Hello list,
I've been reading through and there seem to be a lot of helpful people
here. I'm having some vision problems that the doctors cant figure out
and Im hoping some of you might make some suggestions.
I have been to a few doctors and a few specialists and so far noone is
able to identify my problem. I'm a 29 year old male, non smoker. Around
5 years ago I notice two small blind spots in my right eye, just above
and on the outsides of the focal point. Unfortunately I did not go to
see a doctor about it at the time. Since then I think the spots have
increased in size. I say "I think" because they are difficult to 'map',
especially over time. I notice them more often now, and it feels as if
someone is blocking part of my vision, but the other eye is
compensating. I have also found a smaller blind spot just above and to
the right of my left eye's focal point. This spot is new to me, but I
may have just missed it in the past since it is so small.
Last year I went to an optician and mentioned the blind spots. They
performed a visual field test and sent me to an Opthamologist, the
Opthamologist performed an array of tests and sent me to a
Neuro-Opthamaologist. The N.O. also performed a range of tests and had
an MRI done, which came out negative. So far none of the doctors has
been able to tell me what is causing these spots and why they seem to
be worsening.
My symptoms are:
-Right Eye: Blind spot just above and to the left of the focal point.
-Right Eye: Blind spot just above and to the right of the focal point.
-Left Eye: Small blind spot just above and to the right of the focal
point.
-Pain above/behind the eyes, it hurts more if I look to the exreme
right or left.
-Almost constant ringing in my ears
-Mild headaches, a few times per month, usually lasting several hours.
-Infrequent dizzyness, a couple of times per year I experience
dizziness and lose my balance for a short period of time.
I'm in the process of visiting a second set of doctors and specialists
to get second opinions, but so far they don't know what is wrong.
If anyone has any suggestions that I could pursue or questions that you
recommend I ask my doctor it would be appreciated.
Thanks
gudrun17 - 18 Feb 2005 19:24 GMT
I'm not a doctor, but I've gone through a lot of trauma in trying to
get vision loss diagnosed. First off, have you seen a glaucoma
specialist? If I were you, I'd see both a glaucoma specialist, in case
it is an optic nerve problem, and a retina specialist, in case it is
the retina, and I'd probably want to see another neurologist. Don't
make the mistake I did and stay with a group of doctors all saying they
didn't find anything wrong, while I was losing more vision. If I had
gotten third opinions and maybe fourth opinions, I might have been
diagnosed and treated before losing significant vision. Many if not
most kinds of vision loss are permanent and progressive, so you need to
have someone diagnose you as soon as possible. Do some searching and
see if any of the top rated ophthalmology hospitals are in your area,
and if you have to pay to see a specialist yourself, it's worth it if
it saves your sight.
-Gudrun
> Hello list,
>
[quoted text clipped - 42 lines]
>
> Thanks
Dom - 18 Feb 2005 20:29 GMT
> Hello list,
>
[quoted text clipped - 3 lines]
>
> Thanks
You give a great description of your symptoms which makes it easier to
help. I'm thinking of a neurological problem, such as multiple
sclerosis. I'm sure the neuro-ophtal would have had this type of thing
in mind but for some reason it didn't show up in the testing. I'd go
back for review, or if you want to, seek a second opinion.
The other condition I thought of is central serous retinopathy,
especially if you lead a high-stress lifestyle. However I certainly
don't think this is as likely as a neuro type problem.
Let us know how you get on.
Dom
g.gatti@agora.it - 18 Feb 2005 21:07 GMT
PLEASE READ AND REREAD CAREFULLY WHAT THIS POOR GUY TELLS US.
INDEED THE SCIENCE OF MEDICAL OPHTHALMOLOGY HAS NOT DONE SO MUCH DOWN
THE ROAD IN THESE HUNDRED OF YEARS.
JUST PRESCRIPTION OF GLASSES AND OTHER INVASIVE TREATMENTS BASED EITHER
ON DRUG OR ON LASER CUTTINGS.
NOW THIS POOR FELLOW.
IT IS VERY CLEAR THAT HIS SYMPTOMS ARE 100% MENTAL.
HE SHOULD BE TRAINED INTO REST METHODS.
http://TheCentralFixation.com
> Hello list,
>
[quoted text clipped - 42 lines]
>
> Thanks
Repeating Rifle - 19 Feb 2005 06:37 GMT
I must first point out that I am not a health professional. I have had some
similar symptoms,
> Hello list,
>
[quoted text clipped - 21 lines]
> been able to tell me what is causing these spots and why they seem to
> be worsening.
