Re: Cellcept/...
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Re: Cellcept/...
| Wende | 16 Jan 2006 00:23 |
One of my favorite terms is UMCTD with SLE (Systemic Lupus Er) features!(undifferentiated mixed connective tissue disease) and positive ANA with collagen vascular disease. Give me a break. I am waving both hands because I feel like double blah! I have been in bed all day. Wende
> Yeah, mixed connective tissue dissorder, MCTD, is what a lot of folks on > this group have. It means you have symptoms indicative of several [quoted text clipped - 24 lines] >> I feel BLAH raise your hand if you feel BLAH >> Jenn |
| Mary Rawle | 15 Jan 2006 23:35 |
Yeah, mixed connective tissue dissorder, MCTD, is what a lot of folks on this group have. It means you have symptoms indicative of several different disorders. "Connective Tissue Disorder" is an outdated term. It is now called "autoimmune disorder" and so everything is covered under that term. Myself, for example: I have a positive ANA, a negative DNA. I have autoimmune thyroid dissorder (which, by itself would be called Hashimoto's disease), I have Sjogren's Syndrome, which is autoimmunitly to the exocrine glands of the body...such as those that lubricate the eyes, nose, mouth, lungs etc. I have joint and muscle pain and I am sensitive to sunlight. Do I have lupus? Do I have MCTD. As my doctor says "we simply treat the symptoms as they occur."
Wait !Wait! fatigued? did sometone say fatigued? I musta dozed off there. Yeah, I have that in copious quantites...
Is this of help to you? I only wish to help, and to let you know that this happens to other people too.
Mary
Disclaimer: I aint a doctor with a degree, so nothing that I say in my letters should be accounted for as real science. Duh.
> Thank you,Mary... Hey i am bugged because my doctor has told me I test > for mixed connective tissue disorder > what does ne1 know about that... > I feel BLAH raise your hand if you feel BLAH > Jenn |
| Jenn L | 15 Jan 2006 19:20 |
Thank you,Mary... Hey i am bugged because my doctor has told me I test for mixed connective tissue disorder what does ne1 know about that... I feel BLAH raise your hand if you feel BLAH Jenn
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| Mary Rawle | 15 Jan 2006 19:09 |
>I have improvment with cellcept <yea!> > I know that I'm still fairly new to this group > and wish all well .....Please respond if you have discoid. ..kinda need > a sounding board ....the real me does this ...,dot,... thing so bear > with me ((squeezez)) HI Jenn, and welcome to our group. Feel free to "dot" all you want. I am a major "dotter," and I have been here for... has it been a century yet?
I do not have discoid lupus, but I have suffered with Systemic Lupus since I was in my teens, which means almost thirty years ago. I have never had a real remission... only good control by using lots of medications. Even under control, I tire easily, and if I push it, I am a wreck the following few days. I have to listen to my body... but of course sometimes I don't because I really want to do something and am willing to suffer the consequences.
Does any of this sound like you?
This newsgroup is a very friendly group of people. I hope that you will continue to come here and share. I am glad you are feeling some improvement with the Cellcept, and hopefully one of our friends here can be a better "sounding board" than I am.
But I just wanted to say "welcome"
Mary
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| Jenn L | 15 Jan 2006 17:56 |
I have improvment with cellcept <yea!> I know that I'm still fairly new to this group and wish all well .....Please respond if you have discoid. ..kinda need a sounding board ....the real me does this ...,dot,... thing so bear with me ((squeezez))
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