Medical Forum / General / Vision / January 2005
Please Help - Pain, Vision Trouble for 6 Months, Doctors Unsure of Cause
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Jesse - 12 Jan 2005 22:06 GMT Hi all. Since August 2004, I have been suffering with pain and vision troubles in my left eye, and at this point, no one has a good explanation as to why. Long story short, I've got pain around the left eye and in the cheek bone area, along with some focus troubles (blurred/double-vision). Also, every doctor visit I've had a low grade fever (99 to 100; typically I'm around 98.1). I've had a CT that indicated some fluid in the left maxillary sinus, but an ENT ruled this out as a possible cause. I've had an MRI of the ocular area and brain, which didn't indicate anything out of the ordinary. I've had multiple rounds of antibiotics (for possible sinusitis). Each round seemed to help for a few days or more, but the problem always came back. I've been to the dentist, who found some cavities (working on getting them all filled), but he didn't believe that would cause the eye problem either. Now, I'm again on the antibiotics, which helped for a couple of days, but the pain and blurred vision is back again. The severity varies from very bothersome (it's interfering with my computer job) to barely noticeable, but it's always there. I'm really getting stressed/frustrated and I'm about at the end of my rope. I'm hoping someone out there can help. That said, now for the long story....
My vision history is this... I have a slight misalignment or eye drift in one eye (I believe the left eye is actually the good one, but I'm not sure). It's not really noticeable to look at me, but when I was around 15, the optometrist told me that I might have to do something about it when I was older (i.e. glasses, and he didn't mention surgery). At that point my vision was around 20/30 I think. In my early twenties, a new optometrist basically told me the same thing, and he also diagnosed a diagonal astygmatism for which I received glasses (but I didn't have to wear them all of the time).
Along with the vision troubles, I've always had problems with ear and sinus infections. At age 25, I had sinus surgery for chronic sinusitis. A couple weeks after the surgery, I had some trouble in one eye (don't remember which). As I recall, it was like I had looked at a bright light and still had that bit of afterglow (sorry, that's the best description I have). The opthamologist (bad spelling, sorry) chalked it up to being a floater and said that it would go away on its own, which it did in a few days. He also noticed my misalignment and said that if I had lived with it that long, I should probably just continue to live with it. He did mention surgery as an option, but he kinda steered me away from that.
After that, I was fine (well, except for the less than perfect vision) until August 2004 (I'm now 28). At first, I just noticed that I was having blurred and/or double vision from time to time when I was driving home after work. At the time, I figured my eyes were just a bit tired/strained. Then, after a couple of weeks, I got that light in the eye problem again. This progressed until I was feeling dull pain in my cheek bone, the jaw, above and around the problem eye. I got to the optometrist and he said I needed a new prescription (I hadn't worn my glasses for awhile) and that the pain was probably just eye strain. Somewhat unsatisfied, I went to a new opthamologist and he said that my eyes weren't working together and added a prism to my new prescription. A follow up visit three months later showed no improvement (I couldn't wear the new glasses much, because they made things worse). He then set me up with a 6 mo. followup (later this year) and mentioned that surgery might be necessary if I still don't show any improvement.
In the meantime, my family doctor, knowing my history, suspected a possible return of the sinusitis and put me on antibiotics. This actually seemed to help, but only until I was off the antibiotics. After two months of off and on the antibiotics and prednisone (again for the sinuses), we went into a wait and see mode. The problem did subside a bit, but not enough to where I could wear and get used to my new glasses. Again, whenever I did wear them, the problem seemed to get worse.
Now, my questions... Could all of this really be attributed to the eye drift/misalignment? Could sinusitis or tooth cavities play any role in this (i.e. could either cause or make it worse)? Why did the antibiotics seem to help for awhile (again, perhaps sinusitis made the eye problem worse)? Would surgery be a good next step (even if I have multiple problems, I could at least fix one thing at a time)? Should I go see a neuro/opth (the ENT recommended this)? Is there any hope?
I'm just getting really tired of this and the stress is getting to me. On top of that, about 4 weeks ago I became a first-time Dad. That's been tough, because I come home from work and I just want to close my eyes and rest.
If you've read through all of this, thank you for your patience and time. I'd be open to any advice that you have to offer. I'm starting to get desparate for help.
Thanks.
ycdbsoya - 12 Jan 2005 23:03 GMT Get to a neuro/opth. It sounds similar to symptoms of early trigeminal neuralgia (5th nerve) or ATFP (atypical facial pain). The latter is more likely due to the recurring sinus infections and tooth problems. Low grade fever could be anything, even anxiety from seeing dr. No history of head trauma? Treatment is usually anti-convulsants such as neurontin, elavil, etc.
