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Medical Forum / Diseases and Disorders / Arthritis / May 2007Nuther update
Seems I may be leaving here for good and trying to find another advice group. Went to see a new rheumatologist yesterday, he read through my notes asked me all sorts of stuff, fiddled with some joints (upper ones) and then went "hmmm, come on then I'll tell you whats wrong" So I did, and he did. :-) He says I have fibromyalgia and not RA, which is a bit of a relief really cos none of the basic RA stuff has been working for me. He tied in my back pain, my wearyness, my lack of lung capacity (exercise tolerance really) and a couple of other things that the last lot of doctors didn't even ask about. So, I'm waiting for a week or 2 to go back to the GP to be started on a new lot of 2 tabs a day instead of the 16ish I've been taking. I just hope these do some good. :-) I'll keep in touch just in case they change their mind again. :-(  SignatureCoats /|_|\ /|_|\ The man who views the world at 50 the same as he did at 20 has wasted 30 years of his life. - Muhammad Ali www.myspace.com/canda177 http://www.cheshiresar.org.uk/index.html -- Coats /|_|\ /|_|\ For I am a Bear of Very Little Brain, and big words Bother me. - Winnie the Pooh www.myspace.com/canda177 http://www.cheshiresar.org.uk/index.html > Seems I may be leaving here for good and trying to find another advice > group. [quoted text clipped - 12 lines] > these do some good. :-) > I'll keep in touch just in case they change their mind again. :-( Thanks for the update. I'm glad you found what appears to be a decent Rheumy who took time to listen to you Coats. I have a friend who has fibromyalgia and she says some doctors don't even think it's an illness. That's amazing something like that happens in this day and age. I do hope the new tablets work for you. There don't seem to be as many people posting here any more, which is a bit sad. Connie and Andy have both stopped posting. Thinks, perhaps they've gorn off together lol. Certainly there are not many questions about OA as there were a year or two back. Have you tried alt.support.arthritis ? Very active, mainly USA based and with one or two trolls whom everyone ignores. But still very helpful for fibromyalgia and any other arthritis related stuff. Splodge Connie and Andy have both > stopped posting. Thinks, perhaps they've gorn off together lol. Certainly > there are not many questions about OA as there were a year or two back. Been thinking about the mysterious non-appearance of Andy. I reckon it's one of three things: a) he's been co-opted back into Special Forces and is currently lying in a ditch, covered in camo gear and spending his time either training his rifle sights on some forrin rabble rouser or skinning hand-caught squirrels for food or b) his desire for anonymity grew so great that paranoia formed, and he's quit the web and now sits all day in a rocking chair, his eyes taped open, eating coffee straight from a catering-size tin and (of course) training his rifle sights on the door handle of his garret or c) he's passed from human form into an ethereal internet cyber-being who passes along the wires and visits all of us on a rota basis, making sure we're OK, fluffing our pillows, switching off our electrical goods overnight and (just for practice) training his rifle sights on our sleeping forms. I *may* be wrong, though they all sound so damn plausible, don't they? Coats - good luck. Don't think we've ever chatted on here, apols if that's my memory letting me down, but good luck anyway. Cheers AF > Connie and Andy have both >> stopped posting. Thinks, perhaps they've gorn off together lol. Certainly [quoted text clipped - 4 lines] > > I *may* be wrong, though they all sound so damn plausible, don't they? Nah, if he's not eloped with Connie, he might have fallen out of his attic again lol Splodge >> Connie and Andy have both >>> stopped posting. Thinks, perhaps they've gorn off together lol. Certainly [quoted text clipped - 8 lines] >again lol >Splodge Can I remind everyone that Connie was "at time of last posting" happily married to Robert, and as such would not in a month of sundays have gone anywhere with Andy. Andy would not be able to get on a narrow boat for a start. If you would prefer to do something more constructive with your time, how about encouraging as many people as possible to fly this banner on their web sites the image can be saved from the web site quoted: html code as follows: <center> <a href="http://www.bringmadeleinehome.com/"><img src="maddy544x150Banner.jpg" height="150" width="544"></a></center> end of code Have a nice day now > On Fri, 18 May 2007 14:27:10 +0100, "Splodge" >> Can I remind everyone that Connie was "at time of last posting" [quoted text clipped - 15 lines] > > Have a nice day now I'll take that as a right good telling-off then. Extremely worthwhile banner, though. Sick world, this. I despair. Are you who I think you may be? AF >I'll take that as a right good telling-off then. Extremely worthwhile >banner, though. Sick world, this. I despair. > >Are you who I think you may be? > >AF I am just "me" It's easier being just me on usenet You put a name to yourself, you are doing yourself no favours So in short, think of me like a portuguese police man investigating something then talking to the press I cannot confirm or deny that I am who