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Medical Forum / Diseases and Disorders / Tinnitus / July 2004Vertigo at Night
I havent posted in quite a while! I have had tinnitus since 1992 and have finally learned to live with it and get on with things. However something new has popped up. In 2002 I developed, right before bedtime, vertigo. The room was spinning. Never having this before, I went to sleep, hoping it would be gone in the morning. Well, it wasnt. I remember having to hang onto the sides of the shower so I wouldnt fall down. Fortunately it eased up after breakfast. Then nothing until about a month ago. Again, at night..I woke up and the room was spinning. I almost fell down getting out of bed and had to steady myself..it's really weird how it can literally knock you over. Anyway that cleared up before morning, and then last night there it was again. The tinnitus doesn't change when this happens. I also should note that very occasionally at work, while sitting at my desk, I would suddenly have to grab onto the desk because it felt everything was about to fall over..sort of like the start of vertigo, but it wouldnt start. My mom said this used to happen to her at work as well! One of the yuckier things about this is the lingering nausea that you get. I understand there are crystals that float around and land on the inner ear hairs, and that improper movement can cause the sensation of instability and vertigo. I am 37 and in otherwise good health, but I doubt my inner ears are in the most perfect working condition! Anyone else with simular experiences? It sounds very much like menieres disease. CarGirl wrote in message <62eb5862.0407160748.7337256a@posting.google.com>... >I havent posted in quite a while! I have had tinnitus since 1992 and >have finally learned to live with it and get on with things. However [quoted text clipped - 21 lines] >in the most perfect working condition! Anyone else with simular >experiences? red_tango@excite.com (CarGirl) wrote in part: >I havent posted in quite a while! I have had tinnitus since 1992 and >have finally learned to live with it and get on with things. However [quoted text clipped - 21 lines] >in the most perfect working condition! Anyone else with simular >experiences? If your vertigo is due to the crystals (otoconia) having become dislodged, there is a simple treatment that works very well for most people. It involses moving the head through a series of turns designed to trap the loose crystals in a place where they will not cause vertigo. I suggest you see an otologist.  SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG Vertigo at Night Group: alt.support.tinnitus Date: Fri, Jul 16, 2004, 8:48am From: red_tango@excite.com (CarGirl) I havent posted in quite a while! I have had tinnitus since 1992 and have finally learned to live with it and get on with things. However something new has popped up. In 2002 I developed, right before bedtime, vertigo. The room was spinning. Never having this before, I went to sleep, hoping it would be gone in the morning. Well, it wasnt. I remember having to hang onto the sides of the shower so I wouldnt fall down. Fortunately it eased up after breakfast. Then nothing until about a month ago. Again, at night..I woke up and the room was spinning. I almost fell down getting out of bed and had to steady myself..it's really weird how it can literally knock you over. Anyway that cleared up before morning, and then last night there it was again. The tinnitus doesn't change when this happens. I also should note that very occasionally at work, while sitting at my desk, I would suddenly have to grab onto the desk because it felt everything was about to fall over..sort of like the start of vertigo, but it wouldnt start. My mom said this used to happen to her at work as well! One of the yuckier things about this is the lingering nausea that you get. I understand there are crystals that float around and land on the inner ear hairs, and that improper movement can cause the sensation of instability and vertigo. I am 37 and in otherwise good health, but I doubt my inner ears are in the most perfect working condition! Anyone else with simular experiences? ----------------------------------------------------------- I had something like that a few months ago. My Dr said it was Labrithitis, and he gave me Sea Sick Pills, and an Antihistamine to take for a week. It seems to have worked, and I hope I never get that again! I was sick in bed for an entire day, the room would not stop spinning, and I could not eat or drink anything. I still have the ringging in my left ear though, nothing seems to take that away!! ----------------------------------------------------------- I had something like that a few months ago. My Dr said it was Labrithitis, and he gave me Sea Sick Pills, and an Antihistamine to take for a week. It seems to have worked, and I hope I never get that again! I was sick in bed