Medical Forum / Diseases and Disorders / Arthritis / October 2004
Just diagnosed with OA
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RightLittleMadam - 14 Oct 2004 18:34 GMT Hello group,
I'm here to introduce myself, and to find some fellow arthritics for comfort/support/advice or just to help me stop fretting.
I'm 27, and since I was a teenager I've had cracking joints and stiff muscles. In the last few years I got chronic pain in my left knee, and I just knew it was arthritis, because there's so much of it in my family history. I also have mild pains in my hands, wrists, neck, lower back, hips and feet. All the classic spots.
Having just assumed it was arthritis for so long, I realised a year ago I hadn't actually had it properly diagnosed. It has taken repeated visits to the doctor to even get him to consider arthritis. He told me over and over I was too young for OA. I even started to believe him, thinking hurray! It's not so bad, then. But the knee still hurt. Finally I went to a different doctor, who sent me for an X-ray, which came back today showing ...*drum roll*.... osteoarthritis. Still the good doc sighed and said 'you're very young for arthritis'.....
Now, as of today, I am officially arthritic. Although being vindicated in my own self-diagnosis left me in the strange position of being briefly pleased, now I'm feeling a bit frightened, or panicky, even. I'm trying to keep it in perspective, but what lies ahead? Immobility, joint replacements, pain and sleepless nights? A walking stick? My dad manages his arthritis very well but he's always in pain. What does it mean being diagnosed with OA in your 20s?
What sort of age is everyone else on this forum, and how old were you all when you were diagnosed?
RightLittleMadam
Peter James - 14 Oct 2004 20:18 GMT >Hello group, > >I'm here to introduce myself, and to find some fellow arthritics for >comfort/support/advice or just to help me stop fretting. >snipped
>What sort of age is everyone else on this forum, and how old were you >all when you were diagnosed? I'm now 66 and was diagnosed with OA when I was 50. The first ten years after diagnosis were very difficult with a lot of pain. But it has since quietened down, and other than when I play golf or work in the garden, I don't get too much pain. Or is it that I have learnt to treat and control my own illness? I do consider myself "lucky" in having OA rather than RA. The medication I use is purely pain killers in the form of Co-Proxamol, I can't tolerate any of the NOSAIDS. All in all, I suppose I'm lucky. Especially when I hear and read some of the terrible horror stories that are related in this group I know and realise just how lucky I am. One thing I do, at home, is to use a Traction Device that I bought from a supplier of Physio Supplies. I have OA in the neck. It's a real "god given" device and a real pain reliever. It cost me all of £10 and is worth every penny. The other thing I use is a Tens. That cost me nearly £50, but again worth every penny. Plus of course my very own comfort blanket "My cervical collar". And to hell with the Physiotherapist who sniffily told me I should manage without it, as it was not considered the best treatment. I told her to manage her Arthritis the way she wanted to, and to leave me to manage mine the way I wanted to. Especially in view of the 6 month wait for Physio treatment at the local hospital. Am I correct in thinking, at least from my own perspective, that OA is easier to self-manage that RA? Whatever, you are among friends here, and we've all been where you are now. Struggling to come to terms with "Arthur". Keep posting and we'll all swap notes and life-styles. Good luck. - Peter James Remove AT to reply
P F James
Jayne - 14 Oct 2004 21:29 GMT >>Hello group, >> [quoted text clipped - 12 lines] > medication I use is purely pain killers in the form of Co-Proxamol, I > can't tolerate any of the NOSAIDS. All in all, I suppose I'm lucky. snipped
That is funny Peter - I think the opposite of that! I feel lucky to have RA as there seems to be more actual treatments and research! Odd how we think isn't it?
Jayne
Jayne - 14 Oct 2004 21:28 GMT snipped
> Now, as of today, I am officially arthritic. Although being vindicated in > my own self-diagnosis left me in the strange position of being briefly [quoted text clipped - 8 lines] > > RightLittleMadam Hi Madam (?) and welcome.
I am 42 and have had arthritis for 6 years. I have OA in my knees, and RA elsewhere - is your problem purely OA and was it a rheumatologist that you saw? I'm on the list for a left knee replacement, followed sometime after by a right knee.
As far as age goes, some forms of arthritis can strike babies - I was talking to a mum the other day whose son is 8 and is suffering badly, poor lad.
Unfortunately it seems that there are fewer treatments as such to help OA than there are other forms of arthritis :((
Janet posts here and her problem is OA. She will no doubt be along to say hi (she's just had a hip replacement).
Jayne
Elizabeth - 14 Oct 2004 22:20 GMT > snipped >> Now, as of today, I am officially arthritic. Although being vindicated in [quoted text clipped - 28 lines] > > Jayne Hi
I'm 46 and don't post here very often, I was diagnosed as having OA in June, after an x-ray of my knee, but it had been a problem for some time before that. My knee had been very stiff and painful in the winter but improved with the warmer weather. I've had physio for the knee and I've been given exercises to do, and advice to stay active. There are some good websites on arthritis, such as arthritis care and the arthritis research council - I've had a lot of good info from them
http://www.arthritiscare.org.uk/home/index.cfm?region=uk http://www.arc.org.uk/about_arth/patpubs.asp
Liz
Jan Brown - 14 Oct 2004 23:54 GMT > Janet posts here and her problem is OA. She will no doubt be along to > say hi (she's just had a hip replacement). > > Jayne No wonder my ears were burning when I was in the pub, Jayne!
Hello RLM, nice to hear from you, even though it's sad you have to be here. You'll certainly find lots of advice and support - and sometimes you get some jolly good jokes too. Personally, I prefer chocolate, but there's not a lot of that about on this group at the moment, said she, subtly.........................
