I have a grilfriend whose name is Nancy. About a month ago she woke up
to find that she could not see well enough to put on her makeup. Upon
examination, she realized that she had a blind spot in her left eye
that obstructed a good portion of her vision. Then within two weeks,
it was up to 80%. She has been looked at by many retinal specialists
in Los Angeles, which have given her everything from macular
degeneration, to myopia, to a syndrom called Acute Zonal Occult Outer
Retinopathy. AZOOR has little info that I can find, and one of her
specialists didn't even know what it was.
Anyone heard of it? Know of anyone researching it? Support groups?
Glenn - USAEyes.org - 06 May 2005 20:52 GMT
Yes it is rare, but not unknown.
Visit www.PubMed.com and enter "Acute Zonal Occult Outer". You will
have 25 published articles appear. I recommend you contact the
authors of the more relevant studies and either get your sister to
that doctor, or ask if that doctor can make a referral to a local
retinal specialist.
Glenn Hagele
Executive Director
Council for Refractive Surgery Quality Assurance
Email to glenn dot hagele at usaeyes dot org
http://www.USAEyes.org
http://www.ComplicatedEyes.org
I am not a doctor.
James43 - 08 May 2005 01:17 GMT
I appreciate the response. She has had three retinal specialists look
at her with varying diagnoses. AMD, retinal detachment, and AZOOR.
She has had all the popular tests done twice and we are waiting on
results for the electroretinography in 10 days. Even had one doc argue
that it was not AZOOR, but myopic degeneration. When asked how he
exluded AZOOR, he didn't even know what it was. Just trying to find
our way when little info exists. Hopefully there will be AZOOR people
around these groups..
JAmes
Glenn - USAEyes. org wrote:
> Yes it is rare, but not unknown.
>
[quoted text clipped - 14 lines]
>
> I am not a doctor.