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Re: Change in symptoms

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Change in symptoms

Jerith09 Jun 2009 15:45
This is a general question to anyone whom may check this group.

So I was diagnosed that I have partial complex seizures. Lamotringine
(Lamictal) is doing the trick quite well now for the past 1.5 years. Took
them 6 months to nail down the exact dosage after I flipped from Dilantin.
This is all after them realizing what I had, but only after they tried me on
Ativan and Paxil, thinking I had depression. The Paxil triggered a full
seizure and then they clued in. I just didn't have the vocabulary to explain
my symptoms. So, there goes my drivers license for 1 year. Which was not
that bad. Got me out of a ton of work at home, and my job.

But anyways, I've been a pot supporter until I was 27, then a pot smoker
finally. Having that distinction gave weight to my pro stance on the issue.
So, my symptoms didn't show up until I was about 33, which is commonly when
most cases of complex partial seizures show up in men. Who knows when I got
that bang to the head or whatever.

We found that I had to start out with a dosage higher than the norm. Until
we worked our way up to my dosage, I was only having seizures at work, and
only ever once at home. Because, I would smoke some pot a little bit after I
got home, before dinner. We kept at the high dosage but I was afraid about
the possible effects it would have on my liver, as is noted as a side
effect. We lowered my dosage and still kept seizure free. Until I was unable
to get my regular supply of pot. I began getting some hints of possible
seizures. An aura if you will, but with no follow up of a seizure. It seems
as if the marijuana supplements the medication. I like this because its like
a sure-fire way to make sure of no seizures for a good 12 to 14 hours, way
after I lose my high (3-4 hours).

Of course I don't smoke before work as that would impair my reactions and
fine motor skills needed for the occasional heavy equipment I operate. I
also take my medication twice daily so its always at a even level. But the
fact remains that at work, I'd have a seizure. But never at home. For more
than one year.

So who else has similar experiences like this? I know I'm not alone as
medical marijuana gives positive effects for the poor people who have the
grand mals. I totally sympathise with them, but know that doesn't come near
enough to whose who live with it.

I'm absolutely terrified of telling my doctor of my usage because of the
possible fallout afterwards. So thats why I'm soliciting some information
from anyone on here. Some real personal experiences would help me find out
how to help me cope but not abuse it.

Thank you for any responses.

Jerith

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