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Medical Forum / General / Vision / May 2005

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Eyes not moving with head?

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plaidwsr@hotmail.com - 24 May 2005 14:38 GMT
Hi ...

This is hard to explain - I don't have the right words.  I feel
like when I move my head, my eyes are slow to follow.  The result is
really that I feel very dizzy and nauseated and have a hard time
locating things in space.  It gets worse as the day goes on, and by
evening, I'm just exhausted and want to be horizontal and in the
dark.  I've been ending every day with a massive headache - and I
wonder if it's caused by trying not to move my head too much (e.g.,
muscle tension).

When I bend down (to tie my shoe, for example), I feel like the earth
heaves and swells under me ... but as an experiment, I tried this with
my eyes closed and it was somewhat better.  When working on my computer
(which is my job), I often get a feeling of rocking as if I'm on a
boat, or like I'm rising/floating.  Curiously, bicycling and running
do not seem to make me as nauseated as walking.   It's not exactly a
"spinning" feeling, but it's not "lightheaded" either.  I
feel like I'm moving when I'm not.  It's definitely disorienting.

As history, I had a bout of this about 4 months ago that lasted (I
think) between 3-6 weeks ... and a bout about 6 months before that of
similar duration - both of which spontaneously disappeared.  I'm
about 10 days into this go-round.   I'm 35, female, normal weight,
athletic, pretty healthy.   Although I feel lousy, I do not feel weak -
and have been exercising every day - as is my normal routine - with
no loss of endurance or strength.   The only drug I'm taking is a
prescription vitamin D supplement, and an OTC glucosamine/chondroitin
supplement.

So, that was a long way of coming to the question:  Is there a name for
this sensation of feeling like my eyes are slow to follow my head?
And, of course, how do I make it stop?

(Reply to the group, please).  Thanks,

- Wanda
Mike Tyner - 24 May 2005 14:57 GMT
> So, that was a long way of coming to the question:  Is there a name for
> this sensation of feeling like my eyes are slow to follow my head?
> And, of course, how do I make it stop?

It isn't likely an "eye" problem. Might be an ear infection. In any case,
it's too subtle to diagnose on the Internet. I think a doctor visit is
warranted, perhaps beginning with your family doctor.

-MT
Scott Seidman - 24 May 2005 15:05 GMT
>> So, that was a long way of coming to the question:  Is there a name
>> for this sensation of feeling like my eyes are slow to follow my
[quoted text clipped - 5 lines]
>
> -MT

Mike's right, could be anything with a vestibular flavor.  

The episodic nature, separated by months, and the attacks while bending
over, suggest Meniere's disease and Benign Postural Positional Vertigo
(BPPV)respectively, if you're looking for some search terms, but again,
it really could be anything or nothing.  Migraine, for example, can casue
similar symptoms.

Start with your primary care physician.  It really is worth pinning down.  
Some of these disorders, like BPPV, are amazingly treatable.  Others,
like Meniere's, are treated symptomatically with motion sickness drugs
like meclizine, with variable success. Migraine, which doesn't always
cause headaches, can also be treated.

Scott
(not a doctor)
Dr. Leukoma - 25 May 2005 03:02 GMT
I will add to some of the other suggestions.  You may also have a
decompensating phoria, such that your eyes want to point in different
directions.  Meniere's disease is almost debilitating, and the room
will seem like it is spinning.  Your symptoms seem a little different.

DrG
Scott Seidman - 25 May 2005 13:32 GMT
"Dr. Leukoma" <drg@leukoma.com> wrote in news:1116986625.112986.270420
@o13g2000cwo.googlegroups.com:

> I will add to some of the other suggestions.  You may also have a
> decompensating phoria, such that your eyes want to point in different
> directions.  Meniere's disease is almost debilitating, and the room
> will seem like it is spinning.  Your symptoms seem a little different.
>
> DrG

Still, "When I bend down (to tie my shoe, for example), I feel like the
earth heaves and swells under me ... " is a pretty BPPV-type story (but I
suppose postural effect on blood pressure need to be looked at, unless
the symptom can be elicited with a simple head tilt), but "I've been
ending the day with a massive headache", and "I want to be horizontal and
in the dark" seems migrainey.  Agreed, Meniere's doesn't seem to fit in,
nor anything like vestibular neuritis.  "Rocking on a boat" or
"rising/floating" again seems vestibular.

If this poster eventually ends up at the right doctor/clinic, its a sure
bet that she'll be given calorics to check the periphery, a quick cranial
nerve screen, probably a check for head shake nystagmus and some other
tricks to check for central problems, and a head tilt test for BPPV.  I'd
be paying closest attention to the BPPV, but it still sounds migrainey to
me.  A large portion of patients with similar symptoms crossing through
dizzy clinics are eventually diagnosed with migraine.  It's so common,
I've worked with one doctor who runs a dizzy clinic in Switzerland who
routinely runs every patient below a certain age through the migraine
clinic before he'll let them in the door.  

