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Medical Forum / General / Vision / December 2005

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Finding a retinal surgeon

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Jodie - 16 Nov 2005 04:07 GMT
I was diagnosed with a macular pucker in my right eye, and my
ophthalmologist referred me to a retinal specialist.  Unfortunately, my
initial consultation with this doctor was very unsatisfactory for me.
I found him extremely uncommunicative, and his religious references
made me very uncomfortable.  I do not intend to see him again.  As a
medical "outsider" (with good insurance coverage but no primary care
doctor), how can I locate the best retinal surgeon in my area?  Are the
listings of "best" doctors by Castle Connolly and Consumers Guide
reliable?    Is membership in professional groups (e.g., the Vitreous
Society) important?  If I were to schedule an appointment with a doctor
at a teaching hospital, would residents also participate in my
treatment?  Any help/advice with this problem would be appreciated.
doctor_my_eye@msn.com - 18 Nov 2005 16:37 GMT
If you are located near a teaching hospital, the care is first rate.
Don't be fearful of residents being involved in your care.  Their
enthusiasm is contagious and they are practicing with direct
supervision in a team approach.  When you consider that a retinologist
is the product of 12 years of education followed by 4 years of
undergrad followed by 4 years of medical school followed by a two year
ophthalmology residency followed by a two year retinology fellowship or
residency..........Need I say more?  These are the best and the
brightest that most schools have to offer.
CatmanX - 18 Nov 2005 20:31 GMT
go back to your ophthalmologist, tell them what you said here and ask
for another referral to another retinal specialist.

It is not just how good they are, it is how they treat you. When I
write a referral, I do so to a doc who will treat my patient the way I
would like to be treated.

grant
lynn - 29 Nov 2005 02:26 GMT
> I was diagnosed with a macular pucker in my right eye, and my
> ophthalmologist referred me to a retinal specialist.  Unfortunately, my
[quoted text clipped - 8 lines]
> at a teaching hospital, would residents also participate in my
> treatment?  Any help/advice with this problem would be appreciated.

I also have an epiretinal membrane.
I am waiting for FDA approval and distribution of the Glasser "rake"
before undergoing the removal of the membrance.
http://www.bmgnri.com/newsrake.htm
If you live near Dallas, TX, the Texas Retina Associates have a very
good reputation.
Jodie - 30 Nov 2005 03:35 GMT
> I also have an epiretinal membrane.
> I am waiting for FDA approval and distribution of the Glasser "rake"
> before undergoing the removal of the membrance.
> http://www.bmgnri.com/newsrake.htm
> If you live near Dallas, TX, the Texas Retina Associates have a very
> good reputation.

I really appreciate your input.  My online research found no outcome
studies of the Glaser "rake" vs. more traditional surgical instruments.
(Do any exist?)  I'd rather not be a surgeon's first experience with a
new instrument.  The biggest innovation in treatment that I found
involves "nonvictrectomizing vitreous surgery" (i.e., peeling the
epiretinal membrane without performing the vitrectomy).  Post-surgery
vision is reported to be excellent (average=20/25) with this method,
with no increase in the rate of cataract development.
http://www.revopth.com/index.asp?page=1_225.htm
Unfortunately, the studies I found on pubmed indicated that the
membrane grew back in about 33% of the patients (a much higher rate
than with traditional surgery.)

The rate of retinal detachment (the worst case scenario) from
traditional macular pucker surgery varies from 2 percent to more than
10 percent, depending on the study.  I suspect that the surgeon's skill
has a lot to do with this.  For lack of a better method, I ended up
using Castle Connolly's guide (which relies exclusively on ratings from
other doctors) in choosing a surgeon.  Their guide yielded the
names/education/training of ten retinal specialists in my area
(Chicago) who are reported to be the "best."  I have an appointment
next month with a doctor at a major teaching hospital.  His credentials
seem awesome, but the participation of residents/interns in any future
surgery would be a deal-breaker.
lynn - 05 Dec 2005 21:28 GMT
I have been told that is is common place for the membrane to tear apart
during the removal procedure.  One doctor described it as trying to
peel a wet tissue paper off a wall.

One of the  instruments currently used looks like a rake.

I would rather try the Glasser rake than use current instruments which
are not all that great (the membrane still tears using the current
instruments).

I talked with a friend who had detached retina sugery over 14 years
ago.  No problems with the removal of the vitreous except the cataract
which occurred less than a year later.  He is corrected to 20/20 and
holds a Class 1 FAA physical.

You might ask several "front eye" doctors who they would use for retina
surgery on their own eye?

I would be VERY specific about no one performing the surgery except the
teaching doctor.  No resident or fellow to touch any you or any of the
intra-eye surgical instruments.
CatmanX - 06 Dec 2005 20:00 GMT
Go to a reputable optometrist in your area and ask him (her) who they
would go to. OPtometrists have the benefit of not being in "the system"
and will refer to whoever is best, that's certainly my approach. Along
with that, I also consider who is going to look after my patients, and
that means emotionally as well as medically.\

dr grant
 
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