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Medical Forum / Diseases and Disorders / Arthritis / April 2005

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Sarah Swindell - 24 Mar 2005 00:37 GMT
Hi,

I just thought I'd introduce myself.  I'm Sarah , I'm 32 and I've had RA for
18 months.
Jan Brown - 24 Mar 2005 09:09 GMT
> Hi,
>
> I just thought I'd introduce myself.  I'm Sarah , I'm 32 and I've had RA
> for 18 months.

Good Morning Sarah. Welcome to UPSA. Where do you live?
I'm Janet, 59, living in Farnham, Surrey. I have lots of bionic bits, but I
hear that chocolate will cure my OA, so I just have to keep eating it.......
Janet
Sarah Swindell - 24 Mar 2005 20:20 GMT
Hi Jan,

I live in Derby.  I've only had RA for 18 months - but it's long enough.
I'm pleased I've found this board so I can chat and share tips with fellow
suferers.  I can be quite a lonely world as people just think that Arthritis
is something old people get and they just don't and can't understand the
pain we experience.

I'm married (May 2004) and we're trying for a family which means no drugs
and the pain is worse that I ever imagined - but It'll be worth it.  I get a
bit scared sometimes when I think about having RA and a baby but my husband
is great and helps me with a million and one household chores and never
complains.
>> Hi,
>>
[quoted text clipped - 6 lines]
> it.......
> Janet
Jan Brown - 24 Mar 2005 21:20 GMT
> Hi Jan,
>
[quoted text clipped - 9 lines]
> husband is great and helps me with a million and one household chores and
> never complains.

If you haven't been to a Rheumatologist, Sarah, you should get your GP to
refer you. Also, read the postings on alt.support.arthritis - that's mainly
US based, but they have lots of answers on there. I also take Glucosamine
Sulphate and Cod Liver Oil. If you decide to try those, they're cheaper on
the Internet, but check the strength of the tablets before you buy.

I'm sure others with RA will post here soon
Keep posting
Janet
Sarah Swindell - 24 Mar 2005 22:06 GMT
I am under a rheumatologist - he just keeps teling me to take the celecoxib
and come back in 6 months.  I'm not too happy with them actually and I'm
considering going private - got to save up first though.  We'll have to see
how I get on.
>> Hi Jan,
>>
[quoted text clipped - 22 lines]
> Keep posting
> Janet
me2@dn14.net - 25 Mar 2005 11:03 GMT
>I am under a rheumatologist - he just keeps teling me to take the celecoxib
>and come back in 6 months.  I'm not too happy with them actually and I'm
>considering going private - got to save up first though.  We'll have to see
>how I get on.

Hello Sarah,

I'm Andy, I'm 44 and have  had RA [seroneg] since 1998.
When is your next RD [rheumatologist] appointment?
The reason I ask is you pointed out your nsaid is a cox 2 nsaid
celebrex. Is there a reason for this? ie have you been prescribed a
cox 1&2 nsaid and it hasn't worked or did you just get put on celebrex
18 months ago?
Without wishing to put the frightners on you, you must have seen the
press coverage about cox 2 recently? In short vioxx, celebrex and even
the cox 1&2 naproxen where in the spotlight over possible cardio
[heart attack] side effects.
Quite a lot of people have been back to their RD via GP referal and
been changed to other nsaids [mobic being a popular one].
Anyway, I'm not a RD or medical professional of any kind, so please
don't take this as me giving medical advice, but it may be worth
running by your GP to get it checked out.

On the pregnancy side of things, it has been commonly reported that
*some* ladies with child get a kind of RA remission for the period of
the pregnancy, so that might be something to look forward to.

I'm sure some of the ladies of the group with RA will post soon.

Take care

--
Andy
Sarah Swindell - 25 Mar 2005 22:06 GMT
I went to see mt Rheumatologist on wednesday - to be honest I thought it was
just viox.  I was on that and they took me off it and gave me Celecoxib.
Trip to the GP first thing on tuesday I think!!

