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Medical Forum / General / Vision / August 2005

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Weird strabismus and severe farsighted

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Mauro R - 13 Aug 2005 17:20 GMT
I don't know if this is the right place to post. Anyway there it goes.

I'd always have, I think, problems eyes, but only when I've been adopted,
when I was almost seven I'd have  find out some of my problems.
My first glasses was  basicaly +12,00 -2,75 and +12,75 -2,00 with others
numbers. I've been told to be severely cross-eyed, though I didn't know what
that means by that time.
When livivng in streets, here in RJ, Brazil, I remember I was being called
that very often.

Anyway my actual problem is: after going into 4rth eyes surgeries, my eyes
return to it original position, my actual glasses is: OD esf: +25,50 cil, -2,
00 eix 180 grd 15 pri base ext, +30,00 cil -2,00 eix 180grd 15 pri base ext.
My other eye is: 25,75 cil 2,75 eix 17 grd 15 pri base ext and 30,75 cil 2,75
15 pri base ext. With my glasses I can see everything beautifully, but
without them... only blur and my eyes go jerking that  sometimes fell sick.

I have a kind of stiff eyes muscles, (that's what my father has been told),
and my eyes returned to over 90DP strabismus, after a couple of months. Now I
can not control my eyes movement unless I close my eyes or turn my head with
sharp movements or something like that.

What is it that I have, and, this scares me more, how far this will go?

Thanks, and pardon my English.
Dr Judy - 13 Aug 2005 17:43 GMT
>I don't know if this is the right place to post. Anyway there it goes.

snip

> Anyway my actual problem is: after going into 4rth eyes surgeries, my eyes
> return to it original position, my actual glasses is: OD esf: +25,50
[quoted text clipped - 14 lines]
> with
> sharp movements or something like that.

Is the problem with eye movement only with your glasses off?  If you are as
farsighted as your prescription above indicates then you can expect to be
cross eyed with your glasses off.

The solution is to wear your glasses at all times.

> What is it that I have, and, this scares me more, how far this will go?

You are farsighted and have strabismus.  What do you mean by "how far will
this go"?  If you mean will the far sightedness get worse, that is a
question to ask the eye doctors who have been treating you as only they will
know for sure if you have a progressive condition.

Dr Judy

> Thanks, and pardon my English.
Mauro R - 13 Aug 2005 19:03 GMT
I have strabismus even with my glasses on.

Problem is, my glasses are too thick and look funny, almost 2cm. My eyes too
big behind the lenses, so everybody stare at scmy hool and make funny of my
glasses and I think they see my eyes crossing.
I am not ashamed to admit that I'm scare to have go to another surgery, if I
have to. I've been mistaked for "esotropia infantil" on my 1st surgery then,
for bilateral "sindrome de Duane" because of stiff muscle, then something
"Apraxia ocular" andnow they say I have a kind of paralisy of ocular muscles
too?

That after going to, at least threeedocs here, and another team at University
of California, last month.

I'll be sixteen next october, and I'm kind of thinking drop school, because
of my appearence. I am very teased at school. Didn't talked to my dad yet.
Doc says my eyes will develop 'till my eighteen or nineteen.

I don't want to be considered, a sub vision kid, so I'm getting all info I
can get to heal my eyes. Suggestions. That is all I want.

Thanks again,  for your time.



>>I don't know if this is the right place to post. Anyway there it goes.
>
[quoted text clipped - 22 lines]
>
>> Thanks, and pardon my English.
Dr Judy - 15 Aug 2005 03:47 GMT
>I have strabismus even with my glasses on.
>
[quoted text clipped - 23 lines]
> I don't want to be considered, a sub vision kid, so I'm getting all info I
> can get to heal my eyes. Suggestions. That is all I want.

If you don't like the appearance of thick glasses, you could use contact
lenses.  If you have eye muscle problems, contacts will not help but surgery
might.

Dr Judy

> Thanks again,  for your time.
>
[quoted text clipped - 27 lines]
>>
>>> Thanks, and pardon my English.
Mauro R - 17 Aug 2005 03:06 GMT
>>I have strabismus even with my glasses on.
>>
[quoted text clipped - 9 lines]
>
>> Thanks again,  for your time.

Hi, Dr Judy.

I wish I could have contact lenses, but due to cornea problems and dryness, I
got a kind of (ulcera?, don't know how to spell it.) Also surgeries, I went
into four, so far.

