Thank you for your informative response. As you might guess I am
confused and frustrated.
My symptoms are not really those of Fuch's and mostly not cataracts.
Question, if it were the cataracts would the polyopia come and go in
both eyes at the same time? If just an optical problem how does one
eyeball know what the other is doing?
The doctor said to use a 5% salt solution eye drops 4 times a day and
a ointment at night. He says this will slow down the progression of
the process. He said come back in 2 months. Other than the
outrageous price of an ounce of salt water ($20) it seems to be a
reasonable course of action if I really do have Fuch's? The doctor
diagnosed based on microscopic inspection of the cornea and a device
that measures corneal thickness. Is this a definitive diagnose, or is
it very much subject to interpretation?
Ray
>> I went to the eye surgeon. He said my cataracts were very small and
>> not the cause of my problem.
[quoted text clipped - 35 lines]
>
>-MT
> Thank you for your informative response. As you might guess I am
> confused and frustrated.
>
> My symptoms are not really those of Fuch's and mostly not cataracts.
> Question, if it were the cataracts would the polyopia come and go in
> both eyes at the same time?
Depends. Lenticular diplopia, if present in both eyes, could easily vary
with external conditions (background illumination, target
brightness/contrast) but it would be the same each time you reproduce the
conditions.
If there is diurnal variation, like it's worst in the morning, then
lenticular problems don't do that. A cycle of corneal edema could make
diplopia appear to wax and wane but there'd also be haze.
> If just an optical problem how does one
> eyeball know what the other is doing?
Pupils normally change the same in each eye, and accommodation likewise is
lockstep left/right. Both eyes inhabit the same environment, optically but
both eyes also swell at night.
> The doctor said to use a 5% salt solution eye drops 4 times a day and
> a ointment at night. He says this will slow down the progression of
> the process.
I didn't know it was standard to treat asymptomatic Fuch's so aggressively.
You've had no erosions and no morning haze, right? I'll have to check on
that.
> He said come back in 2 months. Other than the
> outrageous price of an ounce of salt water ($20) it seems to be a
> reasonable course of action if I really do have Fuch's? The doctor
> diagnosed based on microscopic inspection of the cornea and a device
> that measures corneal thickness. Is this a definitive diagnose, or is
> it very much subject to interpretation?
It's hard to miss Fuch's in the microscope, so you can be sure you have some
endothelial changes. But that doesn't guarantee you'll have symptoms.
I'm no expert but it seems you'd have to measure corneal thickness at least
twice to demonstrate edema in Fuch's.
I've always held off using salt solutions and ointments until there was
observable swelling or morning erosions, but I could be a few years behind.
-MT
ray - 30 Apr 2008 18:34 GMT
>> Thank you for your informative response. As you might guess I am
>> confused and frustrated.
[quoted text clipped - 11 lines]
>lenticular problems don't do that. A cycle of corneal edema could make
>diplopia appear to wax and wane but there'd also be haze.
>> If just an optical problem how does one
>> eyeball know what the other is doing?
[quoted text clipped - 10 lines]
>You've had no erosions and no morning haze, right? I'll have to check on
>that.
I tend to only notice changes. I didn't realize how bad my shoulder
felt until I had my torn rotator cuff repaired. I didn't feel all the
problems associated with hypothyroidism until I started thyroid
treatment. So it is difficult for me to judge what is "normal" vision
unless I can compare normal to what I have at present. So I have a
hard time judging morning haze or other subtle symptoms, but no
problem recognizing two images.
The condition comes and goes and will or will not be present under
conditions that I judge to be the same. I have been looking for this.
I have read that Fuch's can cause blisters on the cornea. This would
seem to be consistent with what I am seeing, but I am not sure that
completely explains it happening in both eyes at the same time. When
I have undergone pupil dilation the condition did not appear.
I was not prepared for the diagnoses so I did not have a list of
questions to ask. The doctor's description was the cells on the
endothelial layer were dying and therefore the layer is thinner than
normal and can't pump out excess water from the cornea. He also said
there were "divots", might that be the same as erosion? The doctor
said he sees about one case a month like mine, but it is usually after
cataract surgery. The treatment is supposed to slow the progress of
the condition. It will not cure, reverse or stop it.
>> He said come back in 2 months. Other than the
>> outrageous price of an ounce of salt water ($20) it seems to be a
[quoted text clipped - 11 lines]
>I've always held off using salt solutions and ointments until there was
>observable swelling or morning erosions, but I could be a few years behind.
I go back in 2 months so I will be better prepared to ask questions.
The corneal thickness will be measured again and compared. What are
the downsides to using the salt solutions? Thanks again for your
knowledgeable answers.
>-MT
Mike Tyner - 01 May 2008 16:31 GMT
> unless I can compare normal to what I have at present. So I have a
> hard time judging morning haze or other subtle symptoms, but no
> problem recognizing two images.
I think you would have no trouble noticing AM haze. It's like looking
through dirty cellophane, hard to miss.
> I have read that Fuch's can cause blisters on the cornea. This would
> seem to be consistent with what I am seeing, but I am not sure that
> completely explains it happening in both eyes at the same time.
Except not many Fuch's patients get to the blister stage, and you couldn't
miss it because it's _painful_ and it's usually preceded by a decade of
other problems.
I don't think you have erosions either. They hurt. They hurt enough to drive
people to the doctor. You haven't described corneal erosions or bullous
keratopathy.
> I was not prepared for the diagnoses so I did not have a list of
> questions to ask. The doctor's description was the cells on the
> endothelial layer were dying and therefore the layer is thinner than
> normal and can't pump out excess water from the cornea.
That's what creates morning haze. Closing the eyes overnight reduces the
oxygen and the endothelial pump slows down.
> He also said
> there were "divots", might that be the same as erosion?
Erosions might look like "divots" but they HURT. You aren't hurting. So your
divots probably aren't erosions.
Normal endo looks like a carpet of hexagonal tiles. "Missing tiles" are the
only finding you've described and I think that's what he meant by divots.
> The doctor
> said he sees about one case a month like mine, but it is usually after
> cataract surgery. The treatment is supposed to slow the progress of
> the condition. It will not cure, reverse or stop it.
I didn't know it would slow the progress. I'll find someone soon to ask.
> I go back in 2 months so I will be better prepared to ask questions.
> The corneal thickness will be measured again and compared. What are
> the downsides to using the salt solutions?
None. Just cost. Don't try to make your own.
-MT
ray - 02 May 2008 02:21 GMT
Mike,
Maybe you could give me your interpretation of the test results.
Guttata grade 3 plus. Corneal pressure 17 right 15 left. Corneal
thickness .630 right .645 left. Corneal cell count not done. Can be
done in Seattle. The vision tends to come and go. When I visited
this doctor my visual acuity was 20/20. A month ago when I was
having moderate doubling it was 20/30. When bad it is somewhat worse
than that. Doctor still maintains that the saline solution will keep
more cells from dying. I wasn't thinking of making my own, just
commenting that $2,500 a gallon seems like a lot for salt water.
So it looks like guttata grade is not so good, cornea are a little
thick, pressure is OK. So what does that really mean?
Thanks
Ray
>> unless I can compare normal to what I have at present. So I have a
>> hard time judging morning haze or other subtle symptoms, but no
[quoted text clipped - 46 lines]
>
>-MT
Mike Tyner - 02 May 2008 21:43 GMT
> So it looks like guttata grade is not so good, cornea are a little
> thick, pressure is OK. So what does that really mean?
It looks like you have early Fuch's, nothing more. It doesn't explain your
monocular diplopia, IMO.
-MT