I have developed a sight problem within the last 5 years, where part of
my peripheral visual field has gone in both eyes. The scotoma (I think
that's the right word) are just above the central vision. If I stand in
front of an Amsler grid and blink each eye separately, I can see dark
areas where the vision has gone. My right eye is worse, it's a
triangular area, arced at the bottom, the left eye just appears to be a
line going from outside to above centre. Luckily they don't overlap too
much so I can see pretty well still, but where they do overlap, a line
of light is apparent, just like I've stared at, e.g. a striplight for
too long. I have been too & fro to eye specialists and had many tests
(including MRI scan), but they are stll unclear as to what has caused
this problem and whether it's likely to get worse.
I had a field test at the optician in 2002 when I first started
noticing something and that was more or less clear. I 've had several
field tests over the last year and they all show up blind areas very
similar to what I see when I do my own blink test. But (fingers
crossed!) they don't seem to be getting worse. However, I have my
doubts as to whether a field test can show up small variations, the
printed results look pretty rough & ready.
According to the specialists, the area of loss closely corresponds to
optic pits I have in the optic disc area of both eyes. I recently had a
OCT photo done and that confirmed that the retina is thin around this
pitted area. The specialists have discounted glaucoma mainly due to
normal pressure and my age (50). They think the cause may be something
to do with exercise induced migraines I get from time to time, but very
infrequently and only when I work out (running) really hard, e.g. it's
been over a year since the last one. I only mentioned the migraines to
them because what I see now is similar to the starting part of the
aura.
I would really appreciate other opinions on this, or similar
experiences, just to try and home in on what is going on, because at
the moment, I don't know whether this is a progresive thing or a one
off?
Thanks, Rob
gudrun17 - 23 Aug 2006 17:39 GMT
> I have developed a sight problem within the last 5 years, where part of
> my peripheral visual field has gone in both eyes. The scotoma (I think
[quoted text clipped - 32 lines]
> the moment, I don't know whether this is a progresive thing or a one
> off?
Have you seen a glaucoma specialist? There are people in their 40s and
50s who develop normal tension glaucoma--I am one of them--and with
that kind of glaucoma there may be loss in the para-central area such
as you describe. A glaucoma specialist would not presume you do not
have glaucoma merely because your IOP's are in the normal range and you
are 50.
-Gudrun
robgoog - 23 Aug 2006 20:52 GMT
Gudrun, as far as I know, none of the specialists I have seen
specialize in glaucoma. I will certainly ask the next time I talk to my
specialist. I've always had my suspicions about NTG but kind of ruled
it out because, apart from the pits, the examinations haven't shown up
any other obvious signs of damage to the optic disc. Rob
> Have you seen a glaucoma specialist? There are people in their 40s and
> 50s who develop normal tension glaucoma--I am one of them--and with
[quoted text clipped - 3 lines]
> are 50.
> -Gudrun
gudrun17 - 24 Aug 2006 18:48 GMT
> Gudrun, as far as I know, none of the specialists I have seen
> specialize in glaucoma. I will certainly ask the next time I talk to my
> specialist. I've always had my suspicions about NTG but kind of ruled
> it out because, apart from the pits, the examinations haven't shown up
> any other obvious signs of damage to the optic disc. Rob
Well, in my case because I am myopic, damage to the optic disk was hard
to distinguish from what is normal for myopia, and so for a long time I
was told it couldn't be glaucoma because my IOP's were (and still are)
normal, and there was no apparent optic nerve change. Like you, I was
also initially suspicious of NTG but the opthalmologists I was seeing
told me I didn't have it. It took a couple of glaucoma specialists to
come up with the diagnosis.
Glaucoma damage is progressive so if you have not seen any change in a
number of years, it may be ruled out but I'd think a glaucoma
specialist, who is expert in analyzing the health of the optic nerve,
would be able to determine what sort of optic disk anomaly you have and
whether it is the cause of your vision loss.
-Gudrun
robgoog - 25 Aug 2006 10:20 GMT
Trouble is Gudrun, I don't know if it is getting worse or not. I feel
at the moment it is but my problem is more noticeable depending on
amount of light. With summer on us and more light, it's more
noticeable. Flourescent lights are bad too. It also seems more
noticeable when I'm tired, run down, under the weather. Which I have
been recently. It would be really good if there was a more accurate way
of measuring it than the field test.
I'm having a field test on both eyes next week to see if I meet the
requirements for driving. Scary!
Rob
> > Gudrun, as far as I know, none of the specialists I have seen
> > specialize in glaucoma. I will certainly ask the next time I talk to my
[quoted text clipped - 16 lines]
> whether it is the cause of your vision loss.
> -Gudrun
gudrun17 - 27 Aug 2006 04:59 GMT
> Trouble is Gudrun, I don't know if it is getting worse or not. I feel
> at the moment it is but my problem is more noticeable depending on
[quoted text clipped - 8 lines]
>
> Rob
In my case I see better in bright light, but the damaged area doesn't
vary whether I am tired or under particular lighting. It's always
there, just less bothersome on a sunny day.
A glaucoma specialist can determine optic nerve fiber loss more
precisely using tests such as OCT (optical coherence tomography), HRT
(Heidelberg retina tomograph), or GDX nerve fiber analysis, although
none of these tests by themselves are diagnostic.
-Gudrun