I just had an appointment with my rheumatologist, who is a very nice lady,
and it was a 3-4 month follow up appointment from the last one. Last time I
saw her she said she'd like to see me again in 3 months and for some reason
I really begrudged that, and asked if it could be 6 months. No, she said,
3 - and get hand and feet x-rays before I come to the appointment.
Today she went through the x-rays with me (feet good, hands showing some
bone erosions but nothing too bad, and one bent little finger), and
suggested referring me to OT and physio for some hand exercise reminders
etc, and I almost turned into Kevin the surly teenager! I really didn't
want to go.
Anyway, this rambling is really just an illustration of just how, when you
are feeling quite well, and have few problems, you really forget what it is
like to feel truly horrible, ill and be hurting. 8 years ago I would have
begged for 3 monthly appointments and took all the help I could get. The
trouble with me now is that I am too well (thanks to treatments) and a walk
back through the waiting room reminded me of just how some people suffer
with arthritis. There were a couple of much older people who never had
access to treatments that I have today, who were so damaged it sobered me
quite quickly.
Sorry for the ramble.
Jayne
Jayne - 15 Apr 2008 17:06 GMT
Sorry people - shocking use of the English language in the subject line of
my last post!!
Jayne
Alan Fisher - 15 Apr 2008 19:29 GMT
> Sorry people - shocking use of the English language in the subject line of
> my last post!!
>
> Jayne
Forgiven. Have to say you're spot-on, too: my rheumy's making veiled
threats about somebody stopping my meds if I don't give more blood tests.
It's actually fair comment, I should - but my prob is that I work in a
different health authority from the one I reside in, and generally I can't
get to a test centre before they close without ducking out of work early.
Likewise I tend to cancel three appointments in every five. You're right.
I ought to be ashamed of myself (for even more reasons than previously).
AF
Splodge - 16 Apr 2008 07:58 GMT
> Anyway, this rambling is really just an illustration of just how, when you
> are feeling quite well, and have few problems, you really forget what it
[quoted text clipped - 7 lines]
>
> Sorry for the ramble.
You seem to have improved since you started taking Enbrel, Jayne, so it's
nice to know how much better you are nowadays. And nice to see you in the
flesh last Saturday too - you hadn't changed a bit since Oxford lol
If you feel ungrateful Jayne, then I must do too sometimes. It's very rare
that I feel down cos of all my problems. I have one or two friends/relatives
who are much worse off than me so it puts things into perspective.
Splodge
Jayne@w*r* - 16 Apr 2008 10:32 GMT
> You seem to have improved since you started taking Enbrel, Jayne, so it's
> nice to know how much better you are nowadays. And nice to see you in the
[quoted text clipped - 6 lines]
>
> Splodge
I know what you mean - I felt like telling the doctor to save her energies
for those who need it more than me! Mind you, without the treatment I
wouldn't be so well.
It was good to see you too last weekend - very pleased I went.
Jayne
Robin Fairbairns - 20 Apr 2008 11:18 GMT
>I just had an appointment with my rheumatologist, who is a very nice lady,
>and it was a 3-4 month follow up appointment from the last one. Last time I
[quoted text clipped - 7 lines]
>etc, and I almost turned into Kevin the surly teenager! I really didn't
>want to go.
i don't know about that, but i do have a rather odd attitude to my
rheumy. you'll remember i said i missed an appointment when in
hospital on another matter -- they rescheduled the rescheduled
appointment yesterday. and i thought "just typical"; it seems they
can't schedule for how many staff they're going to have, two months
into the future.
but of course, it's entirely reasonable: i only go for a review of my
medications, and confirmation that i stay in good shape.
>Sorry for the ramble.
not at all. it's all part of the rich pageant of life for those of us
with arthritis.

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Robin Fairbairns, Cambridge