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Re: "dry eyes it is" sjogrens
| Andy | 28 Dec 2005 21:24 |
>Well tis the season to be "jolly"? > [quoted text clipped - 3 lines] >Make a long story short, it is the lupus, sjogren's he says is JUST a fancy >word for "dry eyes" Um... those with the other manifestations might have a different opinion. Like dry mouth, dry nose, dry - well, never mind but there too... like trying to talk or eat when you have no saliva because the glands have ceased working...
> LOL. So that is what it is. Pain is from the eyeball >not being able to make the tears and drying. I am now on natural tears >hourly. Watch out for an uncommon reaction to the preservative in "normal" artificial tears. If you get it you may have to switch to un-preserved tears: these come in individual-dose vials and are expensive.
 Signature Andy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more!
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| janers | 22 Dec 2005 21:11 |
Well tis the season to be "jolly"?
I had to see that opthamologist and he did check my eyes and believe me the pain had not let up. Did the Schirmer's test, the one for "dry eyes" . almost had to peel that sucker out of my eyes. Ever have one done? Make a long story short, it is the lupus, sjogren's he says is JUST a fancy word for "dry eyes" LOL. So that is what it is. Pain is from the eyeball not being able to make the tears and drying. I am now on natural tears hourly. Then a cortisone drop for inflammation for 2 weeks, and ointment at night, PLUS the new drug restasis twice a day. I told him well looks like I know what I will be doing the rest of my life, dropping drops in my eyes. He didn't think that was funny LOL. But I have to go this route and it is not a good route because this apparantly can get worse. LIKE it is getting.
SO I was doing the right thing by the natural tears. He did say humidifier at bedtime is a must and I have to use one due to my sinus junk and such. So that was already being done. The restasis takes about 6weeks to be really noticible and see a difference. Right now any eye drop burns but sun glasses help too. Man this is no fun, I can't set here too long either. Let's hope it clears up but he didn't look like he was promising me zip. There ya got it. Another round of something or other and My vision is my life saver, because I am hard of hearing wear aide and need that for lip reading... good thing there is something to try and fix it..
hugs to all and to all a good night.
me again janers
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