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Re: "dry eyes it is" sjogrens

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Re: "dry eyes it is" sjogrens

janers23 Dec 2005 20:18
That will come next I suppose Shelagh.  Seems he was a kinda brush me off
kinda guy. Like "you got lupus" that is why this is happening.  He was nice
enough just kinda blah and I do not like that in a doctor...hurry hurry
type.

I am using the drops and HOPE to figure out what is going to help more and
move on here.  Sunglasses in the house can be a hazzard. I can't tell
colors and had to ask my hubby if the pie crust was done hahaha.  At least
it was but over flowed before I got to it. Makes for a nice oven.  NOW on
with the cheese ball making.

Hope the ingredients get mixed right haha

MErry Christmas, and if you  have info on Sj, send it on to ME will you??
thanks
janers

Shelagh23 Dec 2005 14:33
Anything to do with sjogren's happens to be 'one of my specialties' <lol>;
just ask and I can probably answer but unfortunately there doesn't seem to
be a lot of treatments for 'relief' specifically.
However this one did help significantly! *Have you tried punctal plugs or
looked into them yet?*
And good luck with what you are trying!
Signature

hugs, Shelagh
http://clik.to/lupus

> Well tis the season to be "jolly"?
>
[quoted text clipped - 35 lines]
>
> me again janers

janers22 Dec 2005 21:11
Well tis the season to be "jolly"?

I had to see that opthamologist and he did check my eyes and believe me the
pain had not let up. Did the Schirmer's test, the one for "dry eyes" .
almost had to peel that sucker out of my eyes.  Ever have one done?
Make a long story short, it is the lupus, sjogren's he says is JUST a fancy
word for "dry eyes"  LOL.  So that is what it is.  Pain is from the eyeball
not being able to make the tears and drying.  I am now on natural tears
hourly. Then a cortisone drop for inflammation for 2 weeks, and ointment at
night,  PLUS the new drug restasis twice a day.  I told him well looks like
I know what I will be doing the rest of my life, dropping drops in my eyes.
He didn't think that was funny LOL. But I have to go this route and it is
not a good route because this apparantly can get worse.  LIKE it is
getting.

SO I was doing the right thing by the natural tears.  He did say humidifier
at bedtime is a must and I have to use one due to my sinus junk and such.
So that was already being done.
The restasis takes about 6weeks to be really noticible and see a
difference.
Right now any eye drop burns but sun glasses help too.  Man this is no fun,
I can't set here too long either.  Let's hope it clears up but he didn't
look like he was promising me zip.
There ya got it.  Another round of something or other and My vision is my
life saver, because I am hard of hearing wear aide and need that for lip
reading...
good thing there is something to try and fix it..

hugs to all and to all a good night.

me again janers

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