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Medical Forum / Diseases and Disorders / Tinnitus / July 2004

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Jennifer Bell - 04 Jul 2004 07:50 GMT
Hi, I have had tinnitus for 18 months now, is it normal in the early stages
for it to to change all the time.
It started as a rushing noise, then buzzing for a long time, and fullness in
the ear, I have fiound out my jaw was misaligned and have had bowen therapy,
my tinnitus has since changed again to a very high pitched whistle
I also think it is starting in the other ear, but it is hard to tell where
it is coming from sometimes.
Will I ever get used to it, because this is horrible, and is it normal for
tinntius suffers to hear sticky like sound when trying to pop their ears? I
sometimes get pain in the front and the back of my ears too. I have had MRIs
CT csans and seen many ENTs, all say everything looks normal.
I hope someone who knws can answer these questions for me, because I feel so
alone right now.
Thanks,
Jenny
jfp - 04 Jul 2004 13:44 GMT
Hi Jenny i will send you an e mail  regards  John
> Hi, I have had tinnitus for 18 months now, is it normal in the early stages
> for it to to change all the time.
[quoted text clipped - 11 lines]
> Thanks,
> Jenny
Jennifer Bell - 04 Jul 2004 13:46 GMT
Thanks John.
jfp wrote in message
>Hi Jenny i will send you an e mail  regards  John
>> Hi, I have had tinnitus for 18 months now, is it normal in the early
[quoted text clipped - 18 lines]
>> Thanks,
>> Jenny
Patty  Walker - 04 Jul 2004 14:11 GMT
Hi Jennifer,

You are NOT alone.  I am fairly new here too.  I have had tinnitus for
probably 15 years. At first, it was just occasional and I would think.."What
the hell is this *dripping water sound* in my ear?" Then, it would go away
for a while only to return again.  I have seen ENT's in several different
states. First in Virginia, then Tennessee..where I had a rhinoplasty for a
deviated septum (resulted from a fall as a child). I discussed my tinnitus
with that particular ENT/surgeon and he told me the same thing all the
others have told me...Unilateral Tinnitus with no apparent cause, except
perhaps the loud noise associated with being a chair side dental assistant.
My ENT here in SC offered nothing different as far as TRT. This past year it
became much worse and is very loud (to me anyway).  I found this newsgroup
after a desperate search for *answers* as to how to 'learn to live' with the
buzzzz.  There are some very nice people on here that will share with you
their experience with tinnitus, what works for them AND what hasn't.  It was
only after *talking* to one particular individual on the phone that I
realized I COULD and WILL get used to it. I'm not to that stage YET, but I'm
working on it.  I also learned I am fortunate to have it in only one ear and
at a constant high pitched buzz.  I can't imagine what it would sound like
to hear crickets or the sound of a train's brakes screeching. So, I am
slowly accepting my challenge.  It isn't easy and I still have days where it
seems unbearable.

All the things you are experiencing are normal for tinnitus sufferers.  You
WILL get used to it if you don't let it control you.  How you react to the
sounds you are hearing can have a effect on not only you but those around
you. My son can attest to that! If there is background sound (tv, radio, a
restaurant) and he is talking to me, I sometimes have to ask him to repeat
what he said. Until I told him about my tinnitus, he would just look at me
with the that 'DUH!' look and say..."Why don't you get a hearing aid?"...and
I would retort with..."Why don't you open your mouth and speak clearly
enough for me to hear you?" Now, he understands what *my* problem is and how
devastating it can be for me, if I let it. I was able to find a 'sound' on
my computer that was similar to what I hear, asked him to put the headphones
on with the sound coming through only the left ear and listen to it for a
few minutes....he only lasted about 20 seconds with it!  I told him that is
what I hear 24/7 and ever since, he has been a little more understanding.