You do not say how big the spots are or whether they are permanent or
transient. If you are trying to read, do they block out part of a letter or
a period? What size? Have you had the field test in which there are flashing
lights and you push a button when you see a flash? Tthe test may not catch
very small spots.
> My symptoms are:
>
> -Right Eye: Blind spot just above and to the left of the focal point.
*Focal point* is not the correct term. *Fovea*, *center of vision*, or even
*macula* might be more appropriate.
> -Right Eye: Blind spot just above and to the right of the focal point.
> -Left Eye: Small blind spot just above and to the right of the focal
[quoted text clipped - 13 lines]
>
> Thanks
Certainly, the panoply of symptoms indicates something more complicated than
isolated scotomas. If these symptoms are related, you need reall
professional help.
As for me, I had small transient scotomas near my fovea of various sizes and
blackness. Sometimes they would block out a period or an a in a book. I now
attribute it to ocular migraine. I had no headache so I lucked out that way.
In addition to the scotomas, from time to time, I got the scintillations
associated with migraine auras. Although that may not be your problem, bring
it up as something for the pros to consider.
Bill
g.gatti@agora.it - 19 Feb 2005 08:11 GMT
> I must first point out that I am not a health professional. I have had some
> similar symptoms,
REALLY???
> You do not say how big the spots are or whether they are permanent or
> transient. If you are trying to read, do they block out part of a letter or
> a period? What size? Have you had the field test in which there are flashing
> lights and you push a button when you see a flash? Tthe test may not catch
> very small spots.
There is no need to know how big the spots are: it is very clear they
are produced into the mind by means of the imagination.
> *Focal point* is not the correct term. *Fovea*, *center of vision*, or even
> *macula* might be more appropriate.
Everything is not appropriate given the wrong foundation of this
science!
> Certainly, the panoply of symptoms indicates something more complicated than
> isolated scotomas. If these symptoms are related, you need reall
> professional help.
Go to the professionals, and continue to be cheated by them!!!
> As for me, I had small transient scotomas near my fovea of various sizes and
> blackness. Sometimes they would block out a period or an a in a book. I now
[quoted text clipped - 4 lines]
>
> Bill
He has gone to plenty of professionals who have simply robbed him of
his money.
What has he to do more?
Dr. Leukoma - 19 Feb 2005 19:16 GMT
> Hello list,
>
[quoted text clipped - 42 lines]
>
> Thanks
I would consider that any patient who has sustained and repeatable
field loss along with retro-orbital pain that is made worse on extreme
case may have optic neuritis until proven otherwise. Optic neuritis
can present with central as well as peripheral visual field loss.
DrG
misterprivate@gmail.com - 22 Feb 2005 03:34 GMT
Hello, Original Poster here... lost my password :)
Im going to try and answer all of the posts in one shot.
I haven't seen a glaucoma specialist, but I have seen a retinal
specialist and a neuro specialist (Wills Eye in PHL). I will try to
seek out a glaucoma specialist just to get their opinion.
The neuro I saw was at Wills Eye, which I have been told is a very good
hospital, so I am hoping that they would have considered MS, if I keep
coming up empty handed I will try to get some focus (bad pun not
intended) on that.
At reading distance (~18-24") each spot obscures a circlular area
roughly 1.5" in diameter (on the text). I've had two visual field
tests. My blind spots are stationary and consistent, they do not move
or flash. They are dull grey areas with no detail or shading/color.
Thanks for the tips on terminology, that will help in describing my
problem.
DrG, would the orbital pain need to be chronic in order to be
considered a related sympton? The pain is not constant, and I do read
books and computers at work and home, this could just be occasional eye
strain I imagine.
The tinnitus and blind spots are always present, the other symptoms may
be nothing (hypochondria :), dunno. I usually mention them to the
doctor but they dont seem to concerned about it.
I am probably going to contact my PCP regarding a Lyme disease test. I
spend enough time outdoors in heavily wooded areas to warrant at least
a quick test for Lyme.
Thanks again for all of your responses.
Dr. Leukoma - 22 Feb 2005 13:28 GMT
> Hello, Original Poster here... lost my password :)
>
[quoted text clipped - 31 lines]
>
> Thanks again for all of your responses.
The old saw about optic neuritis is that the patient sees nothing and
the doctor sees nothing. One symptom is retro-orbital pain and pain
upon extreme gaze, i.e. right or left eye movement, because this causes
stretching and movement of the optic nerve. Typically it is
self-limiting.
Your suggestion about Lyme disease is a good one.
DrG
g.gatti@agora.it - 22 Feb 2005 14:01 GMT
The only true cure is by rest methods, in particular sun-gazing and
palming.
http://TheCentralFixation.com