Medical Forum / Diseases and Disorders / Tinnitus / July 2004
another question
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Jennifer Bell - 16 Jul 2004 12:44 GMT sorry guys , just another question, is there anyone here who doesnt know what has caused their T? I still have no idea what caused mine, just apparantly it is not from noise exposure, One DR suggested a form of menieres disease that didnt make u dizzy, the neurologist told me I didnt have menieres. another Dr also said maybe I had a blood clot...it would be nice to know.
Patty - 16 Jul 2004 15:28 GMT > sorry guys , just another question, is there anyone here who doesnt know > what has caused their T? > I still have no idea what caused mine, just apparantly it is not from noise > exposure, One DR suggested a form of menieres disease that didnt make u > dizzy, the neurologist told me I didnt have menieres. > another Dr also said maybe I had a blood clot...it would be nice to know. No, I don't know what caused my T. After reading all of your symptoms, I am thankful I only hear *one* high frequency sound in *one* ear...it never varies...the only time I don't hear it is when I'm in the shower. It agrravates the hell out of me sometimes, but I'm learning to live with it. YES JENNY...if you have a cerebral hematoma, that would be a very good thing to know. ~Patty~
Jennifer Bell - 16 Jul 2004 15:42 GMT YES JENNY...if you have a cerebral hematoma, that would be a very good thing
>to know He said I may have had a blood clot but it would be long disolved by now..I am just so frustrated, I just would like some answers, but there doesnt seem to be any.
>> sorry guys , just another question, is there anyone here who doesnt know >> what has caused their T? [quoted text clipped - 11 lines] >to know. >~Patty~ Patty - 16 Jul 2004 16:23 GMT > YES JENNY...if you have a cerebral hematoma, that would be a very good thing > >to know > > He said I may have had a blood clot but it would be long disolved by now..I > am just so frustrated, I just would like some answers, but there doesnt seem > to be any. Frustration will only exacerbate your tinnitus. However, I know how frustrating it can be, especially since there are no definite answers. It's very easy to think, "I'm going lose my mind"...or "I can't stand it any more". I'll be the first to tell you that I don't like it, I feel like my life has been invaded by an unwelcome intruder, and it makes me mad because I have always been of the belief that if there is something wrong....FIX IT! There in lies the problem....I Can't Fix It. My internist used me as a guinea pig, trying various medications, just to see if they would decrease my T. I finally said, "Enough of this..I'm not trying any more of your pills." I really felt like an idiot when he admitted he didn't know enough about tinnitus to be advising me and would *research* it for me. I felt he should have just admitted his limitations at the beginning. But, that's the nature of most Drs....they don't want to admit they can't help you. As many people on this newsgroup will tell you, the most important thing is acceptance. When you are able to accept the fact that there is no cure, then you can start doing things for yourself to alleviate the anxiety. Keeping active will help ... as will having a rich sound environment. Get out and enjoy the sounds of nature if you can. Exercise will help. I'm still in the *learning process* myself..so I understand where you are coming from. I may never get to the place others here have reached...being able to *tune it out*...as I may be one that is SUPER SOUND SENSITIVE. But, I refuse to give up and remain hopeful that it will happen for me too. Good luck to you Jenny. ~Patty~
Jennifer Bell - 16 Jul 2004 16:34 GMT Thanks patty,the main reason I cant accdpt it is because a Dr said to me that "True tinnitus" is always the same sound..like what you described you have..he said that my tinntus is porobabkly caused by fluid in my tubes, but all the ENts said no..and the neurologist said it probably is from my eustachion tubes and it wouldnt show on the MRI. I'm scared very scared, I have panic attacks and becase mine chages so often I dont know what is going to happen next and when its going to happen, I have this image of a blood clot in there and it escapes and I die, I ahve so many unreal fears its horrible, I have been seeing a psychologist for the last few months, but hes not really much help. Thanks for listening patty, and good luck to you too. Jenny Patty wrote in message ...
>> YES JENNY...if you have a cerebral hematoma, that would be a very good >thing [quoted text clipped - 29 lines] >you Jenny. >~Patty~ Elly Byrne - 16 Jul 2004 21:16 GMT >the main reason I cant accdpt it is because a Dr said to me >that "True tinnitus" is always the same sound He has no idea. People hear lots of different things.
From the a.s.t newsgroup (long ago)
(The fact is ... that the dB level of the tinnitus (once it is established that a person does have tinnitus) has nothing to do with how much suffering/distress/incapacity/disability a person has from tinnitus.)
All the time, I hear:
high-pitched hissing birds chirping chains clanking sticks scraping a little bell going ding, da-ding, dingy ding tea kettle whistling water running squirrels scolding a telephone ringing in the distance once in a while, a loud CLANNNNG!
What do you hear? Wow! That's a lot of noise. Due to middle ear problems, I have a large, roaring waterfall, with a truck idling nearby, and someone at the top of the waterfall playing a high "E" on a flute.
