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Medical Forum / General / Vision / April 2005nystagmus
My son will be 3 in April. He was diagnosed with congenital nystagmus at 6 months. He uses his vision extremely well, however, he has other slight developmental delays like sensory integration. Are the two related? Also, I've been hearing lately that high doses of magnesium and thiamin can cure nystagmus. Does anyone know anything about that? > My son will be 3 in April. He was diagnosed with congenital nystagmus > at 6 months. He uses his vision extremely well, however, he has other > slight developmental delays like sensory integration. Are the two > related? Also, I've been hearing lately that high doses of magnesium > and thiamin can cure nystagmus. Does anyone know anything about that? Usually, early age nystagmus is associated with other vision disorders so hopefully your son will not be affected. It's tough to say if his other developmental delays has any direct relationship with the nystagmus but I guess it's a possiblilty that it's a cause. There really isn't any cure for congenital nystagmus- there is treatment to try to minimalize it (finding the "null point" for instance). I haven't heard of any study regard mega-dosing magnesium or thiamin and I'd be very concerned about trying it on a toddler. frank > My son will be 3 in April. He was diagnosed with congenital nystagmus > at 6 months. He uses his vision extremely well, however, he has other > slight developmental delays like sensory integration. Are the two > related? Also, I've been hearing lately that high doses of magnesium > and thiamin can cure nystagmus. Does anyone know anything about that? If you really want to help your son with the only treatment that works, that is rest treatment, please read the book Stories from the Clinic by E.C. Lierman. You may find some digitalized untrustful copies on Internet. I have reprinted it on paper. http://TheCentralFixation.com >> My son will be 3 in April. He was diagnosed with congenital >nystagmus [quoted text clipped - 14 lines] > >http://TheCentralFixation.com Peruse this newgroup and you'll quickly learn that Rishi is to be aggressively and actively ignored. Best of luck with your son's eye issues.... > >http://TheCentralFixation.com > > Peruse this newgroup and you'll quickly learn that Rishi is to be > aggressively and actively ignored. Yes, you can ignore me very easily, but the truth will hunt you till your very end. Do you think that by following the wrong treatments his son will get any benefit? Apologetic warning: some newsgroup replies are blatantly ludicrous. > My son will be 3 in April. He was diagnosed with congenital nystagmus > at 6 months. He uses his vision extremely well, however, he has other > slight developmental delays like sensory integration. Are the two > related? Nystagmus is a symptom, with different causes. Some causes are unknown and only presumed. The pattern of congenital jerk nystagmus is characteristically much different from the "downbeat" nystagmus that develops in thiamine deficiency and Wernike disease. CJN kids are typically capable, and don't usually have adjustment issues. As you've probably heard, he doesn't see the world wobbling as you might expect, but his acuity is reduced by the movement. Because the motion may minimize in a certain ("null") position, they sometimes develop habits of turning the head or tilting up or down. > Also, I've been hearing lately that high doses of magnesium > and thiamin can cure nystagmus. Does anyone know anything about that? There is a nystagmus that develops from thiamine/magnesium deficiencies, but deficiency isn't a factor in all nystagmus. Beware high doses of these supplements if there's no deficiency confirmed by lab results. FWIW, nystagmus is somewhat more common in albinos. -MT you may want to look at http://www.nystagmus.org. They have mailing lists, etc. for support and information. > My son will be 3 in April. He was diagnosed with congenital nystagmus > at 6 months. He uses his vision extremely well, however, he has other > slight developmental delays like sensory integration. Are the two > related? Also, I've been hearing lately that high doses of magnesium > and thiamin can cure nystagmus. Does anyone know anything about that? There was discussion on congenital nystagmus a while back here using biofeedback with success http://groups-beta.google.com/group/sci.med.vision/msg/601b2a1eb625ff6f?as_umsgi d=9shm3g$9gn$1@nntp9.atl.mindspring.net |
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