I'm 59 and first got OA in my mid 20s and probably in the same way as you. Feeling uncomfortable after sitting for a longish time, and all the cracking joints - they call that crepitus. My OA runs in the family too. I had a right hip replacement in 1987 and the OA has been continuous and worsening since that date. I've now had my left knee done three times, plus both shoulders and am currently convalescing from a left hip replacement. Most of my new joints work OK, but some of the operations have been a little bit problematical, to say the least. So feel free to ask any questions.
Yes, you are young to be diagnosed with it, but it's possible to have arthritis in your teens, so maybe we've both been lucky. You'll have to put today down as the first day of the rest of your arthritic life, but it doesn't all have to be bad. OA takes lots of different forms. Some have surgery, some don't and some say a dramatic change of diet can help (if you have the willpower!). I take Voltarol (a non-steroid anti-inflammatory drug or NSAID for short), plus prescribed painkillers, and I take Cod Liver Oil and Glucosamine Sulphate, which I buy on the Internet. I notice the difference when I stop taking them, anyway, so they must be doing me good.
Andy will probably nag you to go and see a Rhuematologist, as most of us here have done at one time or another. As for what lies ahead for you, how long is a piece of string? No one person will have the same symptoms as another. All you can do is what's best for you, and for what makes your life bearable and enjoyable. I would advise you to see your doctor regularly, to try and keep reasonably fit and painfree, and don't panic!!! A surgeon once told me that when the pain is so bad at night it affects your sleep, that's the time to get something done - ie, get a referral to an Orthopaedic surgeon.
Life doesn't stop just because you have OA. I've had some super holidays over the past 15 - 20 years, I go to Paris fairly often, I even get tipsy and do stupid things, before the others tell you what I get up to!
Whereabouts in UK are you? Anyway, do keep posting, chatting, asking questions and telling us how you're doing, and if you've got any chocolate, pass some over, will you? Janet
Sandy Morton - 15 Oct 2004 00:58 GMT > What sort of age is everyone else on this forum, and how old were > you all when you were diagnosed? I think that I am a professional geriatric but what i think I could do with a right little madam who is but a child must remain as a subject for debate:-))
Hang in here kid - most of us have had problems -some mental and some physical. You will get a lot of practical help from some really nice and caring people.
 Signature A T (Sandy) Morton on the Bicycle Island In the Global Village http://www.millport.net
RightLittleMadam - 15 Oct 2004 12:30 GMT Thanks all for your welcome.
Peter - what the blazes is a Tens? And a cervical collar doesn't sound like something made for men...? No wonder people are telling you you shouldn't need it! Jayne - compared to the little boy you mentioned I'm lucky. The pain doesn't really stop me doing anything, apart from running and the odd yoga posture. I don't know what sort of doctor diagnosed my knee - someone at the hospital where I got X-rayed just sent a report to my GP.
Jan - I *did* have loads of chocolate, but, um, it's gone. I read all the postings on the Arthritis Care website of sufferers swearing by a sugar-free diet, and I, er, disposed of my stash. (yum) I hope the new hip settles in all right, by the way. Oh, and I'm in Yorkshire I'm going to make the most of my early diagnosis to get as fit and healthy as I can from now on. I already go to the gym, swim, and do yoga and pilates plus walking at the weekend - so I'll stick to more of the same. But I work in a very badly-equipped office - time to harangue the boss for a new chair, methinks! I should probably lose a few stone too, somehow. And I've been taking cod liver oil and glucosamine since i suspected arthritis about a year ago. Anybody use those microwavable wheat bags?
RLMx By the way, my nickname is what I have been branded by my family since the age of around four.
Peter James - 15 Oct 2004 19:25 GMT >Thanks all for your welcome. > >Peter - what the blazes is a Tens? And a cervical collar doesn't sound >like something made for men...? No wonder people are telling you you >shouldn't need it! Tens (Transcutaneous Electrical Nerve Stimulation ) is an electrical machine, about the size of a small mobile phone that stimulates the nerve endings in a way that releases endomorphins that control pain. The machine is worn on a belt or in the pocket, and the stimuli is directed to the pain site by small sticky pads worn on the skin above the source of the pain. They are powered by a PP9 battery or similar. I bought mine from a supplier called Physio Med, have a look at their site at http://www.physio-med.com/ They are available free of VAT, and mine cost me about £50 some five years ago. They don't work for everyone, but they can bring relief in pain caused by arthritis and similar complaints, and I am told even for the relief of pain in cancer patients. Your local PhysioTherapy Department will most likely have them and can arrange for you to try one out before buying.
Concise Oxford Dictionary.
Cervical of neck: of cervix
Cervix (Anat) neck: neck like structure, especially that of womb.
A cervical collar is a soft broad collar about 3" to 4" deep that positions the neck, and is very good for painful neck pains. I think it causes the patient to hold his or her neck slightly higher and improves the deportment of the sufferer. Mine is, as I said, my comfort blanket. It's the first thing I reach for when I experience pain. I also sleep in it, and use an orthopaedic pillow.
>snipped. Best wishes,
Peter - Peter James Remove AT to reply
P F James
VibratingBunFacedGoat - 16 Oct 2004 02:11 GMT RLM,
Hi. Sorry to hear that you have OA. If it's any consolation, you're not alone in developing it early in life. I 'got' it in both knees when I was 21 due to having had knee problems when I was a teenager. I am 30 now.
Are you on any medication like anti-inflammatories? They can help a great deal. IMHO, it's a v. good idea to keep active.
VBFG
> Hello group, > [quoted text clipped - 29 lines] > > RightLittleMadam
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