Crickets chirping, electrical power lines, water runnin,
I hear a very high pitched hissing, and as mine is pulsatile, it's synchronous with my heart beat.
In the past couple of months, what I call a "new and improved" sound has started appearing in the right ear. I call it the "dog whistle." It's a VERY high pitch tone, obnoxious, sometimes wavering in pitch. Like when you stand too close to an old TV. Can be particularly irritating.
Well, in my right ear a high pitched hiss, certainly, varying in volume. Sometimes a melody or a recurring rhytm. Clangs i don't have but occasionally a very note which lasts for a second or so.
In my left ear? Thank God, there only an occasional low volume soft whistle, which usually fades into the background.
I hear : crickets ringing buzzing and the worse of all the sound of wind blowing on high tension wires. The crickets are there most of the time but the others add there sounds far to often for me,
My "T" sounds like the sound of a teapot and is sometimes combined along with a narrow band hi pitched squeal. I "hear" a very low-frequency "whooshing" like the blades of a helicopter, then it becomes a steady bass hummmm like a truck idling outside my bedroom. Occurs every night, and during the day when I'm stressed or tired (which is often, because I didn't sleep well the night before!).
Tinnitus is a pain in the neck Elly's Tinnitus Resources http://eebee.net/
For email: elly at eebee.cjb.net
Jerry G. - 17 Jul 2004 08:10 GMT I thought I had it bad! I hear a noise like a steady high pitched waterfall. If you are hearing different sounds, and they are changing, this may mean that something is changing in your system.
It is hard for the doctors to know the specifics all the time. I am told that there are over 50 known basic reasons for tinnitus. Some are even neurological. Excessive high blood pressure, and other critical factors can even cause tinnitus.
This site has some very good information about the causes. http://www.holistic-online.com/Remedies/Ear/tin_causes.htm
 Signature Jerry G. ==========================
"Jennifer Bell" <starwood@iprimus.com.au> wrote:
>the main reason I cant accdpt it is because a Dr said to me >that "True tinnitus" is always the same sound He has no idea. People hear lots of different things.
From the a.s.t newsgroup (long ago)
(The fact is ... that the dB level of the tinnitus (once it is established that a person does have tinnitus) has nothing to do with how much suffering/distress/incapacity/disability a person has from tinnitus.)
All the time, I hear:
high-pitched hissing birds chirping chains clanking sticks scraping a little bell going ding, da-ding, dingy ding tea kettle whistling water running squirrels scolding a telephone ringing in the distance once in a while, a loud CLANNNNG!
What do you hear? Wow! That's a lot of noise. Due to middle ear problems, I have a large, roaring waterfall, with a truck idling nearby, and someone at the top of the waterfall playing a high "E" on a flute.
Crickets chirping, electrical power lines, water runnin,
I hear a very high pitched hissing, and as mine is pulsatile, it's synchronous with my heart beat.
In the past couple of months, what I call a "new and improved" sound has started appearing in the right ear. I call it the "dog whistle." It's a VERY high pitch tone, obnoxious, sometimes wavering in pitch. Like when you stand too close to an old TV. Can be particularly irritating.
Well, in my right ear a high pitched hiss, certainly, varying in volume. Sometimes a melody or a recurring rhytm. Clangs i don't have but occasionally a very note which lasts for a second or so.
In my left ear? Thank God, there only an occasional low volume soft whistle, which usually fades into the background.
I hear : crickets ringing buzzing and the worse of all the sound of wind blowing on high tension wires. The crickets are there most of the time but the others add there sounds far to often for me,
My "T" sounds like the sound of a teapot and is sometimes combined along with a narrow band hi pitched squeal. I "hear" a very low-frequency "whooshing" like the blades of a helicopter, then it becomes a steady bass hummmm like a truck idling outside my bedroom. Occurs every night, and during the day when I'm stressed or tired (which is often, because I didn't sleep well the night before!).
Tinnitus is a pain in the neck Elly's Tinnitus Resources http://eebee.net/
For email: elly at eebee.cjb.net
Susan - 17 Jul 2004 02:54 GMT >Thanks patty,the main reason I cant accdpt it is because a Dr said to me >that "True tinnitus" is always the same sound. LOL. I wonder if that doc has ever actually spoken to anyone with "true" tinnitus. It's a whole variety of sounds at different times, sometimes all at once.
Susan
PaulS - 17 Jul 2004 04:49 GMT "Susan " <sufein@aol.comnospam> wrote in message :
> LOL. I wonder if that doc has ever actually spoken to anyone with "true" > tinnitus. > It's a whole variety of sounds at different times, sometimes all at once. Ditto that Susan!
Jennifer, if your doc "really" said that, find another one. More people with tinnitus have variable and mixed sounds than merely a constant tonal sound.
Contact the American tinnitus Association (http://www.ata.org). They have a research databank catergorizing tinnitus by sounds, loudness, one ear or two, wtc.