Jesse - 12 Jan 2005 23:33 GMT No head trauma that I can think of. Another thing that I should mention (regarding my head) is that when I was born, my mom had an exceptionally difficult labor (48 hours) during. The end result was that I was pulled out with forceps (by the head). I believe that they also had trouble getting me to start breathing (my parents tell me that I almost died). This is all probably completely unrelated, but I'm an engineer and my nature is lay out all the facts - even if they're seemingly unrelated - until the puzzle starts to come together (my poor wife; I must drive her crazy ;-).
Thank you for taking the time to listen and answer my cry for help. I will start looking into the ATFP (ok, so I actually started searching while I was writing this reply), and I just got the name of a good neuro/opt today. I think I'll make the call. At this point, I'll try just about anything.
On a side note, I am by no means a sue-happy guy, but considering that my mom's OB at the time was later convicted of drug possesion, I am supposing that my care at birth was less than ideal. Still, considering what my mom and I went through, I am just thankful to be alive.
Dr. Leukoma - 13 Jan 2005 00:07 GMT Sounds like you have a "complicated" diagnosis.
The combination of an eye misalignment and the prediction of "future problems in your 30's suggests an accommodative esotropia, or esotropia associated with farsightedness in one or both eyes. Excess accommodation can cause headaches.
Also, eye misalignment, where the eyes are struggling to align but cannot quite, can produce headaches.
As well, sinusitis can cause headaches, as can dental caries, hence the improvement with antibiotics.
However, you also suffer from "doctoritis," which means that too many cooks can spoil the broth, or too many chiefs and not enought indians. Perhaps you need someone who can take an overview....maybe a good optometrist or a visit to a good general ophthalmologist. I think that getting a referral for a neuro-ophthalmologist could be difficult and, in any event, quite possibly unnecessary. It would not have occurred to me based upon your symptoms.
DrG
Jesse - 13 Jan 2005 00:32 GMT Thanks for that as well. If I had my choice, I would hope that this really is a result of the eye misalignment. Sinus surgery is truly horrible, so if my sinusitis isn't directly causing this (as you said, it could contribute to it), that's ok with me.
While my insurance doesn't require me to get a referral (I can go to any specialist I choose, if they'll see me), I'd rather not make things more complicated than necessary. I'm not a proponent of unnecessary tests and the like... I just want to get better.
That said, does anyone out there know of a good opth in the Pittsburgh, PA area?
Thanks.
Jesse
Neil Brooks - 13 Jan 2005 01:15 GMT > Thanks for that as well. If I had my choice, I would hope that this > really is a result of the eye misalignment. Sinus surgery is truly > horrible, so if my sinusitis isn't directly causing this (as you said, > it could contribute to it), that's ok with me. Just had Functional Endoscopic Sinus Surgery on December 8th. It was absolutely /not/ "truly horrible." It was uncomfortable, and damned inconvenient, but--just a month later--I'm very glad I had the procedure done. I also had the more "traditional" surgery done over a dozen years ago. The FESS was far less dramatic and promises far better results.
I've also had three alignment surgeries for eye alignment issues, and have issues with my accommodative mechanism. I would agree (as a patient) that any or all of these issues could contribute to the issues you describe.
Best of luck,
Neil
Jesse - 13 Jan 2005 02:26 GMT Thanks. The weird part is that my normal congestion and allergies that I've dealt with forever hasn't been much of a problem over the 6 months that this has been going on. In fact, I usually get a cold every fall and winter, which usually leads to either a sinus or ear infection. This year, I didn't even get a cold.
nipidoc - 13 Jan 2005 02:56 GMT As another poster suggested, my thoughts were along the lines of trigeminal neuralgia. I would consider an appointment with a neuro oph or just a neurologist. The distrobution of the pain is what caused me to think this. It seems to follow the path of the trigeminal nerve.
I have seen two patients with similar conditions who were ultimately diagnosed with Lyme Disease. You should have your doctor give you the simple blood test for that.
let us know how it turns out. a very tough case.
nipidoc
> Hi all. Since August 2004, I have been suffering with pain and vision > troubles in my left eye, and at this point, no one has a good [quoted text clipped - 81 lines] > > Thanks. Jesse - 13 Jan 2005 13:47 GMT Thanks. I will.
One other comment about the pain (after looking at some sites on the neuro stuff)... My pain is never severe or sharp or anything like that. It's more like a dull ache that comes and goes. I could actually deal with that ok, but it's the changes to my vision that's becoming very difficult to live with. It's hard to deal with this blurring problem when you work with computers.
Thanks again. I'm taking all of your suggestions into consideration. Jesse
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