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Re: chronic parcarditis.. Whats the future hold?
| Andrew B. Chung, MD/PhD | 25 Jul 2006 15:30 |
> Yea, they sent me to a rheumatologist. > Hes the one that said that there was no cause for it other then my own [quoted text clipped - 3 lines] > The thought of being on prednisone indeffinetly is just as bad as the > pericarditis. Would suggest you ask your rheumatologist about trying Limbrel for your condition. Limbrel is FDA-approved for use as an anti-inflammatory for osteoarthritis so using it for what you have would be off-label.
Prayerfully in Christ's amazing love,
Andrew B. Chung Cardiologist, Atlanta, Georgia, USA http://HeartMDPhD.com/HolySpirit
Message for the wolves in sheepskin:
http://groups.google.com/group/sci.med.cardiology/msg/4f43855be1cfa795?
or http://tinyurl.com/gextq
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| halbowitz@gmail.com | 25 Jul 2006 14:16 |
Yea, they sent me to a rheumatologist. Hes the one that said that there was no cause for it other then my own immune system attacking me. He also checked me out for Lupas and that came back negative.
The thought of being on prednisone indeffinetly is just as bad as the pericarditis.
> Pericarditis is often a symtom of various auto-immune conditions such as > lupus, vasculitis or Churg-Strauss syndrome. Has your doctor ruled out such [quoted text clipped - 3 lines] > > Robert |
| bob@nospam.com | 25 Jul 2006 03:43 |
Pericarditis is often a symtom of various auto-immune conditions such as lupus, vasculitis or Churg-Strauss syndrome. Has your doctor ruled out such conditions? They tend to be chronic conditions, I'm sorry to say, although some people do get put into remission without the need for ongoing prednisone treatment.
Robert
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| halbowitz@gmail.com | 24 Jul 2006 21:46 |
Hello all...
in a nutshell ive been diagnosed with chronic parcarditis.. I forget the technical term my doc gave but basically my own immune system is attacking my pericardium.
Ive just got some basic questions.. ok, maybe not that basic but still questions ;)
They have me on Prednisone starting at 60mg a day. I tried to ween myself off of them but when i got down to about 10mg my chest felt brusied so they put me back up to 60. Im on 40mg a day now as well as a dose of colchicine.
They are trying to ween me off again. I dont think its going to work though as i still feel as though my chest is bruised so im figuring when i get down to 20mg or so of Prednisone the paricarditis will return.. then what? And thats where my questions come in.
With someone with my afflication.. does there sometimes come a day when the immune system just stops attacking? Even for a little while?
Is there other meds other the Prednisone that i can ask my doctor about? This stuff is horrible.
I think my doctor has been pretty thourough looking for the cause, as well as other doctors, with no luck. Has anyone had what i had and actually found the cause?
Anyhow.. any answers to those questions and ANY info you can give me regarding this in general would be much appreciated.
I have read other posts and have learned alot but you never know what people havnet posted and thats why im asking these questions today.
Thanks for your time.
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