Thanks!!

>>I am under a rheumatologist - he just keeps teling me to take the
>>celecoxib
[quoted text clipped - 31 lines]
> --
> Andy
me2@dn14.net - 26 Mar 2005 11:38 GMT
>I went to see mt Rheumatologist on wednesday - to be honest I thought it was
>just viox.  I was on that and they took me off it and gave me Celecoxib.
>Trip to the GP first thing on tuesday I think!!
>
>Thanks!!

Betcha glad you posted here now?
They did with lots of folk at first, then the switched on ones
switched them again to mobic or something else! I'm not having a go at
medical professionals, they are busy folk and I can see how they can
miss stuff. I had to inform my RD about Naproxen, he emailed me back
and thanked me.
If you have adobe acrobat and a printer, go here, second pdf down,
print it off and take it with you, it'll sound better than, "I heard
from this fella on the interweb"
http://medicines.mhra.gov.uk/ourwork/monitorsafequalmed/safetymessages/urgent.ht
m#2005


Is your RA sero pos or sero neg?
Is your RD not considering a dmard, or is he leaving that 'till after
family?

Good luck anyway

--
Andy
Bill - 26 Mar 2005 10:45 GMT
>> Hi,
>>
[quoted text clipped - 6 lines]
> it.......
> Janet

I like it Jan, a cure for OA I must fill a trolley tomorrow when I shop at
Tacos.  Keep your chin up Jan.

Bill
Jan Brown - 26 Mar 2005 15:12 GMT
>> Good Morning Sarah. Welcome to UPSA. Where do you live?
>> I'm Janet, 59, living in Farnham, Surrey. I have lots of bionic bits, but
[quoted text clipped - 6 lines]
>
> Bill

Thanks Bill. It really is a struggle trying to get through a great load of
Belgian chocs, only to be given a huge tray of Ferrero Rocher too. Sigh -
life can be sooooo hard.......
Janet
diclidophora@yahoo.co.uk - 26 Mar 2005 19:27 GMT
Well I wish you all luck with the chocs. I love them too, but
regrettably my determined attempts to cure the RA over 25 years with
this most pleasant therapy has come to nought.

Sarah, I am Pete, rather aged, and appear here occasionally.
I wish you luck with your family and hope that you get the remission
which sometimes comes with pregancy. If you do I hope it lasts forever.
Jayne - 25 Mar 2005 21:54 GMT
> Hi,
>
> I just thought I'd introduce myself.  I'm Sarah , I'm 32 and I've had RA
> for 18 months.
>]
]

Hi Sarah and welcome.

I'm normally around a bit more often, but am resting up at the minute after
a knee replacement.

I'm 43, married and have had RA for 6 years.

Jayne
Jane - 27 Mar 2005 22:43 GMT
Hello Sarah, I have had RA for about 14 years I am 30 ish! You will find
lots of great advice on here so don't be scared to ask.  Whilst pregnant
with both my children I went into remission until they were about 8 weeks
old so hopefully you will have that to look forward to!!
Jane x
> Hi,
>
> I just thought I'd introduce myself.  I'm Sarah , I'm 32 and I've had RA
> for 18 months.
me2@dn14.net - 27 Mar 2005 22:51 GMT
>Hello Sarah, I have had RA for about 14 years I am 30 ish!

Oh, in that case, I'm 29ish! ----- LOL

--
Andy
Sarah Swindell - 28 Mar 2005 18:07 GMT
Hi Andy,

Thanks for your reply!!  14 years and you're only 29 - I thought I'd been
badly done to being diagnosed at 30!!!

>>Hello Sarah, I have had RA for about 14 years I am 30 ish!
>
> Oh, in that case, I'm 29ish! ----- LOL
>
> --
> Andy
me@privacy.net - 28 Mar 2005 20:21 GMT
>Hi Andy,
>
[quoted text clipped - 7 lines]
>> --
>> Andy

Now I,m confused! It's like this Sarah,

I'm actually 44 and have had RA since 1998.