you think I may be! This group has been around since 28 September 2000 many have come and gone Hildagh the pocket rocket from London Maureen from Nottingham Connie from a canal near you some have changed names Janet (and now it's Splidge)(or Splodge, I was taking a bath all about a saturday night ..... sorry got carried away there!) some are like Buses, they start out creating the group, participate for a while, then zip for a number of years, then return some have remained true to themselves and used the same name throughout, but never the less took part, then disappeared then returned to welcome newbies with comments like "It's quiet in here, have you not tried asa yet?" So all in all, it's easier being just me...... In an adaptation of a Sinartra classic "To think I did all that; And may I say - not in a shy way, No, oh no not me............................... He did it me's way" > I am just "me" > It's easier being just me on usenet [quoted text clipped - 17 lines] > have you not tried asa yet?" > So all in all, it's easier being just me...... And a fine person you are with a good memory. Some of them come in and out of ASA too. You might say it is just the way people are. I choose to think that life is going just great for them and they do not feel the need to talk to others about how life is and that's Ok too. Harv <No>; "oh no not me" <me@privacy.net> wrote in message news:i0cu435cmid482kpblia50kvjtrvqkb52a@aol.com... > So all in all, it's easier being just me...... > [quoted text clipped - 4 lines] > No, oh no not me............................... > He did it me's way" How to answer that? OK then I'll address this to the world in general: all I needed to know was that a certain person is all right. See, in life people drift from place to place. I can't count the number of people I've deserted, nor those who've deserted me first, and I often think fondly of people I used to know. I remember one bloke I once worked alongside who was moving to a new job, and who became quite emotional when we shook hands on his last day - I'd taught him how to bet the nags (I've forgotten, since!) and he said he wanted to keep in touch, and genuinely meant it. I told him we wouldn't, and that it didn't matter, and we didn't, and it doesn't, really. As Harvey (Hi Harvey, dunno if you remember me but I remember you and I'm truly delighted to see you post here) says, it's sufficient to know that people are happy or at least not the opposite. From time to time I'll bump into one of the aforementioned deserters or desertees, and it's instantly like old times, and then the time passes. Life goes on. So if a certain attic explorer feels like talking, my addy's changed a few times: currently it's the old four-letter prefix in front of 'noleaderdotcodotuk'. But if he doesn't, that's fine too, honestly. It's early in the day, so I'll raise a cup of coffee in salute. Cheers AF Top posting, but.... what the heck I am sitting with a coffee too, so as an oft times deserter I will raise a salute too, to all the people who have come and gone, and who helped me greatly with support, back when my need was greater than it is currently. Life for me is steady at the minute - no great traumas or pains, just muddling along. Although, having just spent best part of an hour sitting on a low stool defrosting the freezer (some idiot left the freezer door open last night) my hips are aching like I don't know what! Have a good sunday everyone. If Andy is reading, then I hope you are keeping well and happy. Jayne > OK then I'll address this to the world in general: all I needed to know > was [quoted text clipped - 27 lines] > > AF >So if a certain attic explorer feels like talking, my addy's changed a few >times: currently it's the old four-letter prefix in front of [quoted text clipped - 5 lines] > >AF YGM and Jayne also (I mean Jaynes got mail also, not you got jayne) >>So if a certain attic explorer feels like talking, my addy's changed a few >>times: currently it's the old four-letter prefix in front of [quoted text clipped - 7 lines] >> > YGM and Jayne also (I mean Jaynes got mail also, not you got jayne) Well they say a change is as good as a rest, and as I get older I am getting more broad minded..... ....... !! Jayne > YGM and Jayne also (I mean Jaynes got mail also, not you got jayne) > > Well they say a change is as good as a rest, and as I get older I am getting > more broad minded..... ....... !! > > Jayne OK - I'll take that as an invitation!!! Truth be told, I'm actually becoming less and less broad-minded the nearer I get to 50. No idea why: perhaps, knowing what I can no longer be bothered with, I disapprove of those who still can? :o) You'll never guess what I found out: when my Lyndsey was in school, as far as her friends were concerned I was definitely Scary Dad!! Which must've been why whenever we were out and she said "Oh look there's [boy's name], from school", I'd look around to see a swinging door or a head ducking down out of sight. One of them once hitched a lift to a football game with us, pretending he and Lyndsey were Just Mates And Not Dating Honestly and making a pretty bad show of it. I have never known anyone be so polite and thoughtful in my life, nor anyone so delighted to get out of a car! Flippin' eck. Scary dad.......