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Medical Forum / General / Vision / May 2005

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I'm only 30 - Will I ever get my vision back?

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KelleyandHall@gmail.com - 25 May 2005 15:06 GMT
I am a 31 year old woman who recently had carotid stenting on my right
side due to a narrowed and ulcerated carotid.  That, however, isn't why
I'm posting here.  I had three episodes of ocular emboli lodge in my
eye.  One right off the ocular disk and the other two were further down
stream.  I have had a blind spot in the top half of my field of vision
since december, despite the fact that blood is now getting around the
clot.  This new embollism is cutting off blood supply to the rest of my
central vision and a angiogram proved that no blood is getting around.

Bottom line, is that none of the doctors I have seen are optimistic
about my getting my vision back.  That just isn't acceptable to me.  I
am only in my early thirties, and most of these BRAOs occur in older
people, not in people my age. This leads me to believe that there
hasn't been a significant amount of research done in people my age with
this affliction.

Has anyone out there ever heard of a BRAO ultimately resolving and the
vision returning?  Are there any herbal medications (i've heard that
bilberry and ginko supposedly help the retina) that I could try? Are
there any major hospitals doing currently doing research on this? My
doctors have told me that the retina is basically brain tissue and once
deprived of oxygen, the tissue dies.  I simply can't believe that there
is NOTHING that can be done.  And the fact that every single one of my
doctors has completely destroyed any bit of hope that I have is truly
unbelievable.

Is there anyone out there who's had/seen/treated/heard about a
situation like mine?  Please let me know.
William Wagner - 25 May 2005 17:24 GMT
> I am a 31 year old woman who recently had carotid stenting on my right
> side due to a narrowed and ulcerated carotid.  That, however, isn't why
[quoted text clipped - 24 lines]
> Is there anyone out there who's had/seen/treated/heard about a
> situation like mine?  Please let me know.

"retina is basically brain tissue "    Yup and  hope it  can be helped
in time!

Lucentis may be on the market in two years but that is for Macular
Degeneration.  We hope it will be helpful for Starghart's  aka Premature
Macular  Degeneration.  

My two sons found ocutech     http://www.ocutech.com/   useful but do
not use it.    A 22 and 25 year old with retina disease that was first
noticed at age 14  and was diagnosed as hysterical  blindness till we
worked our way up the optometrist ladder only to be told nothing can be
done too.

Bill

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Garden in shade Zone 5 S Jersey USA

David Robins, MD - 26 May 2005 05:58 GMT
On 5/25/05 7:06 AM, in article
1117030003.632398.149260@g44g2000cwa.googlegroups.com,

> I am a 31 year old woman who recently had carotid stenting on my right
> side due to a narrowed and ulcerated carotid.  That, however, isn't why
[quoted text clipped - 24 lines]
> Is there anyone out there who's had/seen/treated/heard about a
> situation like mine?

YES- I'VE HAD A FEW PATIENTS WITH THIS CONDITION. THEY USUALLY STAY THE
SAME, BECAUSE AS THEY HAVE TOLD YOU, THE NERVE TISSUE DIES AND CANNOT
REGENERATE. THE ONLY ONES WHO HAVE ANY IMPROVEMENT ARE EARLY ONE, WHERE THE
DEFECT IS POOR FLOW, BUT NOT SO POOR THAT THE TISSUE DIES. IT THE VESSEL
RECANALATES SHORTLY AFTER IT HAPPENS, SOME VISION SOMETIMES RETURNS. BUT
ONLY EARLY ON.  SORRY.

>  Please let me know.
 
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