Jane Bestwick said she was 30 ..........ish and for some reason I
thought she was actually older [ my mistake - oops].
They say you should never ask a ladies age!!

Anyway here's a post from 5 years ago which may give away Jane
Bestwick real age on her own account:

From: Jane Bestwick <jane.bestw...@ntlworld.com>

Subject: Re: HAPPY  30th   JANE!!!!!!!!

Date: Fri, 15 Dec 2000 18:09:07 +0000

NNTP-Posting-Date: Fri, 15 Dec 2000 18:08:51 GMT
Organization: ntlworld News Service

Jeff, it's Paula's 30th Birthday not mine, but it is my 31st on
Sunday.
Thanks anyway!
Jane
_____________________________________________________

So she is still 30 ish, and please don't have a go at me, I'm only a
dumb bloke.....
Sandy Morton - 28 Mar 2005 20:26 GMT
> They say you should never ask a ladies age!!

30 is still a girl:-)

Signature

A T (Sandy) Morton
on the Bicycle Island
In the Global Village
http://www.millport.net

Robin Fairbairns - 29 Mar 2005 12:18 GMT
>> They say you should never ask a ladies age!!
>
>30 is still a girl:-)

well, quite.  i used to impose a rule on myself, of "behaving myself"
in respect of anyone younger than my daughter.  but now that 30's well
in the past for her, too, i just tell myself to avoid the students :-)
Signature

Robin (http://www.tex.ac.uk/faq) Fairbairns, Cambridge

Jan Brown - 28 Mar 2005 20:48 GMT
> Anyway here's a post from 5 years ago which may give away Jane
> Bestwick real age on her own account:
[quoted text clipped - 12 lines]
> Thanks anyway!
> Jane

Blimey - is there really someone out there who keeps emails for 5
years??????
Janet
me2@dn14.net - 28 Mar 2005 23:09 GMT
>> Anyway here's a post from 5 years ago which may give away Jane
>> Bestwick real age on her own account:
[quoted text clipped - 16 lines]
>years??????
>Janet

It's called google groups Jan, just keep eating your choccies and I'll
wake you up when the next important post comes along........

--
Andy
Jan Brown - 28 Mar 2005 23:27 GMT
>>Blimey - is there really someone out there who keeps emails for 5
>>years??????
[quoted text clipped - 5 lines]
> --
> Andy

Really Andy, fancy me not knowing about Google groups:):)
Think I'd prefer to watch paint dry than check 'em......
Janet (currently not eating any choccies at all)
Jane - 29 Mar 2005 18:33 GMT
LOL you got me! no keeping our real age from you!
Jane x

>>Hello Sarah, I have had RA for about 14 years I am 30 ish!
>
> Oh, in that case, I'm 29ish! ----- LOL
>
> --
> Andy
me2@dn14.net - 02 Apr 2005 16:24 GMT
>LOL you got me! no keeping our real age from you!
>Jane x

I remember when you were 30 ish your kids liked sclub 7 and even an
old trendy like me knows it's rach stevens and her lax now!
--
Andy
Sarah Swindell - 28 Mar 2005 18:06 GMT
Hi Jane,

I often used to feel so alone - almost as if I were the only person
experiencing problems - particularly in my early 30's.  It's so nice to be
in contact with people who are having similar experiences especially as I
feel a bit scared sometimes at the prospect of being a mother and I just
pray that I'll be able to manage this disease so I can do as much as
possible for my children (I struggle to get my self up the stairs without
having to carry a baby too).  Anyway, here's hoping for successful remission
if and when I get pregnant!!

You'll all have to share your top tips with me!!

> Hello Sarah, I have had RA for about 14 years I am 30 ish! You will find
> lots of great advice on here so don't be scared to ask.  Whilst pregnant
[quoted text clipped - 5 lines]
>> I just thought I'd introduce myself.  I'm Sarah , I'm 32 and I've had RA
>> for 18 months.
 
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