Medical Forum / General / Vision / March 2005
Restasis Review
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Haubrey - 22 Jul 2003 08:51 GMT There seems to be some interest in personal experiences with the new drug Restasis, so I'll share mine. For about three years, I've been suffering from dry eye and meibomitis (dysfunctional oil glands near the eyelashes). I've had an absolutely miserable time of it. But Restasis has been a huge help.
Here's a bit of pre-Restasis background: For the dry eye, I had punctum plugs inserted in both lower ducts and I used preservative-free drops every hour or so. For the meibomitis, I was given doxycycline (100 mg/day) and I hot-packed my lids several times a day. Even with this treatment combination, I was still suffering from dry eye and visibly inflamed oil glands (they looked like tiny white bumps above the lash line). I also had some general eyelid inflammation due to all of the irritation that both of these conditions cause.
I started on Restasis about 2 months ago, and I am thrilled with the results. The eyelid and oil-gland inflammation has already been noticeably reduced, and my tear production feels much more normal. Every week, my eyes get better. That said, it took several weeks before I noticed _any_ difference. The drops have a gradual effect--I've read that it can take anywhere from 3 to 6 months for the full effect to be felt--so it requires patience and commitment.
I have to use the Restasis drops every morning and night, and they're expensive, but they're very, very worthwhile. The only negative side-effect that I've experienced is a burning sensation when I instill the drops. That sensation goes away after several minutes.
Right now, my insurance covers 80 percent of the cost (a 30-day supply is $100), but I would willingly pay the full price for the amount of relief the drops have given me.
-haubrey
Rishigg - 22 Jul 2003 09:22 GMT If this is medicine...
> There seems to be some interest in personal experiences with the new > drug Restasis, so I'll share mine. For about three years, I've been [quoted text clipped - 30 lines] > > -haubrey
 Signature "As surely as any soldier ever died on the field, Dr. Bates gave his life for a cause, battling against fate, during many years of magnificent struggle, when the unending disappointment finally broke in hopeless despair. His torch is still burning. There will come some other battler, who is fit, and will hold it high until the people who are sitting in darkness have seen its great light." William B. MacCracken, M.D. (1937, Berkeley CA)
Haubrey - 23 Jul 2003 01:37 GMT What do you mean?
> If this is medicine... > > > There seems to be some interest in personal experiences with the new > > drug Restasis, so I'll share mine. For about three years, I've been Dr. Leukoma - 22 Jul 2003 13:09 GMT > There seems to be some interest in personal experiences with the new > drug Restasis, so I'll share mine. For about three years, I've been [quoted text clipped - 30 lines] > > -haubrey Thanks for posting your experience. This should be of interest to many people, including those who have had LASIK and suffer from dry eye.
DrG
Brady - 24 Jul 2003 23:01 GMT > > There seems to be some interest in personal experiences with the new > > drug Restasis, so I'll share mine. For about three years, I've been [quoted text clipped - 30 lines] > > > > -haubrey Haubrey,
Thanks for your post. I've been looking for other people who are using Restasis, to see if they're having a positive response to the treatment.
I've been experiencing dry eyes and redness for the last few years. Over the last year, I've had plugs installed in the lower ducts, and started tetracycline, then doxycycline. I've also started taking flaxseed, and cod liver oil, Hydroeyes, and Theratears capsules. My eyes seemed to feel better, but not consistently, so my doctor recently prescribed Restasis, and I've been on it for about 10 days now. So far, I've noticed a very small improvement in my eyes in the morning (less redness), and I'm hoping this effect will continue and help clear up the redness I've been experiencing. The only side effect, so far is stinging after application, which seems to linger "on and off" for a few hours after using the drops (morning and night).
Good luck with your treatment, and keep everyone posted...
Brady
Brady - 24 Jul 2003 23:03 GMT > > There seems to be some interest in personal experiences with the new > > drug Restasis, so I'll share mine. For about three years, I've been [quoted text clipped - 30 lines] > > > > -haubrey Haubrey,
Thanks for your post. I've been looking for other people who are using Restasis, to see if they're having a positive response to the treatment.
I've been experiencing dry eyes and redness for the last few years. Over the last year, I've had plugs installed in the lower ducts, and started tetracycline, then doxycycline. I've also started taking flaxseed, and cod liver oil, Hydroeyes, and Theratears capsules. My eyes seemed to feel better, but not consistently, so my doctor recently prescribed Restasis, and I've been on it for about 10 days now. So far, I've noticed a very small improvement in my eyes in the morning (less redness), and I'm hoping this effect will continue and help clear up the redness I've been experiencing. The only side effect, so far is stinging after application, which seems to linger "on and off" for a few hours after using the drops (morning and night).
Good luck with your treatment, and keep everyone posted...
Brady
jeannie gammon - 16 Mar 2005 23:26 GMT So glad to read your post!!! Hope you are still on other end of this e- mail address. Sounds like I have a very similar situation to yours or your situation in the past. Have meibomitis. Am in miserable pain...level 10 kind of pain. Just living to get some relief. Was so glad to read your post. Have just gotten a prescription for restasis.
I am looking for that continued ray of hope... do you know what % of folks were helped in study or do you know of others with meibomitis who have been helped by this eye product? Do you know if it helps majority of folk with meibomitis? Does it help because it reduces the inflammtion... but aren't the tears still like toothpaste? Do you think it will give you relief the rest of your life? Not a cure. A 32 vail cost about $100 here, but I think this is only a 16 day supply? Do you throw the vial away after using once or can one save it for 12 hours later at the night time dose? I called allergan and they said it has no perservative in it, but one could do what they wanted... so maybe using same vial twice is not a good idea..but maybe it is ok if put in a sealed container? Anyway... how do you handle the dosing?
How much relief have you gotten now and has it been sustained relief? At time of your post in 2003 you said your eyes were much better after a few weeks? May I ask how much better after a few weeks as I am in that desperate place?
Any info is much appreciated, as I have not been able to find anyone else on internet who talks about their problem with meibomitis and success with restasis.
Thanks more than you know... but it sounds like you may know! Jeannie Gammon... from Dallas, Texas
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