SSI can notoriously take a very long time (they say 6mo but count on
9ish), so get your paperwork rolling ASAP. If approved they'll back pay
from date of application.

Don't know your geographical situation, but in CA we have county health
care seperate from State and Federal (SSI being federal and Disability
is genereally managed by state). It's set up as a clinic for your
primary but they also contract with specialists like rheumys to take
care of the good stuff like us! They will generally have a dispensery
that can provide medications either free or very low cost.

I know it's not as appealing as your own insurance/docs, but if it gets
you through the application process healthy... Well, good luck. Might
be woth a meander through the Gov. section in the phone book.

Hi Everyone,

I have learned a lot by reading all of your post and it has help me a
great deal.

Does anyone have a site or information on how to go about getting ssi
for lupus?

I have not been able to hold a job in 6 years and I am tried of not
having money to pay for pills and dr...so I am not on pills or going to
see a dr any more. We don't have insurance either.

Can anyone help me on this?

Thank you,
Linda