*me*....... dearie dearie me. AF ROFL - Scary Dad indeed! My dad was a scary dad where boys were concerned. If he saw me talking to someone he didn't like the look of he'd literally drag me away. The amount of times I was mortified by him are uncountable! Jayne > ROFL - Scary Dad indeed! > [quoted text clipped - 3 lines] > > Jayne It's funny, y'know, that it wasn't til I typed that on here, *years* after the event, that I realised what'd caused the Scary Dad thing. And, er, OK I guess it's fair enough. Shan't go into detail and risk looking like I'm proud of it, but one day someone she babysat for brought her home unacceptably late, and shall we just say there was a short scene, and leave it at that? Chuckle. G'wan little baldy feller..... :o) AF > It's funny, y'know, that it wasn't til I typed that on here, *years* after > the event, that I realised what'd caused the Scary Dad thing. And, er, OK [quoted text clipped - 8 lines] > > AF I think I'm turning into scary mum tonight. My twit of a youngest son (age almost 14) has just asked if he can clean the bowl out on the ice cream maker. Silly sod decided to lick the inside of it and stuck his tongue fast to the frozen surface. Luckily he didn't pull it off and waited for mum to come along with warm water and a clip for his ear! Jayne > I think I'm turning into scary mum tonight. My twit of a youngest son (age > almost 14) has just asked if he can clean the bowl out on the ice cream [quoted text clipped - 3 lines] > > Jayne If that'd been me, he'd have had to wait awhile until I stopped laughing...... and probably taking photos too, to send to his mates.... god, kids are entertaining :o) AF > If that'd been me, he'd have had to wait awhile until I stopped > laughing...... and probably taking photos too, to send to his mates.... [quoted text clipped - 4 lines] > > AF LOL - they are aren't they? Jayne > > If that'd been me, he'd have had to wait awhile until I stopped > > laughing...... and probably taking photos too, to send to his mates.... [quoted text clipped - 8 lines] > > Jayne I'm still around folks and am reading, tho not posting much. We have been away for 3 months and at present I am suffering both RA and gut wise. All the best to the old timers. Peter > It's early in the day, so I'll raise a cup of coffee in salute. > Cheers > AF And mine to you. I do not like to post to much here but I do read. I think people get plenty tired about hearing what is said in the USA. I can remember when several of the drugs for inflam.arth. could not be bought in your country and it just plain old POed people for some people to read what they did or did not do for a person,,,, now you have some of your own factories and your system of health gave into the need for the people it serves. So it goes. Harv ><me@privacy.net> wrote >[a right good telling-off] > >I'll take that as a right good telling-off then. well, _i_ enjoyed your post. if we can't be frivolous from time to time, what's the world coming to? >Are you who I think you may be? no, _i'm_ "me". SignatureRobin Fairbairns, Cambridge > >Are you who I think you may be? > > no, _i'm_ "me". Well so you SAY but I don't see any proof........ AF > I'll keep in touch just in case they change their mind again. :-( Hi Your journey sounds very much like mine, back in the late nineties. They queried RA, then rejected it as it didn't show in the blood tests. I was then diagnosed with Fibromyalgia and treated with Amitryptilene tablets, which only made me very tired. After persevering for a year, my hands and feet swelled badly during a holiday abroad and on my return the rheumatologist had them x-rayed again, and after examining me yet again, decided it was RA, - sero-negative RA. Started treatment then with sulfasalazine, which didn't do a lot, then arava, which made me feel ill, then methotrexate which worked to an extent. I then started Enbrel and have stayed that way for 4 years and it is working just fine for me. I know in total it was 2 years before I had a proper diagnosis, and it can be so trying, feeling ill and not having a definitive diagnosis. Jayne >> I'll keep in touch just in case they change their mind again. :-( > [quoted text clipped - 15 lines] > > Jayne Your experience sounds very much like my sisters, 2 years of misdiagnosis followed by an occurance which made it obvious it was SNA - she's now permanently unfit for work... I've been off work for a year at the end of this month with back, neck and shoulder pains, dumbing down of the feelings in my arms/hands (I would say it's due to muscle tension) - blood tests reveal nothing "outside tollerances" as do xrays of lower back and hips and an MRI of neck (they scans revealed wear within tollerances - Doctors seem to like that expression don't they!). So I'm in daily discomfort/pain but I've been signed off now until October so at least they are acknowledging something is wrong but they don't seem in any rush to find out what... Way of the British NHS is that, wait till it gets so bad it requires emergency treatment - unless it's a high profile thing like Cancer or Heart problems. SignatureSean ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Becoming wise is not synonomous with getting older but in the realisation you always have much to learn. *Loving life is never wanting to be anywhere else* *Being in love is 9/10ths being the best of friends* ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ |
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