After my mom passed away 3 years ago, my minister told me there are 5 stages
to grief.  He used the acronym DABDA and I share this with you because I
believe the same could be said about dealing with tinnitus...since all of us
here have lost something...our silence.  It stands for:
D - Denial
A - Anger
B - Blame
D - Depression
A - Acceptance *** this is the most important because if you don't ever get
to this point you will just keep bouncing around the other four.  I know,
I've been there.

Can it take over?  Only if you let it. I had let it stop me from getting out
and running, something I love to do. Now, I'm back to running my 8-10 miles
every other day. I actually find that it is a lot less *noticeable* after a
good aerobic and cardiovascular work out!

I hope all of this helps you in some way.  I'll tell you like I was
told....Hang tough, you can do it!!

Best of Luck to you...and have a peaceful day.
~Patty~

> Hi, I have had tinnitus for 18 months now, is it normal in the early stages
> for it to to change all the time.
[quoted text clipped - 11 lines]
> Thanks,
> Jenny
Jennifer Bell - 04 Jul 2004 15:23 GMT
Hi patty, thanks, I doubt I will have a peaceful day thpugh, I avent had
peace for 18 months.
D - Denial
>A - Anger
>B - Blame
>D - Depression
>A - Acceptance

as for these stages I am passed depression but before accepting. My ear was
buzzing for a long time, that was the worst, yes I could get relief by
blocking my ear, but then I couldnt hear. Since having bowen therapy, and
taking ginko, and vitamin B, I am alot better!!

I got so bad and got told so many diagnosis from accoustic neuroma to
possible Multiple sclerosis, I ended up making myself sick, the Drs
diagnosed chr0nic fatigue. I had to quit work. That was 6 months ago
since having Bowen therapy I am so much better and started back at work last
week, the neurologist told me to accept it and just get back to work before
I wont be able to. I am doing pretty good, but I always have the fear, what
if I wake up and Im having a bad ear day, will I be able to cope?  Sometimes
when the crickets are soo loud I cant concentrate I feel liek I have strange
sensations in my face and i get really anxious. I cant belive that you have
had it for 15 years and are still finiding it hard to cope..thats scary very
very scary, I havent even had mine for 2 years yet. I hope I can survive
this, because I have felt suicidal many many times.
The hardest thing is when you have a few good days, then it comes back
really lud, that makes me sick.
Anyway Thanks for answering my letter it's good to know I'm not alone,
although it still feels like it, dunno if the Drs all over the world are the
same as here in Aus, they just say, Live with it!!!
THATS EASY FOR THEM TO SAY!!!!
Patty Walker wrote in message ...
>Hi Jennifer,
>
[quoted text clipped - 75 lines]
>> Thanks,
>> Jenny
Patty  Walker - 04 Jul 2004 16:09 GMT
Yes Jennifer, the Drs. "all over the world" pretty much say 'learn to live
with it'.  Even though I have had tinnitus for 15 years, it has not *always*
been as loud as it is now and it wasn't *always* a constant sound.  Perhaps
it was because I was younger, busy ALL the time, and didn't have much time
to think about it.  This just happened in the past year. I've had a lot of
stress in my life in that time and I honestly believe that stress, insomnia,
and the resulting fatigue tend to perpetuate my tinnitus. Also, I was living
a 'way too quiet environment' after my mom died. Surround yourself with
background music or soothing environmental sounds..or just leaving the tv
on...anything to divert your attention.  I've felt suicidal at times and
know exactly what that feels like. I even thought about puncturing my
eardrum and trying to make myself deaf in my left ear to 'get rid of the
buzz'...but guess what...even THAT is not a guarantee that you will not hear
the sounds. You said "I get really anxious"...has your Dr. given you
anything to alleviate your anxiety? If not, you might want to ask for
something to help you through the really difficult times.

I have 'brief moments' of not hearing my tinnitus, usually when I am really
concentrating on watching a movie, or like last week when I went to a water
park.  But, I remain hopeful that the day will come when I hear it ONLY when
I pause to 'listen for it'.  Hang in there.