Thanks, and pardon me for insisting, but, at least I can talk about it.
Mauro R - 17 Aug 2005 02:53 GMT
Weird strabismus and severe farsighted

>>I don't know if this is the right place to post. Anyway there it goes.
>
[quoted text clipped - 22 lines]
>
>> Thanks, and pardon my English.

No. My crossing eyes, according to my Med file, returned to over ET 90 w/o
glasses, whatever the numbers  means, I know I am very, very  cross-eyed
again even with glasses on, nearly 2 months after my fourth surgery.. The
Doctors says I have Oculomotor Apraxia, I'm still trying to understand that.
But it seems I have some difficult in controling my eyes movements. another
thing I can not understand is about this DVD, (the only DVD I know is Movies,
hehehe... Pardon me.

Though my glasses is very thick AND heavy, I only avoid them at home. And
that is, if I am not in front of the Computer or TV.

I really mean, will the far sightedness get worse, but my doctors are
completely evasive and do not tell me how this condiction will progress.

Thank you. I hope you do understand me.
William Stacy - 15 Aug 2005 04:52 GMT
Well I'm not sure if you are actually +12 or +25, but either way, you
need the glasses to keep you from crossing, and you might well be best
off with the strongest plus contacts you can find AND the prisms in
supplemental glasses that you'll wear over your contact lenses. I think
the prognosis is for reasonable stablility. Things can't get much worse.

good luck

w.stacy, o.d.

> I don't know if this is the right place to post. Anyway there it goes.
>
[quoted text clipped - 21 lines]
>
> Thanks, and pardon my English.
Mauro R - 17 Aug 2005 02:59 GMT
>Well I'm not sure if you are actually +12 or +25, but either way, you
>need the glasses to keep you from crossing, and you might well be best
[quoted text clipped - 5 lines]
>
>w.stacy, o.d.

Hi Stacy.

Actually, my glasses is: OD esf: +25,50 cil, -2,
00 eix 180 grd 15 pri base ext, +30,00 cil -2,00 eix 180grd 15 pri base ext.
My other eye is: 25,75 cil 2,75 eix 17 grd 15 pri base ext and 30,75 cil 2,75
15 pri base ext, bifocals. And they are thick and really heavy.

With them I can see, kind of well, at least much, much better than without
them

Thanks.
William Stacy - 17 Aug 2005 15:11 GMT
In nearly 40 years of practice I've never run across a prescription that
strong.  The consequences of not being able to wear contacts are quite
bad (distortions, appearance and peripheral vision loss, to name just 3).

If I had your eyes, I'd go for a refractive lens exchange procedure.
That would eliminate the +25.  The only optical side effect is you'd
probably need reading glasses. It might even help a little with the
strabismus.  Good luck.

w.stacy, o.d.

> Actually, my glasses is: OD esf: +25,50 cil, -2,
> 00 eix 180 grd 15 pri base ext, +30,00 cil -2,00 eix 180grd 15 pri base ext.
[quoted text clipped - 5 lines]
>
> Thanks.
Neil Brooks - 17 Aug 2005 16:33 GMT
Mauro R via MedKB.com wrote:

>> Actually, my glasses is: OD esf: +25,50 cil, -2,
>> 00 eix 180 grd 15 pri base ext, +30,00 cil -2,00 eix 180grd 15 pri base ext.
[quoted text clipped - 3 lines]
>> With them I can see, kind of well, at least much, much better than without
>> them

>In nearly 40 years of practice I've never run across a prescription that
>strong.  The consequences of not being able to wear contacts are quite
[quoted text clipped - 4 lines]
>probably need reading glasses. It might even help a little with the
>strabismus.  Good luck.

Mauro,

I'm not a doctor (only a patient), but I couldn't agree more with Dr.
Stacy about your situation.

Which University of California location did you visit?  UCLA (Jules
Stein Eye Institute) or UCSD (Shiley Eye/Ratner Eye), and who did you
see?  There is an /excellent/ strabismusologist (David Granet) at UC
San Diego.  He's my doctor and I'd recommend him highly.  You,
however, may need to be seen by a team, including refractive,
neuro-ophthalmologist, oculoplastic, corneal, etc.

If you're really a +25, that's only hurting your esotropia.  Some of
your eso- may be accommodative, too, especially if you aren't wearing
(hard to imagine) a full atropinised plus prescription.  A refractive
lens exchange could be a life-saver for you.  

Even if you could wear contact lenses, and if contact lenses were
available in such high powers, they would be terribly thick, probably
reducing oxygen transmission and comfort.  While better than glasses
(especially in optics, peripheral vision, reduced spherical and
chromatic aberrations, etc), they might be a nightmare for you to
wear.

