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Re: 2nd Treatment: Daily Infragen and 2x Ribaviren - Have I company?

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Re: 2nd Treatment: Daily Infragen and 2x Ribaviren - Have I company?

Dwight26 Jul 2006 17:10
> Hal,
>
[quoted text clipped - 45 lines]
> Janet in too-dry dallas
> janet dot crenshaw at gmail dot com

Good story about the ice cream. Sorry to hear about the cancer, but glad
you got rid of the hep first. BTW, good to hear from someone else
locally. I live just south of Ft. Worth, and yes, it is way too dry.

Dwight

janet.crenshaw@gmail.com26 Jul 2006 13:25
Hal,

I also got the infamous letter from a blood bank:  in my case, it was
in 1990 (I think) just after I donated blood after my father's death to
help replace blood he had used.

At that time, I went to my doctor and she had NO idea what "Hepatitis
C" was.  She had to call a lab just to find out what had to be done to
test for it.  I was told to not worry about it unless I had high liver
enzyme tests.

Now fast forward to 1997 and I had a physical with alt/ast very high.
Got a referral to a gastro dr who was very good, had a biopsy
(fibrosis), and went through 5 months of interferon (Intron/A).  No
response.  4 months of Infergen - No reasponse.  So decided to wait
until better treatments were available.

2 years after first biopsy I had to make a major pension decision, so
asked my dr to do a second biopsy to help me with my decision.  We both
didn't expect to see a change, and if it wasn't progressing very fast,
that would be something to consider for my decision.  But, the doctor
phoned me at home (always a bad sign) and now I have extensive
bridging....  it's time to try another treatment.

The riba/interferon combon has just been approved, so decided to try
that.  Shots every other day and lots of pills.  I responded
slowly...each month (well mostly) was better than the last.  And at 10
months, I finally started getting normal liver enzymes.

I've now been clear of hepc for 5 years.    My lesson here is: 1. don't
panic.  2. Don't give up (*smile*).

I'm trying to remember this myself now as I was just diagnosed with
(unrelated to the hepc) breast cancer.  Guess if it isn't one thing,
it's another (*grin*).

FYI: I worked full time all through treatment (although my mind was
tapioca at times).  I used fudgsicles to combat nausea, slept a lot,
and I set up an "ice cream jar" in the kitchen for when I got cranky.
If anyone in the family thought I was getting very cranky and unfair,
they would take money from the jar and buy each of us an ice cream.  It
was a great way to say 'calm down' via a signal instead of starting an
argument.  And when one daughter came in with an entire quart of ice
cream, I asked her if I was being that bad.  She solemnly nodded and I
just burst out laughing.  You can't be cranky and laugh!!!!!

All the best with your next try,
Janet in too-dry dallas
janet dot crenshaw at gmail dot com

Harald Sundt23 Jul 2006 04:25
2nd Treatment: Daily Infragen and 2x Ribaviren - Have I company?

I have Hep-C Gynotype 1 a.

After the 9/11 Blood Drive I donated blood and then got a yellow
postcard in the mail from the Red Cross saying I have a potentially
fatal blood disease...please don't donate again.

[[[[[ scream. cough,... oh holy shiiiiiiiiiiiiiiiiiiiiiit! ]]]]]

I did 11 months of weekly Interferon and 2x Ribaviren.
It was an early "sole therapy" now have a 2nd incarnation in dual
therapy with strong results.
I was ZERO detectable virus from the first month's bloodwork until
month 10 week 2.

Shucks.

Ending January 15th, 2006, I did 11 months of Daily Infragen and 2x Ribaviren.
I was ZERO detectable virus until 2nd Post Treatment Blood Work ( 6
months after ending treatment. - I was still ZERO detectable at  6
months after ending treatment.).

Has anyone else gone this road I just went? What was your experience?

Is there any serious tx after what I have done?

I'll compare and contrast my experiences on this board if anyone is interested.

Thanks

Hal - Cottage Grove

ps (I know my spelling is bad)

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