Good Luck,
~Patty~
> Hi patty, thanks, I doubt I will have a peaceful day thpugh, I avent had
> peace for 18 months.
[quoted text clipped - 122 lines]
> >> Thanks,
> >> Jenny
Ball 33 - 04 Jul 2004 16:57 GMT
<snip>
> as for these stages I am passed depression but before accepting. My ear was
> buzzing for a long time, that was the worst, yes I could get relief by
> blocking my ear, but then I couldnt hear. Since having bowen therapy, and
> taking ginko, and vitamin B, I am alot better!!
<snip>

Jennifer, classic tinnitus sufferers don't find relief by blocking an ear
because the sound they perceive doesn't have an external origin.  If
blocking your ear helps, then the sound you hear is coming from something in
your surroundings.  In this circumstance, ginko and vitamin B would have to
reduce your hearing capability in order to achieve the same effect, and
would therefore be harmful to you.

Bill
Jennifer Bell - 04 Jul 2004 23:24 GMT
Hi Bill.it definatley isnt outside noises, becuse it still happens, if my
ear hums or buzzes, I block my ear with blue tack and the buzzing stops,must
have somethin to do witht he eardrum vibrating.
Ball 33 wrote in message ...

><snip>
>> as for these stages I am passed depression but before accepting. My ear
[quoted text clipped - 12 lines]
>
>Bill
Patty  Walker - 05 Jul 2004 04:56 GMT
Jennifer,
If I block my ear with *anything* the buzzing does NOT stop....as is the
case with classic tinnitus. This is what Bill was pointing out to you.  It
is an internal sound.
~Patty~
> Hi Bill.it definatley isnt outside noises, becuse it still happens, if my
> ear hums or buzzes, I block my ear with blue tack and the buzzing stops,must
[quoted text clipped - 18 lines]
> >
> >Bill
Jennifer Bell - 05 Jul 2004 05:24 GMT
That's weird, I didnt really think about  where it came from just that I
could get relief, for a while the Dr put me on cold and flu tabs he said if
that stops the buzzing, then it is caused by fluid, it stopped the buzzing
but made me feel terrible. He sent me to an ENT but the ENT said there was
no fluid...so who knows, all I know is that it hasnt buzzed in a while now,
and I am very grateful!!

Patty Walker wrote in message ...
>Jennifer,
>If I block my ear with *anything* the buzzing does NOT stop....as is the
[quoted text clipped - 26 lines]
>> >
>> >Bill
Elly Byrne - 04 Jul 2004 21:22 GMT
Hi Jennifer,

When you keep your diary would you consider keeping track of what you
DID with your body (not just what you ate).

In most people the problem is muscular - to do with tension in the
neck and shoulder muscles. That is why the Bowen therapy is working.

http://www.yts.se/english/index.htm
http://eebee.net/TinnitusIsaPainintheNeck.shtml

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/

For email: elly at eebee.cjb.net

>Hi, I have had tinnitus for 18 months now, is it normal in the early stages
>for it to to change all the time.
[quoted text clipped - 11 lines]
>Thanks,
>Jenny
Oregon7 - 08 Jul 2004 05:17 GMT
Please be sure your work up included a thorough examination by a neuro
otologist and an audiologist.

Marsha Johnson, MS
Portland, Oregon
Jennifer Bell - 08 Jul 2004 06:49 GMT
I have seen neurologisy Neurosurgen, because I have osteophytes in my
cervical spine that are connecting with my spinal cord, he says its normal
wear and tear though and would not be contributing to my ears..also I clench
my jaw and griund my teeth and have heaps of tension in my shoulders and
neck....but apprant;ly everything is normal...hmmm
>Please be sure your work up included a thorough examination by a neuro
>otologist and an audiologist.
>
>Marsha Johnson, MS
>Portland, Oregon
 
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