PaulS
Jerry G. - 17 Jul 2004 08:27 GMT I would not worry so much about having a blood clot, until they know for sure, and you are properly advised. If you did have a clot, maybe you would be having much more severe problems from it. Most of the time, clots can be cleared once they confirm them. I would let the doctors determine the possibility of a chance of clotting by analysing your blood samples. From what I have been told, if the LDL and HDL ratios are good and the triglicerides are in spec, there is a lesser chance of a clot. There are also some other factors involved as well. I am not an expert in this aspect to properly advise you. My opinion is based on my personal experience.
I found that keeping a healthy weight, and doing a lot of exercise reduced my tinnitus by a lot. This takes a full life style change to accomplish. I was working out and was very active when I was younger. Then for a number of years I let myself go. I got back in to working out several times a day and going on a very strict diet. I have been back in to this exercise program for about 4 years now. It did a big transformation in my life.
When working out, it is best to do it under a supervised program if you are not knowledgeable about it. See your doctor before doing any type of exercise program. The changes are not instant. It can take a number of months to see any small changes taking place. Once you take this up, it has to be take like a life long religion. My high blood pressure went away, and I got back in to very good physical condition. I lost over 55 lbs in the interim of this.
The doctor was right. Sometimes a proper change of lifestyle can make big improvements, and lower the risks of problems. My tinnitus is mainly caused by a neurological problem, but it was also aggravated from high blood pressure. I still have some tinnitus, and it may not go completely away. I hope one day I will know what silence sounds like, but this may never happen to me.
 Signature Jerry G. =====
Thanks patty,the main reason I cant accdpt it is because a Dr said to me that "True tinnitus" is always the same sound..like what you described you have..he said that my tinntus is porobabkly caused by fluid in my tubes, but all the ENts said no..and the neurologist said it probably is from my eustachion tubes and it wouldnt show on the MRI. I'm scared very scared, I have panic attacks and becase mine chages so often I dont know what is going to happen next and when its going to happen, I have this image of a blood clot in there and it escapes and I die, I ahve so many unreal fears its horrible, I have been seeing a psychologist for the last few months, but hes not really much help. Thanks for listening patty, and good luck to you too. Jenny Patty wrote in message ...
>> YES JENNY...if you have a cerebral hematoma, that would be a very good >thing [quoted text clipped - 7 lines] >Frustration will only exacerbate your tinnitus. However, I know how >frustrating it can be, especially since there are no definite answers. It's
>very easy to think, "I'm going lose my mind"...or "I can't stand it any >more". I'll be the first to tell you that I don't like it, I feel like my >life has been invaded by an unwelcome intruder, and it makes me mad because >I have always been of the belief that if there is something wrong....FIX IT!
>There in lies the problem....I Can't Fix It. My internist used me as a >guinea pig, trying various medications, just to see if they would decrease [quoted text clipped - 9 lines] >out and enjoy the sounds of nature if you can. Exercise will help. I'm >still in the *learning process* myself..so I understand where you are coming
>from. I may never get to the place others here have reached...being able to >*tune it out*...as I may be one that is SUPER SOUND SENSITIVE. But, I refuse
>to give up and remain hopeful that it will happen for me too. Good luck to >you Jenny. >~Patty~ Jim Chinnis - 16 Jul 2004 17:17 GMT "Jennifer Bell" <starwood@iprimus.com.au> wrote in part:
>sorry guys , just another question, is there anyone here who doesnt know >what has caused their T? >I still have no idea what caused mine, just apparantly it is not from noise >exposure, One DR suggested a form of menieres disease that didnt make u >dizzy, the neurologist told me I didnt have menieres. >another Dr also said maybe I had a blood clot...it would be nice to know. According to a large database at OHSU, most people don't know, even after a careful review.
I don't.
 Signature Jim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG
Patrick Hennessey - 16 Jul 2004 19:29 GMT Have any of you new T suffers tried medications? See your doctor. There are a number of medicines that either stop T or help cope with the symptoms.
Patrick Hennessey
Patty - 16 Jul 2004 21:11 GMT > Have any of you new T suffers tried medications? See your doctor. There are > a number of medicines that either stop T or help cope with the symptoms. > > Patrick Hennessey Really? I have not heard of this miracle medication that *stops* tinnitus. There are many medications that will produce a drud induced stupor, thus making one not care if they hear the T. Would you be so kind as to share your information with us? ~Patty~
Patty - 16 Jul 2004 21:13 GMT > > Have any of you new T suffers tried medications? See your doctor. There > are [quoted text clipped - 7 lines] > your information with us? > ~Patty~ Susan - 17 Jul 2004 02:54 GMT >There are many medications that will produce a drud induced stupor, thus >making one not care if they hear the T. Actually, Xanax can be taken at non stupor inducing levels to very good effect.
Some folks here have been on it for years.
Susan
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