Hi Ofrix, actually, Peter Schur co-wrote the book 'In Search of the Sun'
with Henrietta Aladjem & her 1st book was 'The Sun is my Enemy' & she
founded the Lupus Foundation. She's an awesome lady. Way back when I was
'trying' to get a dx, Dr. Schur & I corresponded by mail, since I'm in
Akron, OH. I think you've got one of the best docs in the world; tell him
Candi Bowen says hi, if he remembers me. I wrote a few articles for
Henrietta's newsletter that she published, with me on my horse. My doc at
University Hosp in Cleveland, Ali Askari, says my animals have probably kept
me alive, even tho they're tons of work! But I love them. I was also dx'd at
30 & am now 49 & since I've hit menopause have been doing much better,
except for joint pain. I can live with that. Hope you feel better too.
Candi

Dear John,,

I have been diagnosed about a year ago, its tough! (30 y.o female)

Just finished reading the best Lupus book I read so far, it is written
by my doctor.

"In search of the Sun" by Peter Schur. easy to get on amazon.

Lots of love,
Ofrix

Hi,

I've recently started dating a wonderful woman who has lupus.  I don't know
much, so I'm turning to you folks to guide me to good information (web
sites, but especially books) that will help me understand her condition and
how to support her.

I hope you can help!  :-)

-- John