If your dry eye hasn't been treated, or managed, with punctal
occlusion, there's likely some relief to be obtained there.  That way,
if you had a refractive lens exchange and a post-operative wavefront
LASIK procedure to clean up residual hyperopia or astigmatism, you
might see serious reduction in dry eye symptoms and associated corneal
risks.

I'm very farsighted . . . but not like you.  I've had three strabismus
surgeries, and could probably use a fourth, but I'm not likely to have
it.  With so much accommodative load on your eyes (because of the
extreme +) you're likely to continue to struggle with the crossing.

The Duane's and the oculomotor apraxia are things I'm not familiar
with, so I won't even attempt to address them.

DVD -- Dissociated Vertical Deviation -- is something I also have.
It's common in early (or infantile) esotropes, as is IOOA -- Inferior
Oblique OverAction.  These are also areas addressed by
strabismusologists.

Mauro . . . you have a complicated case.  I wish you the best of luck.
If anything, I would suggest you DON'T drop out of school.  A good
education will become more and more important to you as you go through
life.  As you may be dealing with your eyes for years to come, you
will need a good job with good pay and good insurance (or very wealthy
parents <g>).

Best,
Neil
Mauro R - 19 Aug 2005 02:37 GMT
>Mauro . . . you have a complicated case.  I wish you the best of luck.
>If anything, I would suggest you DON'T drop out of school.  A good
[quoted text clipped - 5 lines]
>Best,
>Neil

At a University of California in Los Angeles, I’m sure, I’ve been seen by a
team of neuro-ophthalmologists, Orthoptists, by two Ped. Strabismus
Ophtalmolgists and by some students.

My prescription reads +25,75 “longe”, (far)  and +30,75 for reading for my
weaker eye. The other is a bit different,  but I don’t know if there is any
accommodation. What I do have is some  exccentric and cross fixation, if that
is the right name. I believe I can not see with both eyes together since I
was a wee kid. Kind of ambliopia? Is that the name?

<if you aren't wearing glasses (hard to imagine)> I am very stubborn, at
least my dad calls me so. Also I am very, very clumsy if I am not careful,
but, at least at home I don’t wear my glasses, I am very shy of them, unless,
that is, my dad argue with me and says he will prohibit me from playing
Computers games or from watching tv. I’m completely crazy about computer. I
have three at home. Two I assembled myself.

<occlusion> I can’t have it due to nystagmus? They show up, severely, every
time one my eyes are covered. I believe they call it Latency nystagums, or
whaever. So I never could do that occlusion therapy

<I've had three strabismus surgeries>, I’d have my fourth less than 3 months
ago, and I am as cross-eyed as before the first one, *sigh*, but Doctors told
me that is because of stiffness or kind of, of my eyes muscles.  

Duane's a syndrome that causes kind of limitation  and globe retraction of
eyes muscles I think, there are markedly restriction of eyes movements, it
can affect one or the two eyes, mine is bilateral, or it affects both my eyes
if I can make myself understandable. Now Oculomotor Apraxia, is something
harder to explain but it have something to deal with eyesand brain messege
messed up, so my eyes won't obey or will slowly receive the order to move
according to my will. That I learned back in U.S.A., as says the music. Hehe.

I think doctor Stacy can explain the Apraxia a lot better.

Anyway, I thank you very much your attention, but the teasing at school is
driving me nut. I’m trying to find a way to talk about it with my dad.

Thank you again, Neil. It’s good to talk it out with somebody else. I got to
go, Tchau.

Pardon my poor English.
otisbrown@pa.net - 17 Aug 2005 19:12 GMT
Dear Mauro,

As a matter of interest, could you tell us how old you
were when you received your first plus lens.

And perhaps why?  I assume that it was because of
the "squint" or strabismus.

Thanks in advance.

Best,

Otis
(Engineer)
Mauro R - 19 Aug 2005 02:52 GMT
Dear Otis,

<As a matter of interest, could you tell us how old you were when you
received your first plus lens.>

I got my first glasses when I was seven, almost ten years ago, when I’ve been
adopted. To tell you truth, I didn’t know I was in need of glasses, D’you see?
I’d never knew my eyes were different back then. Back then I was called names,
but I’d never have experienced a clear sight, only at doc Office, I remember
that very clearly, even today.

<And perhaps why?>
I think my “future” dad saw how cross-eyed I was, after, on an attempt to run
away from him, I’d hit a tree so hard I faint and were send to a hospital.

Thanks for your concern.
 
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