FWIW, its not always easy to differentially diagnose softer vestibular
problems from migraine.  Sometimes, since the vestibular problems are
difficult to treat medically, it makes some sense to try a course of
migraine treatment (it's cheap and easy), and see what happens.

Scott
(not a doctor)
plaidwsr@hotmail.com - 25 May 2005 16:36 GMT
Thank you all for the information.

I left off a few details previously, and realize some others may need
clarification.

   On Migraine v. Meniere's v. BPPV :

I do occasionally get lightheaded from standing too quickly (or from
looking up), but this feels totally unlike that.  That lasts seconds,
is totally blinding, and goes away pretty quickly.  This seems to be
episodic in that it lasts for the better part of weeks, and then goes
away for months.   This morning - like every morning for the last 10
days - I woke up and felt absolutely fine.  No headache, no
dizziness.  I stood up and still felt fine (i.e., the act of standing
did not produce symptoms).  Within 10 minutes I felt lousy again.

All of the stuff I read about vertigo talks about "spinning," which
is not exactly what I'm feeling either.  (see prior post).

   On red herrings:

My ears do feel really stuffy right now, but I don't think they did
during the other courses of this, so it seems like that may be a red
herring.  No tinnitus, as I understand it.  The ear stuffiness is
likely seasonal allergy related (northeast USA), but since the last
bout of dizziness was February it would have been hard to say that
then.   There is a "noise" in my right ear when I open my mouth - -
sort of a crunchy/grinding/wet noise.  That preceded the vertigo by
quite a few weeks, though, and again I don't think it existed for
other bouts.

   On contradiction:

One thing that is really confusing me is that as disoriented and sick
as I feel - - I was able to go for a hard 6 mile run last night, and a
45 mile bike ride the day before - - and neither made me feel any
worse.  In fact, I think I felt briefly better.  Is there anything
about raising my heart rate or endorphins that could account for this?
Would either have an effect on fluid in my ears?  I know you're
tempted to think, "hey, if she's exercising that hard, the symptoms
can't be that bad." But you should resist that temptation.  I'm
devoted beyond  the logic of pain.  (A few years ago I broke my foot,
was told by a doctor that it was nothing, and continued to run on it
for years until an x-ray proved the fracture.  Yes, it hurt.)

   On hypochondria:

BUT ... the reason I'm seeking anonymous usenet/internet information
and not going to a doctor - - is that about 5-6 years ago, I suddenly
started experiencing a lot of numbness in my body, especially the left
side of my face, but also elsewhere.   Duly concerned, I went to my
physician, who sent me to a neurologist, who did all of the appropriate
tests and found nothing.  She specifically ruled out scary stuff like
MS, lupus, thyroid, diabetes, etc.   It was dismissed as "anxiety"
and I felt like an idiot.  A crazy idiot at that.  The numbness in my
face (and elsewhere) wanes at times, but it is fairly strong now.
It's hard not to want to tie everything into a "single disease
theory" but I think I'm supposed to know by now that it's best
not to think about it, lest I become known as an even crazier idiot.

That was too much information.  Sorry.  I guess I'm just feeling a
bit frustrated.

- Wanda
Scott Seidman - 25 May 2005 18:33 GMT
plaidwsr@hotmail.com wrote in news:1117035398.566463.220280
@g49g2000cwa.googlegroups.com:

> BUT ... the reason I'm seeking anonymous usenet/internet information
> and not going to a doctor - - is that about 5-6 years ago, I suddenly
[quoted text clipped - 8 lines]
> theory" but I think I'm supposed to know by now that it's best
> not to think about it, lest I become known as an even crazier idiot.

Your doctor should always be stop one when you have a health concern, and
having a health concern certainly doesn't make you crazy or an idiot.

Personally, I think it's sounding more and more like a complicated
migraine.  FYI, a migraine doesn't have to be accompanied by a
"headache" to be a migraine.  If you want to give yourself a little
boost, do a google search for "migraine" and "numbness", as well as
"complicated migraine", and "vertebrobasilar migraine".  I think you'll
be amazed at how your situation seems to parallel some of the
descriptions of the latter.  For example, from
http://www.emedicine.com/neuro/topic517.htm, "Vertebrobasilar migraine
presents without headaches but with vertebrobasilar symptoms such as
vertigo, dizziness, confusion, dysarthria, tingling of extremities, and
incoordination."  Also check out www.migrainepage.com/journal/histmd.html 
and http://headaches.allinfoabout.com/articles/btm.htm.  Read that last
one particularly carefully, and when you read these resources, don't let
the scary stuff get to you, as something bad would very likely have been
found at your last neurology workup.  

Go back to your doctor, and talk about your new symptoms.  He or she will
advise you about what to do next.  You might even get sent to a migraine
specialist.  If you were my family member, I'd advise you to specifically
talk to your doctor about prophylactic migraine treatment.  If you get
treated episodically, you might remind the prescribing doctor that
medications such as triptans and ergotamines are contraindicated for this
type of migraine.

Good Luck
Scott (not a doctor)
 
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