for an entire day, the room would not stop spinning, and I could not eat or drink anything. I still have the ringging in my left ear though, nothing seems to take that away!! And, nothing will take it away. ~Patty~ > ----------------------------------------------------------- > I had something like that a few months ago. My Dr said it was [quoted text clipped - 6 lines] > And, nothing will take it away. > ~Patty~ But the good news is you will habituate to the noise. Soon it won't bother you at all. You won't hear it unless you listen for it, and you'll learn not to listen to it, for that serves no purpose. Good luck to you. scp > But the good news is you will habituate to the noise. Soon it won't > bother you at all. You won't hear it unless you listen for it, and > you'll learn not to listen to it, for that serves no purpose. Very well put, scp! What a pity the doctors and ENT specialists don't emphasise this point. It could save a lot of unnecessary misery or even suicide (!). They usually just tell you nothing can be done and that you'll have to learn to live with it. Cheers, Simon. after 18 months I have not habituated...doubt I ever will. Simon Brightwell wrote in message <40fa4464$0$62716$ee9da40f@news.wanadoo.nl>... >> But the good news is you will habituate to the noise. Soon it won't >> bother you at all. You won't hear it unless you listen for it, and [quoted text clipped - 9 lines] >Cheers, >Simon. > after 18 months I have not habituated...doubt I ever will. Bet you do, Jennifer. First of all you should try to adopt a positive attitude. Do not doubt if you ever will, for example, like you just did. I know it's easy for me to say, and I don't know how bad your T is, but you should start to believe that you will habituate, and then there is more chance you will, but don't become obsessed by it and be patient. Cheers, Simon. > after 18 months I have not habituated...doubt I ever will. Hang in there Jennifer. It took me about 18 months. and I've been habituated for several years now. I don't mean to drive you away or anything, so please don't misunderstand me, but hanging around this group or discussing tinnitus with others, while very helpful during the early stages is counterproductive when it comes to habituation. On another topic, I've been able to monitor my tinnitus at will ever since habituation. Last night I went to bed with the radio on as usual and was thinking about Patty's remark about the radio helping her get to sleep. I tried to hear my tinnitus and couldn't. I'm trying to hear it right now and it simply isn't there. You don't suppose it's gone do you? We'll see what tomorrow brings. In the meantime, I'm not going to sweat it one way or the other. Bill > > But the good news is you will habituate to the noise. Soon it won't > > bother you at all. You won't hear it unless you listen for it, and [quoted text clipped - 6 lines] > just tell you nothing can be done and that you'll have to learn to live with > it. What happens when there is a multitude of different sounds and some are like morse code (stopping and starting very quickly)? And loud enough to mask other noises like speech, TV, radio and any other normal noises. Normal sounds do not mask my T, even while driving in a car with air conditioning on, radio on and the window open. Thanks, Ken McDonald > Cheers, > Simon. "Ken McDonald" <kmcdonald.removethis.22@remo.vethis.neo.rr.too.com> wrote in part: >What happens when there is a multitude of different sounds and some are like >morse code (stopping and starting very quickly)? And loud enough to mask >other noises like speech, TV, radio and any other normal noises. Normal >sounds do not mask my T, even while driving in a car with air conditioning >on, radio on and the window open. I hear doors slamming, dogs barking, a diesel truck idling badly beside my ear, non-existent conversations I can't make out, the shriek that's always there, the high-tension power lines, and once in a while the thousand bees that invade my ears. A diesel tractor doesn't mask the louder sounds. I seem to have habituated just fine. I seldom notice the racket. That's the case for most people. SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG > "Ken McDonald" <kmcdonald.removethis.22@remo.vethis.neo.rr.too.com> > wrote in part: [quoted text clipped - 10 lines] > a while the thousand bees that invade my ears. A diesel tractor > doesn't mask the louder sounds. ... the thousand bees. That describes my tinnitus exactly. Always there. Always buzzing. Always invasive. I get some relief with masking when I'm out and about and when I'm not thinking about the buzzing bees inside my head. Right now where it's quiet in my room, the bees are back -- sometimes with a vengeance. > I seem to have habituated just fine. I seldom notice the racket. > That's the case for most people. Really? Most people with tinnitus habituate? Is there a study on this? Glynne > x-no-archive: yes > [quoted text clipped - 24 lines] > > Really? Most people with tinnitus habituate? Is there a study on this? I am not most people I guess. I've had my T for about 10 years now. When I hear a certain sound (low frequency), for some reason it frightens me to the point of panic more and more because if I can't tell where the sound is coming from, I assume it's my T. This month, it has occurred three times so far. The problem is that this sound can be something simple as one of the fans in my computer. It took two panic attacks to figure that one out. I noticed it because I only hear it in my right ear. It also can happen when my T abruptly stops and then starts out at low volume and low frequency and then begins to get louder and higher in frequency over a period of minutes. I hate the low frequency sound. If it doesn't hurry up and get back to the normal "chirping crickets", I get worried. When it stops abruptly like that, it makes me catch my breath too. I don't know how I'll ever get used to it. I know this sounds goofy as hell, but this is really happening to me. I've begun to see a psychiatrist to help me cope and get back on my feet. Ken McDonald > Glynne >>x-no-archive: yes >> [quoted text clipped - 42 lines] > > Ken McDonald Anxiety. Anxiety puts you on alert. You want to be off duty occasionally. My worry about tinnitus disappeared when I learned to manage anxiety. Really, it is not the tinnitus that makes you miserable, it is the anxiety you feel when you hear the tinnitus. Learn to know what anxiety is and how to control it, and the fear you feel will evaporate into nothingness. This happened to me. Rest, exercise, eat right, learn why you are anxious, learn to look anxiety in the eye, and learn to go about your business despite all that. All part of habituation to tinnitus. Many things going on at the same time. Tinnitus is not "causing" things here, but, IMHO, it is just "there", damn it. I've learned to ignore it. I found talk therapy very helpful. I found a little Xanax at times, when indicated for anxiety, a god-send. It allows me to crush anxiety when it interferes with my functionality, and lets me get to work. You are doing the right things. This will work. Be positive and hopeful. I promise you, you will habituate to the clatter. You still won't like it, but most of the time it will be of no consequence to you. Best, scp "Ken McDonald" <kmcdonald.removethis.22@remo.vethis.neo.rr.too.com> wrote in part: >I know this sounds goofy as hell, but this is really happening to me. I've >begun to see a psychiatrist to help me cope and get back on my feet. Sorry--I replied to your earlier post before reading this one. Treat the anxiety. You are doing the right thing. You can explore other options too, but give the current treatment a good chance. I would sure try to arrange things so that I was never in silence or in a position to "listen" to my tinnitus. The tinnitus won't hurt you, but listening to it or worrying about it sure can. SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG > > x-no-archive: yes > > [quoted text clipped - 42 lines] > > Ken McDonald Don't be frightened into a flight/fight response by these changes, Ken. Most of us experience them and they are of no consequence. I use mine as a source of amusement. Glynne Gilmore <glynnegilmore@netscape.net> wrote in part: >... the thousand bees. > >That describes my tinnitus exactly. Always there. Always buzzing. Always >invasive. I get some relief with masking when I'm out and about and when >I'm not thinking about the buzzing bees inside my head. Right now where >it's quiet in my room, the bees are back -- sometimes with a vengeance. My tinnitus started suddenly (instantly) with the bees in one ear. Then both ears became affected. >> I seem to have habituated just fine. I seldom notice the racket. >> That's the case for most people. > >Really? Most people with tinnitus habituate? Is there a study on this? I don't know. I know that many people are terrorized by their tinnitus at first, especially if it starts suddenly, and that most of them seem to do fine after a couple of years or so go by. That's just an observation, though I'm sure the issue has been studied and papers have been published. I'm not saying, before someone gets angry, that everyone habituates just fine. Some have great difficulty getting there, if ever they manage. SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG > Glynne Gilmore <glynnegilmore@netscape.net> wrote in part: > [quoted text clipped - 20 lines] > I'm not saying, before someone gets angry, that everyone habituates just fine. > Some have great difficulty getting there, if ever they manage. Yep, that's me Jim. Terrorized by tinnitus of sudden onset, habituated after a period of about 18 months, thanks largely to advice from you and others who were here when I first arrived. > "Ken McDonald" <kmcdonald.removethis.22@remo.vethis.neo.rr.too.com> wrote in > part: [quoted text clipped - 12 lines] > I seem to have habituated just fine. I seldom notice the racket. That's the > case for most people. I guess I'm not most people. So far it has gotten the better of me because it frightens me when it changes too much. I can't help but feel that it's going to take over. I'm sorry. Ken McDonald > in > [quoted text clipped - 28 lines] > > Ken McDonald Hi, Ken, I've been reading this group for years, and I first noticed my tinnitus in my early twenties. I've lived with tinnitus now for over 40 years. In my case, it sounds most like a thousand tuning forks struck hard pressed against my temples. I hear any tone I listen for, from very low hums to whines at the limit of my hearing, and every tone inbetween. From time to time the crickets march through. In those 40 years my tinnitus has gotten LOUDER, actually. It is twenty times as loud as it was when I first noticed it as a young man. When I am in a very quiet environment, the roar is deafening, though in truth my tinnitus does not seem to have affected my hearing. In traffic, in town, with the windows open and trucks and cars roar by, I suffer a little hyperacusis, and notice the tinnitus is immediately aggravated, and I can actually hear it over the tumult outside. Today, I am more amused by all of this than frightened. I have learned that no matter how loud the noise, it can't hurt you. Two can suffer the same tinnitus, one can be driven mad by it and made miserable. The other can ignore it and not even hear it unless he listens, and it makes absolutely NO impact on his quality of life. Everybody habituates, I believe, unless he or she has some other underlying problem that makes habituation difficult, such as chronic anxiety or depression. I'm talking about tinnitus that has no know cause other than loud noises. I know nothing about other causes, and you should talk to the professionals here for advice about them. I'm here for anecdotal evidence that habituation is real and works in noise-caused cases of tinnitus. I ask again: is there anyone reading this who suffers from tinnitus who has NOT habituated to some degree over time? I certainly have,and my tinnitus is VERY loud, and I almost never hear it. Lots of HOPE, Ken. My personal belief is if you feel good other ways, the tinnitus will quickly fade as a negative factor in your life. Work on stress management, anxiety, and if you are depressed, fix that. Believe me, Ken, all of us here understand and sympathize, or we wouldn't be here in the first place. I promise you, you'll feel better as you habituate. When you go through a day and realize you haven't heard your tinnitus once, you'll be convinced. Good luck to you, Ken, scp > > in > > [quoted text clipped - 76 lines] > > scp Amen, scp. That was a great characterization of tinnitus AND habituation. > I ask again: is there anyone reading this who suffers from tinnitus who > has NOT habituated to some degree over time? Yes. Glynne > x-no-archive: yes > [quoted text clipped - 4 lines] > > Glynne I'm going to speculate that at some time you became engrossed in a thought provoking movie like, for example, Farhenheit 911 and for a brief period forgot about your tinnitus. Perhaps you have engaged in some meaningful conversation and didn't notice it during that interval. If you did, these were periods of habituation. If you have ever experienced even brief intervals without noticing your tinnitus then there is every reason for you to believe you can increase the frequency and duration by accepting a few things: 1. Tinnitus isn't going to do you any physical harm. 2, You aren't likely to cure your tinnitus with medication or diet. 3. These brief intervals have taught you that you CAN habituate. Probably the hardest aspect of habituation is this: The harder your try, the harder it will be. Just coming to read this news group brings your attention to your tinnitus. You can't concentrate on *not* hearing the sound but you can give the sound a low priority in your life and concentrate on alternatives. Life is good, and filled with interesting, thought provoking sounds. Forget you tinnitus for a few days and concentrate on your favorite music, movies, radio programs or perhaps what your friends or significant other have to say. Forget about Gingko or any other form of treatment, forget about this news group. Just busy yourself with every other aspect of your life. If you will do this, Glynne, I think you might be pleasantly surprised by the results. snap_crackle_pop <snap_crackle_pop@inner_ear.org> wrote in message snipped... > Everybody habituates, I believe, unless he or she has some other > underlying problem that makes habituation difficult, such as chronic > anxiety or depression. This is probably the most objective statement I have ever read in this group. I used to suffer from extremely annoying somatic discomfort in the head caused by what I am looking back was 'hydrop' or excess