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Medical Forum / Diseases and Disorders / Tinnitus / July 2004

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Three times this month

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Ken McDonald - 20 Jul 2004 06:21 GMT
Hi everyone,

Well... I've just returned from the hospital, yet again. It's 12:00am. My T
increased around 8:30 tonight and soon after that, it increased again, then
stabbing chest pains. These chest pains occur in the matter of a snap of a
finger, but after a while my chest begins to ache and I feel like someone is
stepping on my chest. There are times when my chest pulls in and I can't
breath very well. This is only for a second or two. They did the routine
tests, blood pressure, listen, and an EKG while I'm going through this and
everything is fine. While I'm in the hospital, the pressure in my ears
increases to the point of pain in a matter of thirty seconds or so. And then
it subsides a bit, and then it happens again. The doctor tells me he can't
treat the meniere's. The chest pains are due to myoclonic jerks. The doctor
tells me he can't treat that either.

The T is constant, but is always changing. There is the T in the center and
each ear has it's own. There are times when the T abruptly stops and there
is no sound, but it begins in a matter of seconds at a low frequency and
slowly builds up to it's normal high pitched "chirping crickets". When it
stops like this, it takes my breath away and scares me. I can't stop
noticing this constant ever changing T. My ears have ruined my life because
I don't know what is happening to me and what is causing it. These attacks
always begin with an increase in T though. And then the muscle jerks, and
then the dizzies, and then the pressure in my ears and then the pain in my
ears.

When I try to go to sleep, my T is very loud and changing like a Morse code.
There is a certain T that is stopping and starting very quickly that is
mixed in with the rest. I've tried a radio and other sounds to mask my T,
but if I hear a change in the sound from the radio at the right (wrong) time
just as I'm about to fall asleep, it causes my T to increase so loud and
fast, it sounds like an explosion and basically wakes me up for another
hour. It stuns me. This can happen once a night, or many times until it's
time to get up. There is a myoclonic jerk each time too. It used to be the
muscles in my lower back that would violently contract within the snap of a
finger, but it has now settled in my chest for the past year.

When I eat, the volume/frequency increases when I bite down on food and
chew. There are times when I stop eating because it just gets to be too
much. I don't like to eat when there is no background noise. Even that
doesn't help anymore because my T is so loud that "it" masks out speech or
sounds from the room like the TV, the air conditioner and the fans in my
computer. Ha... the fans in my computer. One of my fans makes a certain low
frequency hum that I don't normally hear. When I'm having one of these
attacks, I can hear it. It was scaring the heck out of me during these
attacks because it was different. And then during an attack I noticed that
when I moved my head by turning around, the noise went away. The sudden
changes in my hearing scares me when I hear something that I can't
distinguish between my T and normal noises.

I've been telling this to doctors for years as my T has been with me since
1994. No one has listened to me. My ears are driving me crazy. My balance is
shot too.

I had a decent job at one time, even was granted a patent for a machine that
I designed the electronics for. There was a time when I was exploding with
creativity in the design of electronic control systems. Now I don't leave
the house.

I know some of this is off topic, but my T is ruining my life along with the
other problems.

I really needed to blow off this steam and hope it's appropriate for this
group.

Thanks,

Ken McDonald
Susan - 20 Jul 2004 16:08 GMT
>Well... I've just returned from the hospital, yet again. It's 12:00am. My T
>increased around 8:30 tonight and soon after that, it increased again, then
[quoted text clipped - 8 lines]
>treat the meniere's. The chest pains are due to myoclonic jerks. The doctor
>tells me he can't treat that either.

It could be very worth your while to have a complete medical evaluation,
particularly with attention to infectious diseases, especially tick borne
diseases.

They cause tinnitus, heart block, tachycardia, you name it.

Susan
francispoon - 23 Jul 2004 04:41 GMT
Hi, Ken

Obviously the doctors you have visited have not been of help.  Most
doctors do NOT know how to treat ear patients.  In the initial period
of my tinnitus suffering, i went to see over 15 doctors and very few
of them know how to fix my ill.

It does not take much high-tech knowledge to treat meniere disease but
it takes doctors who have the experience of diagnosing many meniere
symptoms to do it.

Why not talk to Murray from the ENT Consultant in this newsgroup?  He
has been around and has been listening to the description of various
kinds of symptoms from tinnitus patients all over the world including
someone like myself from China.  So why look so far?  He is the only
licensed doc in this group while the rest are a bunch of wild
guessers.

Just send him an email and make an appointment with him, and
afterwards pop into a jet or greyhound or a car(if you could still
drive) and you will be in business.

FP
===========================

> Hi everyone,
>
[quoted text clipped - 64 lines]
>
> Ken McDonald
Ken McDonald - 25 Jul 2004 03:46 GMT
Thanks for the response. I believe I have scared Dr. Murray away from
responding to any of my posts. I can't blame him. Whenever I have these so
called "attacks", I'm desperate for a doctor to tell me what's wrong. These
so called "attacks" scare the hell out of me so much that they send me into
a panic attack. It's impossible to ignore the overwhelming sense that
something is terribly wrong. My body just seems to be out of control and no
matter what I tell myself, I can not stop the panic attack from occurring. I
am using relaxation techniques to avert this problem and it  isn't helping
yet. I have allowed this problem to ruin my life. Recently, I found a mental
health clinic that is helping me to cope and get back on my feet. I just
wish I was able to do something about this overwhelming fear. These attacks
always begins with an increase of my T. The change in my T may send me over
the edge. My T is always changing, but certain sounds that I hear will do
it. Until I know the source of the sound, it has the potential of sending me
into a panic attack. This is disabling. Oh yes, I'm in a brain fog for at
least a week after and sometimes more.

Ken McDonald

> Hi, Ken
>
[quoted text clipped - 89 lines]
> >
> > Ken McDonald
francispoon - 26 Jul 2004 04:27 GMT
> Thanks for the response. I believe I have scared Dr. Murray away from
> responding to any of my posts.

Doctors don;t usually guess online or your problem may need more than
just online description.

Without reference to my past experience of suffering from T, I would
strongly suggest you to visit a doctor who has rich experience in
treating ear problems and in particular tinnitus.  You need _medical_
attention to take care of your somatic discomfort.  Once the latter is
gone, habituation to the sound would become a natural extension of the
daily routines 'over time'.

Anyone who tells you that you could 'meditate away' your somatic
discomfort is in my view a quack!  I would not want to join any TRT or
meditation program if the organizer does not know something about
medicine.  I would strongly urge you to visit an experienced doctor
'in this area'.  Afterwards, you are welcomed to come back and
entertain yourself with the rest of us who are basically a bunch of
jokers and wild guessers.

FP
===========================================

I can't blame him. Whenever I have these so
> called "attacks", I'm desperate for a doctor to tell me what's wrong. These
> so called "attacks" scare the hell out of me so much that they send me into
[quoted text clipped - 138 lines]
> > >
> > > Ken McDonald

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