I don't know exact numbers/details.  The things I do know -

There doesn't appear to be increased pressure in the eye; pressure tests have
been normal.  That actually has seemed strange to me because my eye feels
like it is under pressure and it hurts worse when I have sinus pressure or
when I bend over.

The opthalmologist cannot see any physical abnormalities in the eye with a
regular detailed exam, my vision just continues to deteriorate.  She has not
done a test for my peripheral vision since I don't have insurance and my
peripheral vision doesn't appear to be diminished.

My eyes are also sensitive to light and to air blown on them - just like they
were during chemo only not as bad.  They burn (especially the right one) and
feel heavy or gritty as if they were dry.  My right eye feels that way
constantly; the left one occasionally.  My vision is consistently worse when
I watch TV and sometimes when I'm on the computer.  Being in a car with A/C
blowing or out in the weather causes my eyes to tear a lot and hurt, and my
vision is worse.  They also water excessively for periods of time, most days
but not all - notably when I am putting on eye makeup or when watching TV.
The opthalmologist did a dry eye test at my first visit and it was normal.
She did it again at my next visit and the results showed dry eyes.  However,
I didn't choose to use Restasis - I couldn't afford it and the dryness
doesn't seem to be all that bad to me.

The first indication that something was "off" was at a regular eye exam when
my right eye vision appeared to have developed an astigmatism since my visit
the previous year.  However, when it was rechecked about 10 minutes later the
vision was better.  The optometrist assumed I had rubbed my eye or something
prior to the first reading - though I really didn't think I had.  

Within a few months I could tell my vision in that eye had distinctly changed.
That's when I first went to the opthalmologist - last summer I think.  She
suspected Topomax first.  By then I had been on it about 10 months.  I
wouldn't have noticed early symptoms caused by the Topomax because I was
having such constant, severe migraines and accompanying visual difficulty.  I
went off the Topomax cold turkey (bad idea, but after a week of rebound
migraine I was OK) and there was no change in the vision.  It continued to
worsen.

Another weird thing I have wondered about - when I was on chemo my port was
on the right side of my chest.  My port developed a blood clot but it wasn't
bad enough to completely block the catheter so they continued to use it.
However, after every infusion I felt like I had a whole bag of fluids
backlogged in my right chest, shoulder, neck and head.  Over the course of
treatment the smaller blood vessels on my right chest, upper arm, neck, and
right side of my face became enlarged and they are very visible.  After
treatment, the catheter developed a leak and the port was removed.  However,
the site of my port -- right chest, shoulder, neck and right side of my head
still ache and hurt a lot.  The right side of my chest appears to have lost
most of the muscle/fat tissue - but that could be an affect of the double
mastectomy I had.  The tissue loss has been gradual - it wasn't there
immediately after the mastectomy.  I have wondered if the eye difficulty
could be connected.  I just don't know how that could be.

The severity also varies.  Some days are worse or better - though the vision
in my right eye never completely clears.  Today is a worse day and the whole
right side of my head hurts -- it will turn into a migraine within a few
hours if I can't stop it.  Today both eyes are blurry.

-- Danni