inner ear production. Now, thanks to the online diagnosis of Murray and Jim, I have had that under control with diuretic. Once the somatic discomfort was gone, habituation has become a natural part of my life acts. But it would have been virtually impossible to habituate while suffering in silence from the discomfort. At that time while I was searching for answers to my somatic discomfort, I was constantly 'lectured' by the dogmatic minds that frequent this group. Thus I think the place where Ken should seek answers to his problem should not start from here but from a _licensed_ doctor. Mind you, many licensed doctors are licensed to be ignorant of treating tinnitus. I went to visit over 15 doctors during the initial stage and only one brought up the idea that inner ear fluid was the culprit. That is why I think Ken should pay a visit to Murray in this group rather than just going to any 'licensed'. I am a bit disappointed he so much enjoys abusing himself through prolonged suffering. FP ========================================= I'm talking about tinnitus that has no know > cause other than loud noises. I know nothing about other causes, and > you should talk to the professionals here for advice about them. I'm [quoted text clipped - 17 lines] > > scp "Ken McDonald" <kmcdonald.removethis.22@remo.vethis.neo.rr.too.com> wrote in part: >> I seem to have habituated just fine. I seldom notice the racket. That's >the [quoted text clipped - 5 lines] > >Ken McDonald The fear can create a vicious cycle in which you focus more on the tinnitus, that causes more fear, that causes more focus on the tinnitus, etc. There's evidence that brain pathways change in response to long-term exposure to and possibly to focus on a stimulus. But it can go the other way and become more normal. Have you had counseling, antianxiety meds, TRT, or anything to try to break the cycle? SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG I have had tinnitus for most of my life. I managed to learn to live with it. Sometimes it gets very bad. Most of the time, I don't hear it because I keep my environment with some type of noise or music at a level where I hear the outside noise. I found that noise masking is the best solution for me. This can make things hard for others, because of the constant music that I keep going for most of the time. The sound of a fan or an air-conditioner also helps mask the tinnitus. I sometimes have had the tinnitus that was so loud that it wakes me up at night, and I cannot sleep properly for a few days at a time. I don't like the idea of taking medications to sleep. Most medications have side effects. Some can be long termed, or short termed. For serious problems, a compromise must be taken in to consideration. I do have a craving to know what silence would sound like, but unfortunately this is something I will never have. My tinnitus is caused by a neurological disorder, and there is nothing that they can do about it. I just hope it does not get any worse with aging. A number of years ago, I had a bad experience with dizziness, and went to the doctor to have it checked. I was very sick from it. I had an inner ear infection. Antibiotics fixed it in my case. Car must be taken with dizziness. There are many types of symptoms that can cause it. Excessive high blood pressure, and diabetes are some examples of a few dangerous ailments that can cause dizziness. SignatureJerry G. ===== I havent posted in quite a while! I have had tinnitus since 1992 and have finally learned to live with it and get on with things. However something new has popped up. In 2002 I developed, right before bedtime, vertigo. The room was spinning. Never having this before, I went to sleep, hoping it would be gone in the morning. Well, it wasnt. I remember having to hang onto the sides of the shower so I wouldnt fall down. Fortunately it eased up after breakfast. Then nothing until about a month ago. Again, at night..I woke up and the room was spinning. I almost fell down getting out of bed and had to steady myself..it's really weird how it can literally knock you over. Anyway that cleared up before morning, and then last night there it was again. The tinnitus doesn't change when this happens. I also should note that very occasionally at work, while sitting at my desk, I would suddenly have to grab onto the desk because it felt everything was about to fall over..sort of like the start of vertigo, but it wouldnt start. My mom said this used to happen to her at work as well! One of the yuckier things about this is the lingering nausea that you get. I understand there are crystals that float around and land on the inner ear hairs, and that improper movement can cause the sensation of instability and vertigo. I am 37 and in otherwise good health, but I doubt my inner ears are in the most perfect working condition! Anyone else with simular experiences?
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