remember that.  More the better they told me.  even if you
fill out some back pages on what you write.

Some questions may seem easy  and stupid but they mean a lot.   Again the
more you write is good.

Even though you are not seeing a doc now, write the last one you saw and
why. If you can remember diagnosis that is good too.   IF not call them docs
and get it from them....

Most of the time a case worker will help you on this, so that helps.

They will tell you that you need to put down a date that you became disabled
and you said 6 yrs??  so write that.

Talk talk talk to them.  IF you do  not get SSD on the first try, try again.
If you are not on meds for lupus, what are you doing?  Are you not seeing a
doc due to insurance??
hope this helps some

good luck, let us know
janers

Linda,
I'm not sure how the SSI works and their are several who will reply soon who
have been there and done that.  I know that when I got around to applying
for social security disability I was told that I no longer had enough
"points" to qualify.  I had stopped working several years before I found the
energy and strength to start the process.  I had worked since I was in High
School with a few years taken off after marriage and coming to CA but
started working again when my son started school.  So had worked most of my
"adult" life.  I didn't look into it any further.

Good luck!!!!

Hugs,
Sherry

Hi Everyone,

I have learned a lot by reading all of your post and it has help me a
great deal.

Does anyone have a site or information on how to go about getting ssi
for lupus?

I have not been able to hold a job in 6 years and I am tried of not
having money to pay for pills and dr...so I am not on pills or going to
see a dr any more. We don't have insurance either.

Can anyone help me on this?

Thank you,
Linda